posted
I was bit last July, misdiagnosed several times, and given steroids. I was not doing well four months ago.
Numbness, tingling, headache, lethargy, aches, brain fog, chills, shakes, neck pain, palpatations, sleep issues, & dizziness were the major symptoms.
After four months of treatment with an LLMD, I am getting better and most of these symptoms have lessened or gone away except for the numbness & tingling.
I would like to get some feedback on those who are better if you still experience the numbness & tingling. Mine is pretty constant and does not effect sleep patterns.
Posts: 197 | From Let's Go Pens! | Registered: Apr 2010
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posted
I had many of the same symptoms. The numbness and tingling went away more permanently-so far. In fact, they got worse for awhile. Now, I rarely experience them.
Posts: 72 | From washington dc | Registered: Mar 2010
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Lyme for me was apparently dormant and blew up like a grenade when a mainstream Md gave me steroids and disseminated it body wide, straight into my nervous system and caused excruciatingly painful numbness/tingling and probably 40 other painful symptoms.
Stay away from steroids when you have Lyme, they are the worst thing for LD patients. I have fought to get my life back 4 years (so far) because of steroids.
For me (antibiotic-wise) Amoxicillin helped the numbness and tingling disappear, but not the other painful neuro symptoms I had.
Other drugs (not antibiotics) that may help, Neurontin or Lyrica or Xanax.
You sound really lucky that you are getting better so fast, steroids annihilated me.
If you are interested, check out the link at the bottom of my post for lots of reliable LD info/links.
posted
Numbness and tingling was one of my worse symptoms. Most of it cleared up when I treated bart with Tindamax and Rifampin. I still get it every once in a while, but its usually after I haven't slept well for a few days.
Posts: 146 | From California | Registered: May 2008
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posted
I've been treated for chronic lyme for almost two years. Numbness and tingling was the first symptom to show up and so far its taking the longest to go away. Rifampin/Zith/Amoxy helped knock it down some. So did rocephin but I've still got it.
Not nearly as bad but still there. Acupuncture has helped but hasn't taken care of it either.
Posts: 48 | From Baltimore, md | Registered: Jul 2008
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posted
Numbness and tingling was my worst symptom...was painful even. It took many months, but now all I get is ringing in my ears, and fullness with a muffled effect in my head. Even that was better until I had a bout with diverticulitis and was on Cipro....messed me up for awhile!
I was one of the lucky ones who knew I had tick exposure, and was taken seriously by my MD's when I became ill and told them it was most likely tick-borne. But even with prompt treatment, the stupid disease dissemminated and went neuro on me. Had first Doxy then IV Rocephin. The ID's, and even my LL PA, all feel that it is most likely leftover inflammatory response, and over time may go away. A year later, actually my one yrsr anniversary of becoming ill is May 31 of this year, and this is still here. But-not painful any longer, and more annoying now than anything. And it only seems to be there in the evenings, and occasionally other times of the day, but not all day.
healing takes so much time.....don't get discouraged.
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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posted
I just started Amox last week after three months of Doxy so perhaps that will help. The only prescription I take besides the abx is Neurontin before bed to help sleep.
I am grateful to be getting better and not discouraged at all. My LLMD was pleased with the progress after three months of treatment. I think my mom is more freaked out about the disease than I am but mothers worry.
Thanks for the input everyone.
Posts: 197 | From Let's Go Pens! | Registered: Apr 2010
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