LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Tindamax users?? Child- Update

 - UBBFriend: Email this page to someone!    
Author Topic: Tindamax users?? Child- Update
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

Icon 1 posted      Profile for Jane2904     Send New Private Message       Edit/Delete Post   Reply With Quote 
I understand that Tindamax can be tough. I have been reading past posts.

Our daughter just started Tindamax on Sunday 1x a day @ 125mg to start, then repeated on Monday.Only taking two days per week.

Wednesday and Thursday, had headache, some light headness and nausea.

Today still feels lightheaded and some head pain. I am looking for some input from Tindamax users.

I always start her meds. at low dose and work our way up.

Anyone else experience symptoms even at low dose. etc.

How did you feel when you began Tindamax, etc?

Thanks in advance for any input. This board is always so helpful and truly appreciate your reply.

She also began Bactrim about two weeks ago. So far only taking one tablet daily.

Today, Saturday, she is complaining of being dizzy very often. Also has mentioned some eye blurriness. Increased anxiety this past week too.

Would Tindamax cause these symptoms five days after last dose. I have a call into the Dr.

At this point not sure if it is the Tindamax she took last dose Monday, 7/5 or the Bactrim( started two weeks ago). Urh!!!

[ 07-10-2010, 07:37 PM: Message edited by: Jane2904 ]

Posts: 1357 | From Massachusetts | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
baileypup
LymeNet Contributor
Member # 22824

Icon 1 posted      Profile for baileypup     Send New Private Message       Edit/Delete Post   Reply With Quote 
I haven't had any negative effects from tindamax. It game me some improvement. Hope she does as well. It's so hard to have kids going through all this...
Posts: 964 | From san diego | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
mmcmann
LymeNet Contributor
Member # 21872

Icon 1 posted      Profile for mmcmann     Send New Private Message       Edit/Delete Post   Reply With Quote 
I pulsed Tindamax for approx 6 months for 1 week every month and every time that is exactly how I felt.

I had to step back on dosage at one point bc the head pressure was so bad.

I am sorry your daughter is going through this. Best of luck to you.

Posts: 104 | From No. VA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
My kids both take it on weekends. Neither one has mentioned feeling any differently. But then they never notice much of anything! Or mention it....so I'm not a good judge. But there were no outward, obvious changes when they started it.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
jkmom
LymeNet Contributor
Member # 14004

Icon 1 posted      Profile for jkmom     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter started Tindimax last Friday. She will take it for a week, then off for 2 weeks.

She hasn't mentioned any changes. I have noticed she seems happier and a little more active.

There was one day that I thought she was complaining about her head more than usual and her OCD flared up a little.

When I took Tindimax, I was lightheaded, my arm tingled, and my leg vibrated. I had never had those symptoms before. I also had more headaches than usual.

Posts: 984 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Deb133
LymeNet Contributor
Member # 18544

Icon 1 posted      Profile for Deb133     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jane,
I havent talked with you in a quite a while. My daughter pulses Tindamax 3x a week and she has had no side effects or herxing at all.

She has tolerated all her abx very well throughout this 20 month journey so far.

She is actually doing very well..best since her relapse in Sept..the only thing I can attribute it to is Artemisinin capsules which she started about 2 months ago.

Deb G

Posts: 499 | From Malta, NY | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

Icon 1 posted      Profile for Jane2904     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for all the response.

Anyone else have a tough start on Tindamax?

Glad to read that many have had positive results.

mmcmann-sorry it has caused problems. Hope you are doing better.

Deb- So glad to read your daughter is doing better. [Smile]

Posts: 1357 | From Massachusetts | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021

Icon 1 posted      Profile for Lauralyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
My experience on Tindimax was rough. I started on a high dose and tapered off to a lower dosage. I was on it for a month total.

However the hardship was worth it as I improved greatly afterwards.

--------------------
Fall down seven times, get up eight
~Japanese proverb

Posts: 1146 | From west coast | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Stacyb
LymeNet Contributor
Member # 13084

Icon 1 posted      Profile for Stacyb     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jane---

I PM'd you a reply [Smile]

Posts: 476 | From Columbus, Ohio | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
aMomWithHope
LymeNet Contributor
Member # 19255

Icon 1 posted      Profile for aMomWithHope     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey Jane,

How's your daughter handling the Tindamax and Bactrim?

Mine uses Tindamax 500 mg twice a day twice a week and hasn't experienced anything noticeable--no herxing nor improvement--not even sure it is really doing anything, which can also be frustrating.

I hope she experiences some relief soon!

Posts: 648 | From northeast | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

Icon 1 posted      Profile for Jane2904     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Everyone,
Thanks for all the replies.

Laura, glad you had improvement.

Mom, Hope you notice improvements soon.


I Have a call into the Dr. I think she may be herxing from the Bactrim too.

Posts: 1357 | From Massachusetts | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was afraid of my first dose of tindamax. Took it VERy carefully. The only herx I had was increased headache. It readily crosses the BBB. ALso, it has a much longer half life than flagyl so it does stay in the system longer.

HOpe that helps.

Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.