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» LymeNet Flash » Questions and Discussion » Medical Questions » Who here is on LDN and what are your experiences?

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Author Topic: Who here is on LDN and what are your experiences?
bcb1200
Frequent Contributor (1K+ posts)
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I'm starting 4.5 mg tonite. I heard I should start slowly but only have 4.5 capsuls from Gideon's.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
dmc
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I couldn't take it while doing abxs...herx or reaction but thought I was dying 1 hr. after taking it. Heart, palps, difficulty breathing,sweating, didn't just happen once but everytime.

Note: Prior to Lyme treatment I took LDN for 2 yrs without any troubles for my supposed MS. Just horrid when on abxs.

Do a search here. SEARCH button is above under the "post a poll".

search for LDN or low dose naltrexone. There are lots of comments.

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
keltyl
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4.5 is quite alot to start. I started, and am still on 2 mg. Next time I go, I'm ready to have them up it.

I had sleep problems at first, in fact last year I quit b/c of it. Now I think it helps a little.

Hard to say if it helps otherwise, I'm on and off so many things.

Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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I've read wonderful things about LDN stimulating the immune system. But I have heard I'm supposed to start 1.5, 3.0 and then 4.5.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
DeniseNM
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Can you open the capsule and pour most of it out? Everything I've read says to start low and go slow. I started on 1/2 of one capsule for a week or two, then upped. Can tolerate 3 mg now, no problems, i actually think it helps me sleep.

--------------------
dx: MS in 1998
2007 - Lyme suspected
2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS
gall bladder out 7/09
Ceftin, Zith, Septra
LDN
Acyclovir
Monolaurin, DHEA, Pregnonelon, Curcumin

Posts: 243 | From New Mexico | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
FunkOdyssey
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I worked up to 4.5mg by starting with 0.5mg and increasing the dose by 0.5mg weekly. I was able to avoid any serious sleep disturbances or strong herx reactions this way (I had such extreme crazy herxing when I tried to start at 4.5mg I had to stop taking it).
Posts: 195 | From Manchester, CT | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
bcb1200
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How did you do this? Did you open the 4.5 mg capsuls and dump some out?

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
psr1
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That is what I did: open the capsules and put half in water and stir. I am taking 3 mg and it helps a great deal, but I had to start with tiny amounts and work up to the full capsule
Posts: 360 | From New York | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
FunkOdyssey
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I made my own LDN solution from 50mg tablets with 50ml water, so 1ml water = 1mg naltrexone. Then you can administer whatever dose you'd like with a measuring dropper.
Posts: 195 | From Manchester, CT | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
bcb1200
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Am I supposed to always dissolve in water? I was just taking the 4.5 mg capsule.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
keltyl
LymeNet Contributor
Member # 14050

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No! You are just supossed to take the capsule.
Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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