LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Succesful Bartonella Treatment Help Please-Terrible Foot Pain!

 - UBBFriend: Email this page to someone!    
Author Topic: Succesful Bartonella Treatment Help Please-Terrible Foot Pain!
Amelia
LymeNet Contributor
Member # 17677

Icon 1 posted      Profile for Amelia     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Everyone:

I am in a pickle. I can barely walk at this

point. My feet - particularly my soles and

arches hurt so bad. I cannot put any weight

on my feet and be comfortable. At the end

of the day I will get burning and worse pain.

I have to work so I have to be on my feet at

least some. I would like to know what

treatment protocols that have been followed that

got rid of Bartonella. I am 38 - soon to be

39 and need very much to be able to be

on my feet. Any help would be GREATLY

GREATLY appreciated. You all are such

inspirations here. Thank you...

Posts: 243 | From Charleston, SC | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
MamaBear11
LymeNet Contributor
Member # 25116

Icon 1 posted      Profile for MamaBear11   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Amelia. I am a newbie here myself, but have similar pain in my feet. I don't have an answer for you, but I hope someone here does.

When my foot pain is unbearable at the end of the day, sometimes it helps to soak them in icy cold water. Maybe it just numbs them so I don't feel the pain. Not sure if that is the right thing to do or if I am just shooting myself in the foot (so sorry...I just had to say it!)

I hope you find some relief! I'll be thinking about you.

--------------------
Untreated Lyme for 25+ years.
Two kids, too much pain & fatigue, no hope of ever being able to treat.

Posts: 310 | From Northeast | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
peacemama
LymeNet Contributor
Member # 17666

Icon 1 posted      Profile for peacemama     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had great results from the deseret biologicals, "Bartonella Remedy". Foot pain was gone in the first week. It's only been less than 2 months. . so I don't know how long it will be gone for, but I'm hopeful.
Posts: 564 | From Tick Hell | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have had shin pain from bart but not foot pain.
I take Bactrim DS and zithromax, pulsing tindamax two days a week. Tindamax is supposed to kill the cyst form of lyme but it seems to boost the effects of the bart drugs too. When I first started it I had a lot of aching on those days - herxing. I have had a lot of improvment. I also take the supplements, cysteine, nattokinase and lactoferrin for the bio film.

Don't rely on herbs alone to cure bart. It just won't work.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Foot pain is usually related to Bart, there are countless strains of Bart - or BLO's.

Also, might be a Lyme symptom if you have treated all BLO's successfully.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
blinkie
Frequent Contributor (1K+ posts)
Member # 14470

Icon 1 posted      Profile for blinkie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't think bart is the only thing that causes foot pain. I treated bart with IV levaquin and rifampin for three months. My foot pain never went away.

I recently did two weeks of a radical malaria treatment (chloroquine/primaquine) and my foot pain is now gone! LLMD thinks I have/had a protozoal infection that responded to the treatment. No telling what it was though.

Posts: 1104 | From N.California | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got rid of bart with 30 days of Levaquin.

After the Levaquin, I took Bactrim DS which hits babs and bart also.

Burrascano says the treatment of choice for bart is Levaquin (levofloxacin, generic name):

"The drug of choice to treat BLO is levofloxacin. Levofloxacin is usually never used for Lyme or Babesia, so many patients who have tick-borne diseases, and who have been treated for them but remain ill, may in fact be infected with BLO. Treatment consist of 500 mg daily (may be adjusted based on body weight) for at least one month. Treat for three months or longer in the more ill patient. It has been suggested that levofloxacin may be more effective in treating this infection if a proton pump inhibitor is added in standard doses.

Another subtlety is that certain antibiotic combinations seem to inhibit the action of levofloxacin, while others seem to be neutral. I advise against using an erythromycin-like drug, as clinically such patients do poorly. On the other hand, combinations with cephalosporins, penicillins and tetracyclines are okay. Alternatives to levofloxacin include rifampin, gentamicin and possibly streptomycin. A very recent article suggests that prior use of quinine-like drugs including atovaquone (Mepron, Malarone) may render Levaquin less effective.

Therefore, in a co-infected patient, treat the BLO before you address Babesia species.

