Can't answer your question for sure because I have only been off antibiotics for a couple of years. I had severe cognitive difficulties which cleared, for the most part, with treatment. My LLMD told me that all the patients who relapsed were the ones who stopped doing what's necessary for continued immune support-like taking certain supplements and living a healthy lifestyle, good sleep, bit of exercising, etc.
Posts: 365 | From Sylvania | Registered: Aug 2008
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Reading your post about going to the wrong doctor's appt. broke my heart.
I have been there and what a horrible feeling.
I get in my car to go to the Doctor and honestly cannot remember how to get there, even when I have been there many, many times.
Being in the elevator sends me in to a panic attack. I take the stairs, as much as it hurts when I can.
My EEG and MRI were normal also. I see my GP this morning and I have written in my notes what you suggested I ask her about my MRI and who read it and what they were looking for. Hopefully, I will remember this. I also have the pages you suggested I print to give her from ILADS site.
Still think of you each and every day. I said I wasn't going to post for awhile because everything is coming out wrong.
I certainly do not mean to come across as being sarcastic in any way.
God Bless You. I hope things get better.
-------------------- Sick and Tired of Being Sick and Tired!! Posts: 153 | From St. Louis, Missouri | Registered: Jun 2010
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Remember to Smile
Dear Consuela, You're a sweetheart! Thanks for all your kind thoughts & words...
After being REFUSED abx treatment for decades after bullseye EM rash, Lyme neuroborreliosis basically gave me "brain damage" (some autistic traits & Alzheimer's symptoms) by 2010. Scary! But as my brain is clearing, i can laugh about some things. Gives me lots of new insights on people I've known with "autism" and "Alzheimer's" labels. (Both are primarily caused by LD & co's, you know.)
Not sure if i'm getting fewer panics, or just staying home much more. Probably the latter.
Stairs are too tough on my knees so I avoid them. Lookin' forward to the years ahead when i can run up & down steps for exercise again...
Escalators are scary! So hard to judge when it's safe to get on, and i have perception problems trying to see the edges of the steps, too. Major tripping hazard! (Escalators should be painted bright lyme green instead of caution yellow. )
There are two technical terms for getting lost in familiar settings: topographical disorientation or environmental agnosia. I want those symptoms gone! The late & great Dr. Bleiweiss of NJ (RIP) wrote about this in his excellent, comprehensive 1994 essay: