LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Larium information needed

 - UBBFriend: Email this page to someone!    
Author Topic: Larium information needed
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
I will be starting Larium soon for a very persistent case of Babesiosis. I will be taking one dose every five days.

For those who have taken it, how did you do on it? Did you take it in the morning or in the evening? Did you experience side effects, if so to what degree? How long did you take it, and do you feel it was beneficial?

Any information is appreciated!

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had hallucinations the first two times I took it. I never had them after that.

I took it as often as you do along with Malarone and artemisia daily. I ended up going back on Mepron after a few months.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Haley
Frequent Contributor (1K+ posts)
Member # 22008

Icon 1 posted      Profile for Haley     Send New Private Message       Edit/Delete Post   Reply With Quote 
My LLNP said it gives incredible brain herxes (whatever that is). I assume she meant things like six is talking about. Hallucinations etc..
Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you both for your replies. I think it is good to know what I may be in for ahead of time.

I hope I don't have hallucinations, but it is good to know yours did not last very long six. I am sorry you still had to go back on Mepron.

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks. I'm in remission now. [Smile]

The hallucinations weren't scary. Maybe I should have been scared .....

One was of my husband standing there talking to me. He woke me up, told me he didn't mean to, to go back to sleep, to sleep well, that he loved me. It was actually a nice hallucination since he was out of town. [Smile] I was not dreaming. I was awake, but had just awakened.

The other was when I went to bed and the first few happened before we even turned the lights off. It was an auditory hallucination. It sounded like large books were being thrown on the floor near me. I was astounded that my husband could not hear them. I remember saying, "You mean to tell me you didn't hear that?!?!" I even looked under the bed to see if a book had fallen off the nightstand.

That gives you an idea of what it did ..... If it continued, I'd have told my LLMD. I probably should have told him about those two, but didn't.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
ahmet ozbek
LymeNet Contributor
Member # 14358

Icon 1 posted      Profile for ahmet ozbek     Send New Private Message       Edit/Delete Post   Reply With Quote 
i took first Lariam yesterday. it increased my fatigue and fibromyalgic pain
i feared from psychiatric side effect but it didn t happen

[ 05-18-2010, 06:05 AM: Message edited by: ahmet ozbek ]

Posts: 182 | From turkey | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
six, it is awesome that you are in remission.

I think it is better not to be scared. For me just knowing what to expect is a great help.

At least your hallucinations were not bad ones! It has to be so weird to really hear or see something that didn't happen!! Did you take the Larium before bed? If you remember, did the hallucinations both happen about the same time after taking it?

Thanks!

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
ahmet, thanks for your response. What time did you take the Larium?

Good luck with it. Please keep me posted on how you are doing.

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
ahmet ozbek
LymeNet Contributor
Member # 14358

Icon 1 posted      Profile for ahmet ozbek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sammi ,i took it in the noon. but it caused sleep impairment and diffucult fall asleep last 3 days. Regards
Posts: 182 | From turkey | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
ahmet, thanks for your reply. Do you think it would help to take it right before you go to sleep?
Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
valeriedc
Member
Member # 24950

Icon 1 posted      Profile for valeriedc     Send New Private Message       Edit/Delete Post   Reply With Quote 
I started 2 weeks ago with a 'loading' dose of 5 pills on Friday. Felt tired and nauseous the whole weekend. Then better and better. The second single dose was fine. The instructions say to take it after the single biggest meal of the day (for me that is dinner which is about 4 hours before I go to sleep). I'm concerned about the psychiatric affects and will only take it when my husband is around. But haven't experienced any, to be clear.

My babesia seems quite tough to treat, was on malarone then mepron, now larium.

Posts: 72 | From washington dc | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
ahmet ozbek
LymeNet Contributor
Member # 14358

Icon 1 posted      Profile for ahmet ozbek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sammi

i took first dose tuesday.(i will take next dose saturday).i couldn't make loading dose .My sleep impairment began wednesday(not same day).

Posts: 182 | From turkey | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Amanda
Frequent Contributor (1K+ posts)
Member # 14107

Icon 1 posted      Profile for Amanda     Send New Private Message       Edit/Delete Post   Reply With Quote 
I took one pill every day for four days. And no after that, I take it every three days. At first, I was really dizzy. Also, after the third night, I had night sweats and fever from hell. And that was after over two years of Mepron/zith at high doeses!

Now, the only symptom I notice is its really hard to fall asleep. I take it in the morning, and insomnia is still a problem. Benn taking it now for 9 weeks. I'm not sure if this is working. It seemed like it was working in the beginning. But Babs really isn't my worst symptom (except for the first herx). My biggest problem is that it is supressing my immune system, and making it impossible to get over the lyme...

--------------------
"few things are harder to put up with than the annoyance of a good example" - Mark Twain

Posts: 1008 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
valeriedc, I am glad the Larium seems to be helping and that you have not had any psychiatric side effects. I think it is a good idea to take it when someone is around. I also have a tough case of Babesiosis. I hope the Larium continues to help you.

ahmet, thanks. I am sorry you are having sleeping problems. I hope it lets up for you soon.

Amanda, thanks for posting when you take it. It sounds like you had quite a herx. I hope it is still working so you can eradicate the Babesiosis. I have been on Mepron several times. Why do you say it is affecting your immune system?

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.