LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Getting back a life

 - UBBFriend: Email this page to someone!    
Author Topic: Getting back a life
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 9 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Really blunt question, don't know the answer to. Don't know how many people do that are on

treatment. On 3 gr. iv rocephin, zithromax iv (3x week) and 200 doxy. Feels like my heart

is vibrating (on a beta blocker) and mind wise I haven't felt myself since November, but some

days its really bad. Living in a fog, nothing lifts it, feels like walking dead. Take xanax

when I have to some days don't need it at all, but the strong willed person is out and doesn't

feel like she's coming back. How do you believe you are stronger than this and get yourself

back? Hormones play a role, treatment, the disease itself, trying to do what I do everyday,

but a day like this doesn't seem possible. How do you cope and convince yourself its a symptom

and not believe you're not strong - I've gotten through this as we all have, but... Better health to all.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
You are strong and you will be back! It took me about 5 years, but I think I finally beat this disease. Keep pushing, you will get through. You know these are symptoms and you will get through them! Hang in there!
I can remember talking with someone and as I stood there listening I was thinking that I'm dying..I'm dying right in front of their eyes and they don't even know it....
Have you been treated for depression. I'm a pretty optimistic and strong person, but I had to take depression meds for a while. My LLMD convinced me it was a good ideas so my body could focus on healing the Lyme. It did make a difference.
I don't know your story, but I had Lyme while my 2 1/2 year old and 14 mos old children had it as well. Talk about hell, but you know what, I always heard stories worse than mine.
Do what you have to do for yourself, if you need to feel bad for yourself, that is okay, do it. Everything about this disease sucks!
When you feel good, then do what you can!
It will get better, again and again....
I wish you the best...

Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

Icon 1 posted      Profile for lyme in Putnam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you DJP. I thought feeling like this was over and then bam, back with a vengeance. I hope you continue on the road up. Thanks for the ear.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know, it goes like that! You feel better and get a taste of life and then bam you are back down again. It's a rough cycle and I hope it gets better soon. Keep up the fight! We are all pulling for you.
Deb

Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm right there with ya.

Been treating for a little over a year, started feeling better, LLMD took me off one of my meds because I was showing such significant improvement.

Started feeling like myself again, started exercising again, even had my old libido coming back (never thought I'd see that girl again!).

Then out of the blue, BAM! I felt like I was on my deathbed. So bad yesterday I felt like going to the ER.

Called LLMD for advice, and he restarted rifampin.

I feel so defeated. Thoughht I was finally on an upswing and didn't expect to be this far down ever again.

Just not willling to give up. I have too many things I want to do. I graduate from seminary in May, and I want to be there, not in bed with a freakin' lyme flare.

Hang in there!

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.