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» LymeNet Flash » Questions and Discussion » Medical Questions » Continuing steroids after allergic reaction to an unknown trigger

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Author Topic: Continuing steroids after allergic reaction to an unknown trigger
leadmare
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I don't post much, but am sitting between a rock and a hard place trying to decide on this.

I have Lyme, WA-1, Bartonella.
Right now I'm only taking Celexa, Amour Thyroid.
I have been in treatment for 5 years now.

Doing fair with the other symptoms.

I had been doing Deseret Lym, Detox 1 and the bartonella series drops. Only up to 5 drops of the Lym and Detox 1 and 1/2 bottle on the Bart series.

I had an allergic reaction...Hives, swelling, wheezing, throwing up, cold chills, drop in blood pressure (One reading was 83/29)finally collapsed and passed out.

There have been 3 of these episodes in the last 5 months. Each occurring between 3-4 in the morning(Luckily)waking me from sleep.

Each episode was quicker and worse with symptoms.
The one I had at 4am this morning earned me an ambulance ride to the ER for it's severity.

With great concern, I had to allow the steroid shot via the IV, and the also had to give me epinephrine and a nebulizer treatment.

I was in bad shape [dizzy]

Any way, they want me to continue with the prednisone to help keep this episode from reoccurring.

They RX'd 60mg day one, 50mg day two, and so on..

What are your opnions. I am scared of the use of prednisone, but I am terrified of what happened this morning happening again [confused]

I see my LLMD at 11 am tomorrow, but am supposed to start the prednisone early in the morning.

Oh, and if it help, yes the symptoms are trying to come back, but I'm trying to knock them back with just Benadryl.

Sorry, for such a long post

Posts: 58 | From Virginia | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
gwb
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Good thing you're seeing you're LLMD in the morning. Can you hold off taking the prednisone until you talk with him/her? Steroids nearly killed me last summer--seriously. I would wait to get your LLMD's advice before taking another dose.

Gary

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joysie
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In January, I did a 10 day course of prednisone because I had significant lumbar nerve issues. I was terrified to take them, but a few people pm'd me and assured me they had used steroids when absolutely necessary.

I have been in treatment a long time, was and still am on abx, and for me, the choice was correct.Unless I have yet to experience them, I have had no ill effects. Actually, the pain relief was so significant that it allowed me to exercise again for the first time in over a year.

Everyone has to work with their own LDs, but sometimes it can be the lesser of two evils.

Take care
Kris

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Dear Lead Mare,
I'm SO sorry you had such a scary night and even had to go to the ER! [Frown]

Apparently, you're one smart & strong little filly, or they would've kept you overnight in their noisy barn. SO nice to be in your own stall, isn't it?

Your LLMD appt is not far away now, and Ben has a drill to keep allergic reactions contained.

It's great that you're doing fairly well with other symptoms! [Smile] Wanna share?

These Lymie roads are bumpy but many here know wide short-cuts with few overhanging branches. You were wise to post. [group hug]

There are a few things you can do this evening to stay relaxed, calm, cool & collected. (Please don't sit btwn that rock & the hard place!) Decide what you CAN do.

Get up now and put on some fav old music from a few yrs ago that always gives you a touch of happy feet.

Brainstorm about your feel-good things. Would you like to page thru a mindless magazine? Sip some lukewarm chamomile tea? Think about the handsome neck of your favorite sire? Look out the window and daydream till the stars come out?

Maybe it's helpful to pick out a cool, comfy outfit for your trip to the LLMD tomorrow morning. Get that all laid out now.

Please don't keep your 'puter screen on too late. We want you to be well rested so your body can heal itself.

I have been harmed by cortisone shots in recent yrs, so I will avoid them like a virulent new co-inf since I've learned from Burrascano.

I will pray for you tonight. [kiss]
Sincerely,
Smile

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quote:
Originally posted by leadmare:
Each episode was quicker and worse with symptoms. The one I had at 4am this morning earned me an ambulance ride to the ER for it's severity. With great concern, I had to allow the steroid shot via the IV, and the also had to give me epinephrine and a nebulizer treatment.

I was in bad shape [dizzy]

Any way, they want me to continue with the prednisone to help keep this episode from reoccurring.

Lead Mare,
I re-read your post and would like to add that several good doctors I trust here have been encouraging me to "do whatever I have to do to stay out of the ER." I think that's very good advice.

I had a relative give me a hard time about pain meds I took for just two days. Meanwhile, those prescription meds (used at dosing even lower than Rx) helped me stablize. I recovered on my own and am doing well. Another ambulance ride averted!

YOU know your body best and what is required to help you arrive safely to meet your LLMD at 11 a.m. Trust your own inner wisdom.

Sweet dreams and a restful night,
Smile

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leadmare
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Smile, you made me smile [Wink] First 2 episodes handled at home no ER. I normally avoid it like the plague [Wink]

This morning ='d no choice, it was Life threatening. [Frown]

Both ER Docs were "Understanding" of my concern. The fact that I stated "I don't think this episode is Lyme related." a few times may have helped, I don't know.

One Doc said, she'd write the script and I could decide if I was going to take it depending on "How I felt later tonight or tomorrow."

Change of shifts and Doc #2 ended up writing the script and called it low dosing. [confused]

My brain is too scrambled to research "Low Dose."


Kris, it still scares the pants off me. Even the one shot this morning was taken with grief in my heart [Frown]

Gary, my thought was to wait and see what she says tomorrow. I'm just thinking about getting through the night [Roll Eyes]

Seems I'm taking Benadryl a lot. I am taking it about every three and a half hours,at the first signs of symptom return.

Does that seem too often?

Smile, I'll try and post some of my trip down Lyme lane in General tomorrow, it's another LOOOOOG trail ride, LOL! [Wink]

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MorningSong
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Leadmare,

My heart goes out to you. I dont have adequate wisdom to offer except to say I am praying for you.

Wishing the best to you and an answer to what you are going through.

Morningsong

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No saddle sores! You're much lighter after tossing your carrots & sugar cubes in the wee hours this a.m. You're now at perfect weight for the Long Trail Ride tomorrow a.m.

Appreciated reading your wise choice of words for ER staffers. Seems you achieved a good outcome already!

As for dosing Ben, it's my understanding that many otc meds have a bit of play in the schedule unlike many Rx meds. But i am not a healthcare professional.

We're bettin on YOU, Lead Mare! Hug the rail!

Sleep well. This blankie is the perfect weight, too...
Smile

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leadmare
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Update after LLMD visit.

She says we really need to do the prednisone as I am still reacting to something.

She did however lower the dose and length of time.

She also Rx'd an epipen and is running a bunch of tests to try and figure out what triggered the event.

Withholding all the rest of my suppliments and starting me on Histoxym and another anti-histamine.

BP is still 90/60.

I did wake up this morning at 7am feeling well rested for a change, but that faded by 10am and now, well, I'm exausted.

A lot of stuttering, and pretty swimmy in the head. Coughing up junk trying to clear out my lungs. UGH!

I just hope she/we can figure out the cause, because I surely don't wanna do that again!

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