There is a huge spectrum people experience with LD and its co-infection + variables.
Some people have arthritis symptoms and that's it. (give or take)
It goes from this to extreme cases of people going into coma, having seizures, paralysis etc. and the various stages it takes to come back from such kinds (and other kinds of LD trauma). During some stages, exercise is not recommended but at some point, it will (hopefully) become or be, necessary.
I never look at LD as an "us" thing, or a "we" thing. It is an "I" thing and a "you" thing.
Exercise like this is not advised for those who are in extremely ill shape but really, you need to know yourself and determine for yourself what you can and can't do.
It is best to do what you can with exercise since it is great medicine, even if the exercise is yoga or tai chi.
It is also best to not do the exercise if you simply know you ought not to.
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- Tai Chi, indeed, can be surprising effective. Pilates or Restorative Yoga, too. There is much room for individual variation but be sure to get excellent instruction so you have the elements of the form precise. Then you can adjust to your needs.
Also never underestimate the movement of just living. Just move. Do what you enjoy in safe amounts of time. Walk. Here's what you need to know to proceed safely:
[Post-polio expert] Dr. [Richard] Bruno points out that physical over-activity is the biggest cause of post-polio symptoms.  (See Dr. Bruno's "Fainting and Fatigue" in the Spring 1996 CFIDS Chronicle, page 37.)
. . . when mice infected with Coxsackie B3 were forced to swim in a warm pool, the virulence of the virus was drastically augmented.
In fact, viral replication was augmented 530 times. This did horrendous things to the animals' hearts.
We all know that to play squash with the flu can lead to heart attacks. Much the same danger can be courted by undertaking hard exercise with M.E. [what CFS is called in the UK.] . . . .
. . . In 1988, Reyes and his colleagues exercised mice suffering from Coxsackie B3 myocarditis -- inflammation of the heart muscle caused by the virus.
They showed that the effect of exercise on the production of the neurohormones which regulate immune response and inflammation led to an increase in susceptibility to Coxsackie virus infections -- the host response was altered in favor of the virus. . . . .
. . . Cont'd at link above.
As well, the adrenal dysfunction that often plagues lyme patients must be considered on an individual case. If a patient has severe adrenal exhaustion, aerobics can be damaging from that perspective:
~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD
About $10. And qualifies for free shipping with a total $25. Purchase at Amazon -
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Member # 12673
- Don't focus on loosing weight. Focus on enjoying lots of healthful foods with great garden herbs and intense spices for flavor. Lots of colorful vegetables, some dark berries, etc.
For many lyme patients weight has everything to do with infection. When the infection(s) get adequate treatment and the body has teh support it needs, weight normalizes.
As long as we eat the very best foods, and enough (yes, enough, as many don't eat enough of the right foods at the right times) . . . well, if we eat correctly, move as best we can in a safe manner , then we just have to love our bodies for sticking with us.
Right now, treating infection is the key. So is getting out any heavy metals as that can prevent nutrients from getting to nerve tissue, and further affect endocrine/stress processes.
Nutrition and adrenal support are vital elements of support.
This book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of STRESS on a person with such infections.
You can read customer reviews and look inside the book at this link to its page at Amazon.
The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005
by Russell Farris and Per Marin, MD, PhD
Remember that lyme really messes up the HPA axis (Hypothalamus/pituitary/adrenal network). The pituitary has much to do with weight/growth. Mess up any part of the endocrine system and other parts suffer, too.
. . . It seems likely that these bacterial species could serve as biological indicators of a developing overweight condition.
Of even greater interest, and the subject of future research, is the possibility that oral bacteria may participate in the pathology that leads to obesity. . . .
I always like to end on a proactive or positive note but I forgot about the weight comment. So, after the depressing (but ever so important) news that infection can cause weight gain, go back up to the supportive links for what can be done to help and that should give hope.