I am very curious as to what lab tested for the anti-neuronal antibodies? Very few docs including most LLMD's would not even think to test for this.
In my opinion your daughter's test results most likely indicate an infectious organism that is attacking her nervous system. Also it is obviously affecting either digestion or the gallbladder as well to cause the high triglycerides or she has possible issues with glucose metabolism.
Is the leukocyte esterase a blood test or from a urinalysis -- if from the urine indicates a possible bladder or kidney infection.
I personally would try IV antibiotics first before resorting to IV IgG -- which is extrememly expensive and would only be covered by insurance if her bloodwork shows deficiency in immune subclasses.
This is not medical advice. Just my opinion based on hubby's experiences.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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My daughter too has a high Alk Phos, her LLMD (Dr J) said this was actually normal in children due to bone growth and not to worry. WIth the liver you need to watch AST/ALT for kids.
My understanding is with the auto immune responses...anti neuronal antibodies, they are usually reversible with proper Bb treatment. IVIG could be beneficial, esp if insurance is willing to pay.
As far as risk, I was under the impression it is given under medical supervision (hospital setting) in the case of a severe reaction. Personally, I am not sure of the risk/benefit of IVIG treatment and would think you may want to discuss that with your LLMD. HOwever, if her symptoms are severe, it may be worth it.
Also, with severe neuro symptoms, which I have, IV ABX has made a huge differnece for me.