LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter

The Lyme Disease Network receives a commission from for each purchase originating from this site.

When purchasing from, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Hard time on more than 1 antibiotic anyone else?

 - UBBFriend: Email this page to someone!    
Author Topic: Hard time on more than 1 antibiotic anyone else?
Member # 22378

Icon 1 posted      Profile for Lauraloo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi everyone,

I've been at this for about a year and have never been able to get more than one kind of antibiotic in at a time due to sensitivites. Has anyone else experienced that? I'm also getting worried that the bug may become resistant being only on one at a time :s.

I have had improvement but I'm still a little worried. I was initally on 3 months baxin/tini when I started and was herxing like crazy but tolerated it. Then I changed doctors since the one in my area was retired and I went to another. He was very aggressive with treatment and I didn't do as well. Always complications and side effects.

Just finished up 2.5 months of ceftin did generic for first 2 months were slightly old and yellowed but had no problems. Went to refill my prescription and got name brand sealed from the manufacturers pills. After the third pill my brain started racing and I was having repeated music in my head. Tried to contact llmd but you speak with NP or else you pay to speak to him directly. They said keep going which I did then 2 weeks into it it was driving me nuts and they couldn't tell me at that point whether it was a herx or to stop. Do he stopped me on antibiotics.

Now I was off for 10 days and starting up again today. I'm frusturated and feel like I'm not taking care of this correctly. Scared of antibiotic resistance and resistant bugs I'm thinking about it all. Has anyone else had this problem? By the way I was positive for rmsf and ehrlichia on top of Lyme. Treated with doxy.

Posts: 12 | From Canada | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
What kind of liver support are you doing? That is often the key to being able to better tolerate treatment.

A gluten-free diet also helps. More about self-care and support methods:


Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

As important as any supplements, sections regarding self-care:


and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages


Important information about treatments options and support measures, supplements and self-care: (through Amazon)


- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site:


Chapter 1 from the book "Insights Into Lyme Disease Treatment"

You can google or search Amazon for a copy of the book itself.


A Treatment Guide: Lyme and other Chronic Infections

by Dietrich Klinghardt, MD, PhD

October 2009 - 87 pages

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 11699

Icon 1 posted      Profile for bigstan     Send New Private Message       Edit/Delete Post   Reply With Quote 
Musical hallucinations I can tell you is common in Lyme patients. More common in women. I'm a male and I have this Phenomenon. Have had it over three years but it is better. More common also with low CD-57 scores. There is all kinds of info on google if you search musical hallucinations/lyme disease/cd57.

Here is one link to get you started:

PS: I wouldn't be concerned about "Scared of antibiotic resistance and resistant bugs." I take breaks all the time and so do others. My doc tells me not to worry about it. Don't let this concern you either it just adds to stress.

HERX is a Four Letter Word!

Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
Magnesium and fish oil can decrease the NMDA over-excitability that often causes musical hallucinations.

Be sure to avoid aspartame and MSG. Google for all those names it hides under. Even a trace is toxic and will cause a neuro-toxic hyper reactivity.

Adrenal exhaustion (common to lyme) causes increase in the NMDA excitability patterns.

If tinnitus is at all involved, as is often the case, see thread below.

Fans and motors, even within a block or two, can trigger musical hallucinations, which - then - are not really hallucinations at all. Often that word is used when it's really a kind of tinnitus (which can be nearly any sound, buzz, whirl, etc.).

Musical hallucinations can also be a memory in our brain that is stimulated by all the toxic activity from lyme. But, really, every day, "normal" people can get musical hallucinations of varying degrees.

If very troublesome, a LL neurotologist should be consulted. It's best to get a referral from one's LLMD for any ear specialist, though as many are unfamiliar with the complexity of lyme and, while not everything is from lyme, it is best if they about it so they can best sort things out.

Liver stress also can contribute to musical hallucinations - and also to any level or degree of seizure activity (to which musical hallucinations can be connected). Liver support is discussed in the articles and books in post above. Also more links about liver support here:

Specific for LYME patients - lots of details about ears and what can help:;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS


Underactive Adrenal Gland - Stresses and Problems with the Body's 'Gear Box' - by Dr. Sarah Myhill, MD


Many libraries carry this book and you can read 95 customer reviews here (average 4.5 star out of 5) AND see inside the book:

Adrenal Fatigue: The 21st Century Stress Syndrome

~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD

About $10. And qualifies for free shipping with a total $25. Purchase at Amazon

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator

Quick Reply

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins

Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:

Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA

| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.