LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Chances she has lyme?

 - UBBFriend: Email this page to someone!    
Author Topic: Chances she has lyme?
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I have a friend who has had a host of sx for the past several months--everything from debilitating fatigue to pain in her joints to extreme sensitivity to sunlight, and I forget what else.

Some of my lyme friends and I, who all see the same LLMD, urged her to make an appt. with him, and she had started the ball rolling.

However, she continued to see her GP and an Infectious Disease Ducktor. Now her dx came in as Chronic Fatigue Syndrome, Fibromyalgia and Osteoarthritis in her hands. She also has borderline lupus measurements, so that isn't ruled out just yet.

We have tried telling her that these diagnoses are often copouts when the docs don't really know what to think.

I know everyone has to make their own decisions, but geez, isn't there anything I can say to get her to consider the possibility of lyme?

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
The Canadian Lyme Foundation has a good list of symptoms.
http://www.canlyme.com/patsymptoms.html

Posts: 6943 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
dmc
Frequent Contributor (1K+ posts)
Member # 5102

Icon 1 posted      Profile for dmc     Send New Private Message       Edit/Delete Post   Reply With Quote 
Download & print the green booklet from http://lympa.org

Hand it to her. Page 12 has the "diseases" lyme is misdiagnosed as.

Oh wow, go figure ..the booklet is produced by the LDA of Southeastern Pennsylvania

Think that will convince her??!!

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
Somehow I doubt it. We've been through all the discussions and literature with her, but she just is grasping onto what these ID docs are telling her. Since she's feeling somewhat better onthe treatments they've started, she doesn't feel the need to investigate further.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had those same symptoms as part of my Lyme Disease. My LLMD diagnosed me with fibromyalgia (yes, he knew it was from Lyme, he wanted to prescribe Lyrica).

Just plant seeds. Don't try to talk her into it .... just say things like, "Have you ever considered WHY you have these symptoms? These syndromes with no known cause? There has to be a reason. All those other doctors are doing is treating symptoms but not the cause. Without treating the cause, you'll get worse."

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
gatorade girl
LymeNet Contributor
Member # 24896

Icon 1 posted      Profile for gatorade girl   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wish someone had said it to me. I was on years and years of immunosuppressant drugs and barbaric tests. All could of been avoided. It is now harder to undo all the damage.

--------------------
gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".

Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.