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» LymeNet Flash » Questions and Discussion » Medical Questions » Low Dose Naltrexone

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Author Topic: Low Dose Naltrexone
steelbone
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Hi All

Just wondering what everyone experience is with Low Dose Naltrexone.

Earthing


Thanks All

[ 03-23-2012, 09:30 PM: Message edited by: steelbone ]

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

Posts: 964 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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Love it. On 4.5 mg. Brought my libido back. No other side effects, but I feel pretty GOOD.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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karenl
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steelbone,
I am just thinking about starting and wanted to ask you for a pm about the doctor.
I would need it for energy.

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Lymeorsomething
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bcb1200, I need my libido back [Smile]

Are you male or female? I've been holding off on the LDN. Does it boost energy for anyone?

--------------------
"Whatever can go wrong will go wrong."

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Robin123
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I spoke with Dr Bihari in NYC who was working with it. He said it works for half of Lyme patients. So all you can do is try and see if you're in that half!
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bcb1200
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35 yo male. LDN isn't about boosting energy. It is about boosting your immune system. check out lowdosenaltrexone.org

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
TS96
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Been on it for about a month. Started on 2mg. ramped up to 4mg. Made me really tired the first couple weeks. Don't notice anything else yet.

Given to boost my immune system.

--------------------
Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

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baileypup
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I really like it, and feel it has boosted my immune system.

I was worried about the loss of sleep intitially, and the vivid dreams, but never had any of that.

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steelbone
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Is this something u have to stay on forever?

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

Posts: 964 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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no, but it doesn't hurt if you do. There are literally no / very very minimal side effects.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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D Bergy
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I take LDN for Crohn's, so in my case, it is probably forever unless I could cure it somehow. This is normally the case for any autoimmune type disease in which LDN is used as a treatment.

For Lyme it is likely just used until you have eliminated the bacteria, if you can accomplish that. Since it is the Lyme that is suppressing the immune function, it is not needed once it is gone.

Some people take LDN as a Cancer preventative, especially if the family history indicates a strong likely hood of them developing Cancer at some point.

Dan

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bcb1200
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I should report that I do have more "colorful" dreams while on LDN. I have not had insomnia.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

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DeniseNM
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I really like it. Was on it, up to 3 mg/day, feeling much more like "me" and energetic, less cognitive crap, then i ran out of $$ and had to quit.

Now I'm back on it, up to 2 mg/day, and am noticing the same positive effects. I do have some pretty weird dreams; I woke myself up laughing and talking the other night! Nothing horrid, though.

--------------------
dx: MS in 1998
2007 - Lyme suspected
2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS
gall bladder out 7/09
Ceftin, Zith, Septra
LDN
Acyclovir
Monolaurin, DHEA, Pregnonelon, Curcumin

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TnFlowerChild
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I started about a month ago at 3 mg - did notice my sleep was disturbed for the first few days - but that settled down.

I feel like we may raise it to the 4.5mg when I see the LLMD next week.

From my reading, it is very good for immune function, and studies in CA have said "helps Fibromyalgia pain."

Other than sleep issues (minor) there doesn't seem to be other negative side effects - very positive!

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Lymeorsomething
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So I'm assuming that if it boosts immune function it may cause herxing.

When I've tried other immune modulators I herxed like a son of a bee...

--------------------
"Whatever can go wrong will go wrong."

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Hoosiers51
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Yes, some people get horrible herxes when they start LDN. That seems to happen to only a minority though. But it can happen. So be ready, especially with your past experiences, lymeorsomething.

For me, I didn't herx right when I started it (started at around 4 mg too), but I herxed once I was on it, then changed to a new antibiotic. That is when I noticed I was herxing more, probably from the combo of the antibiotic and my immune system finally working.

But the herxes were not horrendous. They only lasted like 5 days, like you think of the "classic" Lyme herx.

I had never been a classic herx-er before, so I was impressed.

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Lymeorsomething
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Has everyone taken LDN along side their regular abx without issue?

--------------------
"Whatever can go wrong will go wrong."

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Hoosiers51
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That is what I do, take it alongside all my antibiotics....it hasn't been a problem at all.

And to whoever said they had to stop due to cost...where I"m getting mine from now, it's about $32 a month, out of pocket. If you want the name of the pharmacy, PM me.

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Lymeorsomething
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Thanks Hoosiers. I have about a 3 mo. supply from a previous LLMD. I never used it but I'm about to give it a shot.

Yes, you're right about the price too. It's not really expensive if one needs to get their own supply.

--------------------
"Whatever can go wrong will go wrong."

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baileypup
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In case anyone wants to know where they can order LDN.

I order mine from Gideon's Pharmacy in NY. It doesn't go through insurance, and the cost is $15 plus $7 shipping. You can order more than one month at a time.

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keltyl
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I only pay a $10 co-pay. My compounding pharmacy is now submitting it straight to the ins co. When I did, they usually would only pay 1/2.

I just went up to 3 mg (chicken). I started last year and quit due to sleep issues. Gave it a shot again. Not sure if it's helping or not, but the sleep issues resolved after a few weeks, and really have no side effects.

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Lymeorsomething
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For those who respond to LDN, when are benefits felt? Are they immediate or does it take some time?

--------------------
"Whatever can go wrong will go wrong."

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baileypup
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I felt the results after a week or so; have more energy and general well being.

It reminded me of the boost I get from Vitamin D.

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keltyl
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I never get a boost from anything, so just keep taking it, hoping it's doing some good.
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Lymeorsomething
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Keltyl, I hear you. Not too much gives me a boost either. Just started LDN at 4.5 mgs. I'll give it a fair chance and report back.

--------------------
"Whatever can go wrong will go wrong."

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lr26
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Hi,

I have been on LDN for about 4 1/2 mo. now. At first I had a sence of well being. I didn't feel depressed before LDN, but felt happyer right after I started it. My LLMD had me start at 1.5 mg for the first mo and 3 mg the second mo. and 4.5 on the 3rd mo.

It seemed to be helping. I started night sweats and someone told me maybe babs waking up from my improved immune system. Now I am on Mepron, Aztromicin. I am on mo 2 of mepron and am just starting to feel alittle better. So it is hard to tell if the LDN is working. I was herxing from the mepron.

Someone told me that you will really start feeling good after 4 mo.

I will continue to take LDN, I believe it will help me.

lr26

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D Bergy
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LDN does not work quickly, as it works differently than most other drugs. It just makes the immune system more effective, and that takes time to show up in the form of results or feeling better.

The normal time frame to assess results is six months at least.

Dan

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