Levofloxacin is generally well tolerated, with almost no stomach upset. Very rarely, it can cause confusion- this is temporary (clears in a few days) and may be relieved by lowering the dose.

There is, however, one side effect that would require it to be stopped- it may cause a painful tendonitis, usually of the largest tendons. If this happens, then the levofloxacin must be stopped or tendon rupture may occur. It has been suggested that loading the patient with magnesium may prevent this problem, and if the tendons do become affected, parenteral high dose vitamin C (plus parenteral magnesium) may afford rapid relief." (pages 24-25)

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Amelia
LymeNet Contributor
Member # 17677

Icon 1 posted      Profile for Amelia     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all for your time and help here.

You have provided me with a light in

much darkness. I am going on two years of

being diagnosed and treated and honestly,

until now, I have handled everything well.

I think when you take someones ability

to walk away... and essentially provide

for yourself, dark days are part of the process.

You all are inspirations and I will keep

marching (with any fortune!) on... Any other

successful treatments would be greatly

appreciated!

Thank you again!

Posts: 243 | From Charleston, SC | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
peacemama
LymeNet Contributor
Member # 17666

Icon 1 posted      Profile for peacemama     Send New Private Message       Edit/Delete Post   Reply With Quote 
Foot pain and burning can also be from an overfull lymph system, IME.
Posts: 564 | From Tick Hell | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Amelia
LymeNet Contributor
Member # 17677

Icon 1 posted      Profile for Amelia     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for this too Peacemama...
Posts: 243 | From Charleston, SC | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

Icon 1 posted      Profile for janet thomas     Send New Private Message       Edit/Delete Post   Reply With Quote 
I, like blinkie, think my foot pain is from Babs. I don't have it in the am then it gets worse as the day passes. When I did chloroquine/primaquine the foot (and knee and back) pain was gone. But I relapsed. Now I wish I had taken primaquine once a week.

--------------------
I am not a doctor and this is not medical advice but only my personal experience and opinion.

Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
tick battler
Frequent Contributor (1K+ posts)
Member # 21113

Icon 1 posted      Profile for tick battler     Send New Private Message       Edit/Delete Post   Reply With Quote 
Amelia,

What protocols have you taken over the past 2 years? I have found that Rifampin helped to of my children immensely, but did not get rid of the bartonella completely, even after being on it for over 6 months. They are now taking Samento and Cumanda from Nutramedix and their remaining bart symtoms are going away from these herbal products. I would highly recommend adding them to your abx protocol, if you can get approval from your LLMD.

First you might try Rifampin to see what happens, as I feel it is a very effective bart abx. Of course, as TF mentioned above, Levaquin is also highly recommended for bart, probably even more than rifampin.

tickbattler

Posts: 1763 | From Malvern, PA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
For symptom relief -- you could try rubbing bee venom ointment on the bottoms of your feet. You can get it from

http://www.dancingbeeacres.com

Hubby found this helpful in the past. One tube will last a long time.

I don't think it kills the bart, but do think it could chase the bacteria to another location.

Hubby has recently been using a topical ointment on his elbow. The formula has many ingredients. But be careful with this as it may stain your clothes. Actually anything with menthol or camphor may cause bacteria to move to another area of the body. The product he has used is called -- Salve, Rub Away Topical Analgesic

http://www.purrfectlyherbal.com

A third option would be to use esential oils -- there is a thread here on LymeNet listing the formula from Farah (an old LymeNet member). here is the link.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/73385

I have no financial interest in any of these products. They are things that hubby has found beneficial.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Amelia
LymeNet Contributor
Member # 17677

Icon 1 posted      Profile for Amelia     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi ladies: Thank you very much all of you... it is

interesting to think this could be Babs as my foot

pain gets worse as the day goes on. And, when I

was treated for Babs, I didn't have it. That is

very interesting. This is something else. I will

be discussing all of this with my doc. I greatly

appreciate all of your help and suggestions. I

have honestly not known where to go with any of

this. Thank you... Thank you...

Tick Battler- I have been on pulse for lyme,

then for Babs and most recently for lyme and

bart. I think there is no doubt this is

either babs rearing its head or bart. I have

the skin markings of bart for sure and was

diagnosed as having all three- Babs, Bart and Lyme.

Posts: 243 | From Charleston, SC | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.