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» LymeNet Flash » Questions and Discussion » Medical Questions » No Cipro-What else will work??

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Author Topic: No Cipro-What else will work??
Jane2904
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Daughter took Mino and Rifampin for about 10 months and improved. Not 100% but maybe 75-80%.

Dr stopped Rifampin and started Cipro.Hoping to make more progress.

Well, anxiety increased and many other weird feelings. Well after many phone calls the Dr. had us stop the Cipro.

She cannot take Zith, Cipro, already took Rifampin.

Cannot tolerate Doxy , can only tolerate 50mg 1x a day of Mino.

She seems to be sens. to many meds. Even Claritin, Melatonin, etc.

I have to call back end of the week. Just wondering what other Drugs people have used to treat Bart when unable to tolerate others.

It's not looking too good, any input is appreciated.

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seibertneurolyme
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Although they are in the same class of meds either levaquin or factive may be options. Or some people seem to think that bactrim DS works.

The combo that finally seems to be working for hubby is Mino, Zith, Factive and Rifampin. He is also taking some new herbs which seem to be doing something -- pau d'arco and arnica.

Personally I think there are some strains of bart or mycoplasma that require a combo of both rifampin and a fluroquinolone.

Here is a link to a list of meds and herbs that one LLMD suggests for bart.

http://tinyurl.com/35ldajy

See comments under the heading -- S.H. MD on Lyme Disease.

Bea Seibert

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Jane2904
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Thanks so much Bea.

Her Dr. will not do Levaquin.


Hope your Hubby does well on his current combo. [Smile]

Anyone else, Had more improvements on one more than another?

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aMomWithHope
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I don't have any suggestions unfortunately but am bringing this back up in the hopes that someone does!

{{{{HUGS}}}}

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tdtid
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I have to agree with Bea. Since your daughter is taking Cipro, there aren't a lot of medications for Bartonella.

Levaquin is in the same family as Cipro but you say your doctor won't use that one anyway.

Something I found that worked for me is that if you stick with the Rifampin but mix it with other meds, it seems to have different effects. Perhaps you could play around with combinations with the Rifampin that you do know she tolerates.

I hope that you can get her on the right track soon. Hugs to you both.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

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Jane2904
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Thanks Mom and Tdtd [Smile]
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txgirl09
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What about Bactrim? It also treats bart.
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TF
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My now famous lyme doc says Bactrim DS kills bart.
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Jane2904
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Thank you for all the replies. [Smile]
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Marrit
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Bactrim is a sulfa drug, and many people are allergic to sulfa drugs.
I couldn't take Bactrim, and I am sensitive to alot of meds like your daughter.
Perhaps if your doctor wants to try this one, have him only order two or three day's worth.
You'll know by then if she can tolerate it.
I reacted with the first dose ...

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jkmom
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What did the doctor suggest when you called him back? How is she doing now?
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Jane2904
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Well. looks like the replacement will be Bactrim.

Hopefully she will be able to tolerate this antibiotic.

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FunkOdyssey
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quote:
Originally posted by Marrit:
Bactrim is a sulfa drug, and many people are allergic to sulfa drugs.

If by many people you mean 3% of the population, then yes.
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nefferdun
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I am having a lot of improvement with Bactrim DS and either zithro, biaxin or roxythromycin (used all three).

I had a reaction to a sulfa drug when I was young so I was not sure I could take Bactrim but I read you can desensitize yourself to it by starting very slowly. I began with one eighth dose once a day and worked up with no problem.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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nevagiveup
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My daughter was on Zithromax & Bactrium DS for last 18 months and was tested negative for Bart since last 9 months. Recent blood work showed IgG 1:>256 for Bart and her cognitive, fatigue, irritatibility symptoms have also got aggravated in last 6 weeks.

Doctor swithed to Cipro 3 weeks ago and that gave her shoulder pains, itchy feeling and now he has reverted to Rifampin with Doxy (for lyme).... Hope fully that combo shud help her and i have heard positive experience from others too.

thanks

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littlebit27
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So how did the med switch go? Was your daughter able to tolerate it? Hope she is feeling better.

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http://littlebithaslyme.wordpress.com/

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Jane2904
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nevagiveup, Hope you daughter does well on Rifampin.

Our daughter improved on Rifampin.

Littebit, thanks for checking in. We were waiting for school to finish. So she will be starting the Bactrim this week. We plan to start on 1/2 the daily dosage to see how she does, before going up to full dose.

Thanks, Jane

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tickled1
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I didn't do well on Cipro but did well on Factive. Same family of drugs.
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