LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Need advice

 - UBBFriend: Email this page to someone!    
Author Topic: Need advice
smckibben
Member
Member # 27878

Icon 1 posted      Profile for smckibben     Send New Private Message       Edit/Delete Post   Reply With Quote 
My illness started in March 2010 with being diagnosed as Mastitis. I had red streaks, then a rash, pain, and was very sick. I went to the ER and was told I had Mastitis, given antibiotics and sent home. Two days later, it was worse so I went back to the ER. This time they gave me IV antibiotics for a couple of hrs. and sent home with oral antibiotics. I seemed to be getting better and then started having pain in my arms, hands, and legs. I went to a pain specialist who did a lot of bloodwork and it came back with Lyme Disease. Amost 6 mos later with daily doses of Doxy, Methyl B-12 injections, antidepressants, and darvocet, I'm no better than I was. My pain specialist has had formal training in treating Lyme. What now? I'm going crazy with pain.
Posts: 18 | From Indiana | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is your dosage of doxy?? Any chance your dr can switch to another med just to see if you begin improving?

Have you been checked for possible coinfections??

Sorry your post got buried down there at the bottom. If that happens again, just reply to your own thread and it will bring it to the top again.

Dr. B's Guidelines
http://www.ilads.org/files/burrascano_0905.pdf
http://www.ilads.org/burrascano_1102.htm

The cause and spread of Lyme
http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

It's Lyme Time You Knew
http://flash.lymenet.org/ubb/Forum1/HTML/008359.html

When to Suspect Lyme Disease
http://tinyurl.com/lx2pz

More info:
http://www.ILADS.org/

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html


 -

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95737 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
skigal
LymeNet Contributor
Member # 7443

Icon 1 posted      Profile for skigal     Send New Private Message       Edit/Delete Post   Reply With Quote 
You mentioned Red Streaks, please get checked for Bartonella co-infection. You'll need more than just Doxy.
Posts: 269 | From VA | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835

Icon 1 posted      Profile for Tammy N.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just a few thoughts--
I would make sure your doctor is ILADS trained (international Lyme and Associated Diseases society.) Otherwise you are NOT getting the best care, and the doctor is probably not truly Lyme Literate. this makes ALL THE DIFFERENCE. Plus, they will know which co-infections to check for and how to treat. Without the whole picture, getting well stays out of reach.

If you can, get rid of the Darvocet. Very toxic for your system. Toxicity adds more pain and burden to your body.

If antidepressants are not really helping, maybe try to wean off those as well. There are pros and cons to everything, but worth considering. I think the less meds the better. You will be on plenty for Lyme and cos as it is.

And don't forget a clean diet!! Of supreme importance!!

Good luck! Tammy

Posts: 2238 | From East Coast | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
SEEKING A DOCTOR

http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/2?

You may post here to ask for help in finding a Lyme specialist.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95737 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes you need a LLMD.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
up for kibben

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95737 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.