LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » High Strep Titre

 - UBBFriend: Email this page to someone!    
Author Topic: High Strep Titre
PossibleLyme
Member
Member # 24062

Icon 1 posted      Profile for PossibleLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does anyone else have a high strep titre? If so, are you taking an antibiotic that specifically lowers your strep titre? I read somewhere that chronic strep is very common in Lyme. I have a high strep titre and was wondering how it should be addressed.
Posts: 17 | From Canada | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
ping
Frequent Contributor (1K+ posts)
Member # 6974

Icon 2 posted      Profile for ping     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi PossibleLyme - I had my tonsils removed at 2 yoa and never had a strep run on me when dx with TBD almost 50 yrs later. However, it seems to be gaining in popularity among some to have children's tonsils removed to assist in solving the strep / Lyme relationship problems. Don't know what to make of this, since if not your tonsils, then your heart valve? (Since strep is a traveler.) Also, strep reportedly responsible for many psych problems in kids, say some docs.

Will bump up your message for those here who definitely know a lot more about this than I do.

--------------------
ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had high strep levels as well, but mine resolved with tx on Doxy and Rifampin.

I guess they'll be retested the next time I go to the LLMD, so we'll see.

So strep is responsible for psych problems in some kids? I wonder if that's what my son's problem is. He acts absolutely possessed sometimes, and he does seem to get sick a lot with ear infections, sinus infections, and suspected strep (they rarely actually run tests on him, but I think they should).

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
ping
Frequent Contributor (1K+ posts)
Member # 6974

Icon 4 posted      Profile for ping     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Starfall1969:
So strep is responsible for psych problems in some kids?

This is what a Dallas psychiatrist is contending. He's recommending tosilectomy in numerous cases; exactly what percentage, I don't know. Hope this isn't another "Walter Freeman solution".

www.rgjaecklemd.com

--------------------
ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
suz9601
LymeNet Contributor
Member # 6968

Icon 1 posted      Profile for suz9601   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mine has been high for years. .the ASO. Took months of amoxicillian and it is still high...
Posts: 146 | From Midwest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mine is high too... and the ASO went up while on Amoxicillin which baffled my LLMD that was treating me at that time...because they said it should have decreased with treatment.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
pab
Frequent Contributor (1K+ posts)
Member # 904

Icon 1 posted      Profile for pab     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Starfall1969:
I had high strep levels as well, but mine resolved with tx on Doxy and Rifampin.

I guess they'll be retested the next time I go to the LLMD, so we'll see.

So strep is responsible for psych problems in some kids? I wonder if that's what my son's problem is. He acts absolutely possessed sometimes, and he does seem to get sick a lot with ear infections, sinus infections, and suspected strep (they rarely actually run tests on him, but I think they should).

Research PANDAS. Kids develop it from untreated/chronic strep infections. It usually involves the sudden onset OCD and some kind of tic.

My kids (age 19 & 23) had their tonsil & adenoids removed on 3/10/10. They are still in the recovery stage. The ENT said their tonsils were full of infection. Their tonsils looked normal when she examined them in her office.

The test that was the most useful is the DNASE-B AB. Their titers were 3 and 5 times the normal. My husband's titers are 8-9 times the normal. He is planning on having his tonsils removed next month.

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

Posts: 2775 | From MN | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
Pam08
LymeNet Contributor
Member # 19203

Icon 1 posted      Profile for Pam08     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mine is very high as well. My DNase-B AB is 1360 when it should be below 85. If you do a search you will see a thread I just posted about this as well asking how to get rid of chronic strep.

I have found out that this can be very difficult to treat. I have been on abx for over a year and my strep is still not under control.

Also I have heard from a few people that getting the tonsils removed may not necessarily be the answer. There are some who have high strep levels that no longer even have their tonsils. So I would definitely research that before deciding to go in that direction. It may not resolve the issue.

Strep can be in other areas and not just isolated to the tonsils.

Here is a quote from something I read online about strep:

"The bug can leave the tonsils, get into the blood stream and take up residence in the kidneys, or in the heart valves causing rheumatic fever or kidney disease (post streptococcal glomerular nephritis. -a degenerative disease..) There is also the possibility the disease can become systemic in susceptible and compromised people."

It seems that strep is very tricky and can be really difficult to treat. I am currently having a hard time with it myself. If I can figure out how to get rid of it I will surely let you all know what was done.

Take Care!
Pam :-)

--------------------
Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting.

Posts: 451 | From Virginia | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Pam08
LymeNet Contributor
Member # 19203

Icon 1 posted      Profile for Pam08     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just bumped up my thread for you so you can get more info about the high strep levels and some suggestions on treatment.

The thread is called "How do you get rid of Chronic Strep?"

--------------------
Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting.

Posts: 451 | From Virginia | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
PossibleLyme
Member
Member # 24062

Icon 1 posted      Profile for PossibleLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you!
Posts: 17 | From Canada | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Timely discussion. My daughter has had strep twice in the last few months. We've never had it before. Wondering if the 3 of us could have it...
Thanks for the info...

Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
ping
Frequent Contributor (1K+ posts)
Member # 6974

Icon 2 posted      Profile for ping     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Pam08:
...I have found out that this can be very difficult to treat. I have been on abx for over a year and my strep is still not under control.

Also I have heard from a few people that getting the tonsils removed may not necessarily be the answer. There are some who have high strep levels that no longer even have their tonsils. So I would definitely research that before deciding to go in that direction. It may not resolve the issue.

Strep can be in other areas and not just isolated to the tonsils.

Here is a quote from something I read online about strep:

"The bug can leave the tonsils, get into the blood stream and take up residence in the kidneys, or in the heart valves causing rheumatic fever or kidney disease (post streptococcal glomerular nephritis. -a degenerative disease..) There is also the possibility the disease can become systemic in susceptible and compromised people."
...

Right, on all counts, Pam. These strains tend toward abx resistance and are difficult to deal with. Tonsilectomy across the board isn't necessarily a curative measure and as you've posted, the strep likes to travel to other sites.

I had my tonsils removed when I was a toddler and still have all the complications that Lyme could induce. Removing infected organs is not an absolute resolution of psych or other issues.

--------------------
ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.