LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Has anyone else used Cholestramine

 - UBBFriend: Email this page to someone!    
Author Topic: Has anyone else used Cholestramine
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am on Cholestramine 4 times a day. It is suppose to bind with the neurotoxins in my brain and then release thru my digestive system. I've used up one can and am now I'm on my 2nd. My Dr. warned my about herx- like symptoms, but so far the only side affect I'm having is insomnia, which I will hope go away soon.This is a recommended Detox treatment. Has anyone else had any experience with it...any good results? I'm trying it because my neuro lyme is very bad. I also do Hot yoga, and colonics for detox.
Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
I didn't know it came in a can. Mine is in packages.

I love it. But I only take it every 3 days. Hope it gets rid of all this excess baggage I now pack around too....

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
minerva
LymeNet Contributor
Member # 20410

Icon 1 posted      Profile for minerva     Send New Private Message       Edit/Delete Post   Reply With Quote 
i took it for several months. i had increased problems with constipation but nothing else.

since, i didn't see any help i let it go. my doc prescribed it for mold.

now that we know about the lyme i am back on it while taking the buhner herbs.

i am taking the pill form. Welchol. my biggest problem is taking it away from all the other things i am taking. so, i take it only once a day which is not as helpful.

while i don't "see" any results i believe its important for the neurotoxins so i keep taking it when i can fit it in.

Posts: 161 | From sonoma county | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
jasek,

Cholestyramine can pull out needed magnesium. Supplementing with magnesium - away from the cholestyramine (and on the days off from that) is very important. One aspect of magnesium deficiency is insomnia.

minerva,

Magnesium depletion can result in constipation.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lemon Water for me : )

Oh and Sarsaparilla and Dandelion Root

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Keebler how much mag. a day?
Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Pinelady, Why do you love it? What does it help you with? Keebler I tkae 400Mg. og Magneseum a day, is that enough? Do the side effects ever go away?


do

Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
It makes me feel better all around.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
karenl
Frequent Contributor (1K+ posts)
Member # 17753

Icon 1 posted      Profile for karenl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on cholestyramine 3 times 6 tablets after a bad exposure to mold and toxins.
Now I take one 600 mg capsule a day for maintenance at night.
I take it together with my magnesium cream.
Keebler thanks for the info.Do I have to take the cream away from the cholestyramine? But the cream is on the skin, mainly legs.

Posts: 1834 | From US | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021

Icon 1 posted      Profile for Lauralyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had great results with it clearing my brain but gave me severe constipation and abdominal pain (even with supplementing high doses of magnesium)
I have had to stop for the moment. Once things normalise I will go back on it in lighter doses as I definitely see the benefits.

--------------------
Fall down seven times, get up eight
~Japanese proverb

Posts: 1146 | From west coast | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
That is what I am looking for, clearing my brain.I'm feeling very positive about this. I've never heard of magnesium cream, still wondering if I should up my mag. or if 400 mg is enough...Keebler? My Dr. said I may be on it for up to 2-3 mo. I don't care if it helps and with this good feedback I feel I'm on the right path.
Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
lymeout
LymeNet Contributor
Member # 8045

Icon 1 posted      Profile for lymeout     Send New Private Message       Edit/Delete Post   Reply With Quote 
Cholestyramine was the most effective detox protocol my daughter has ever had. She became pretty much symptom-free; but once she stopped, the symptoms slowly returned as toxins once again accumulated.

I can't get her to try it again because it is such a difficult protocol to work in with all other meds. She did not have the same results when she cut down the doses. Pinelady, I would love to hear how you dose it.

We know one young man who has the mold susceptibility, who
who takes it every time he gets hit with mold or a lyme flare, and it keeps him functioning.

Posts: 422 | From Herndon, Virginia | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree about trying to time all the meds. My Dr. said I can eat and take meds 1/2 hr. after taking the Chol. I am never able to keep it on a regular schedule. Sometimes it's 3 hr., sometimes it's 6 hrs. apart. Sometimes I eat 1/2 hr. before taking it. Since it take it ev. day 4 times how far apart should my magnesium be taken from the night doesage?
Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
keltyl
LymeNet Contributor
Member # 14050

Icon 1 posted      Profile for keltyl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on it 1x a day for awhile and felt worse. My LD had me stop for awhile.

If you take any meds or supps, I don't see how you can fit it in. I was told not to take it at least 2hrs after taking meds,supps, or eating????

Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mine comes in individual packages and you mix with liquid. I do 2pks @ noon.

Up at 6 for am meds/ noon / pm meds.

I don't worry so much about working around food, but I don't want to pull meds out, so I just do the best I can.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
jasek
LymeNet Contributor
Member # 12395

Icon 1 posted      Profile for jasek     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just called my Dr. and that is exactly what his nurse said.
Posts: 161 | From midwest | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
keltyl
LymeNet Contributor
Member # 14050

Icon 1 posted      Profile for keltyl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Pinelady....You do 2 packets at one time?
Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693

Icon 1 posted      Profile for Dawn in VA     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just started it about a week+ ago, and am ramping today up to a full scoop. The only issue I've having is juggling supplements and meds around it (nothing 1 hour before, nothing 4 hours after). I've not noticed any bad side effects so far.

--------------------
(The ole disclaimer: I'm not a doctor.)

Posts: 1349 | From VA | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
The box says one or two.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
CD57
Frequent Contributor (1K+ posts)
Member # 11749

Icon 1 posted      Profile for CD57     Send New Private Message       Edit/Delete Post   Reply With Quote 
can you get this compounded without all the crap in it?
what are the doses people are taking?

Posts: 3528 | From US | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
keltyl
LymeNet Contributor
Member # 14050

Icon 1 posted      Profile for keltyl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mine come in single serve packets, really doesn't say.

Mine contains some sucrose, but not artificial sweetner. I've heard you can get it compounded.

Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
jalama
Member
Member # 14600

Icon 1 posted      Profile for jalama     Send New Private Message       Edit/Delete Post   Reply With Quote 
I spoke to a pharmacy and they said there is a generic kind that comes in a tub and is sugar free. The said have your doctor write the prescription for "sugar free" cholestyramine. I spoke to Pierce Apothecary.

I have used the cholestyramine that comes in the packets but I don't like that it has sugar in it. I can't tell if it helps. I've never taken more than 1 per day.

Posts: 87 | From NorCal | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021

Icon 1 posted      Profile for Lauralyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
"sugar free" might mean with aspartame.....which would be worse.

--------------------
Fall down seven times, get up eight
~Japanese proverb

Posts: 1146 | From west coast | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

Icon 1 posted      Profile for ukcarry     Send New Private Message       Edit/Delete Post   Reply With Quote 
Indeed, the sugar-free version DOES contain aspartame.

However, in USA you can get it au naturel from a compounding I was told.

Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.