Topic: People here who are pretty much "cured" or haven't had symptoms for years..
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
How long did it take you to get to that point, and how long do you think you had Lyme for?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I got sick with the flu like symptoms and was sick for 2 weeks--fall of 07---figured it out with help
from here and other people who have had it. Been here working to help ever since. Finally getting
better. Stick with it--it can work but it is a long hard road.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Pinelady: It's so weird because I never had the flu-like symptoms etc..when my first symptom of tingling started. My last cold/flu was years prior but that was during a really bad flu season.
This disease is very "interesting"
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
I don't think I qualify as being anywhere near 'cured', but I got sick around late sept. (flu-like symptoms for about 6 weeks) started getting abx around december.
So its been 10 months and for the last 3 or 4 I've been functional (most of the time), my symptoms seem to be fading, I go to the gym and etc.
Conservatively speaking, I hope to be recovered by next spring or sooner ( I don't believe I will be suffering for life, or even for 'years' because my infection doesn't seem as bad as some and I think I caught it pretty quick). My new med combo has definitely made a difference.
I suspect infection around june or july of last year, but I'm not sure.
Posts: 41 | From astoria, new york | Registered: Feb 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Kirk, what is your new med combo? What are you treating?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I think I had lyme for 10 years prior to being diagnosed.
I treated for 3 years--2 years of lousy treatment and 1 year of great treatment.
It is now over 5 years since I completed my treatment and I am still symptom-free, enjoying my life--the same life I had before lyme disease.
I had lyme, babesiosis, and bartonella.
Posts: 9931 | From Maryland | Registered: Dec 2007
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
TF: if you have the time, would you mind listing what meds you were on during your 1 year of great treatment?
I know you followed Burrascano, but what combos of meds were you on and for how long?
Sorry for the request but I think it could help lots of us
thanks!!
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I've read it many times: Flagyl, Amoxicillin, Levaquin, Bactrim DS and Art I believe. Not all at the same time. I remember TF said her old LLMDs did nothing more than push all the Lyme into cyst form due to poor protocols and not following Dr. B's guidelines.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
42 years .. treated for 4 .. babesia and Lyme.
Took a lot of Biaxin and clindamycin/quinine. Also Ceftin, Doxy, zith and artemisnin, bactrim, minocycline...
and flagyl with anything that created cysts.
I know I'm leaving out many meds... but hey, it's been 5 1/2 yrs now!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96063 | From Texas | Registered: Feb 2001
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I like this tread.
Gives me hope. Been treating for 8 weeks and feel MUCH better. Did 6 weeks on Doxy/Flagyl and now 2 weeks on Biaxin / Amantadine.
Only remaining symptoms (most days): -Full feeling ears -mild tinnitus -very very mild calf muscle twitching -very mild eye floaters
I will beat this!! by this time next year I will be in remission / cured.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 80% +/- most days. Posts: 3130 | From Massachusetts | Registered: May 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I have a write-up of my treatment, but won't post it on the public board. Just send me a private message if you want it.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
To read stories about people who "are pretty much "cured" or haven't had symptoms for years", check out the Topic: Progress and Success Stories ... in the General Support forum at: http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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