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» LymeNet Flash » Questions and Discussion » Medical Questions » Babesia herx? What is going on with me?

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Author Topic: Babesia herx? What is going on with me?
daniel
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hey folks,

i need your help.. plz......

2 weeks ago i started my new babesia protocol (before it i only was on bactrim and artemisin).. first i took some malarone to test if im allergic to atovaquone.. i wasnt so i bought a bottle of the yellow paint.
im takin azi and arte with the mepron (1500mg/day)
.. since tuesday im depressed and very fatigued... my brain fog is worse too... but today was such a WORSE day.. i hadn't such a bad day long time:

- i feel totaly out of power
- my brain is a wreck.. i can HARDLY HARDLY think.. it wasnt that bad a long time
- depressed
- my muscles hurting.. my bones hurting..
- headaches
- difficulties to breath normal..
- no appetite at all
- stomach burning sometimes
- stinky sweating (through day)

im on day 9 of mepron+azi+arte

could this be a babesia herx?? the first week was totally ok when i took the mepron or malarone.. i felt not SUPER but it was ok... when will it be over?? its HELL on earth.... i had the same in week 2-3 when i took some clindamycine and quinine.. i felt very bad.. so i made a break.. i dont want the bugs to win against me.. so i dont want to make a break with the mepron... i will win this battle but its so tough..

[Frown]

Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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YES!!!! Read this!!

Mepron Blues
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/89042?

Do be careful not to overdo it!!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
GNBRETT
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Yea that's common. I took Mepron/Zith myself for 4 months and am 100% healed. That was two years ago.

Was also on PICC line for 6 months.

It will get better. In fact, most rid all their Basesia symptoms within 3 months. Some dont but MOST do.

It's a parasite that affects 1% of ur blood. It can and most often is erradicated.

Sux at first and makes u wanna crawl under a rock and die but that is common and will get better.

Make sure ur taken a quality probiotic. If not ur stomach will hurt and u wont beable to eat for chit.

GL

Posts: 59 | From CONNECTICUT | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Babesia herxes are tough!! Sounds like a herx to me. Hang in there!!

--------------------
sixgoofykids.blogspot.com

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Fordace
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6
8
15
21
30

Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
daniel
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i forgot to say... im taking probiotics twice daily.. (very good probiotics.. cost 100 euro a months.. )
i had diarhea 2 times since i started the mepron.. but only 1-2 days.. after 1-2 days it was gone.. maybe a flu or something i dont know..

big thanks 4 your responses.. i will hang in there and fight against this nasty bug..

Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Maradona
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Hang in there it is babesia i hade same thing.First week is tough then you will feel beter.
Are you taking azithro 1500 ore artemisinin ore both of them 1500mg that looks to me high dose.

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Lymetoo
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Fordace... are you OK?

--------------------
--Lymetutu--
Opinions, not medical advice!

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daniel
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im taking 750mg-1000mg azi + 2x 500mg arte + 2x 750mg mepron daily... im pulsing the azi 4 days on, 3 days off, when i have ma 3 day break of azi im taking arte 4 days (so 1 day overlap with azi and arte).. goin to my doc tomorrow and get a check up
Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
marypart
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quote:
It will get better. In fact, most rid all their Basesia symptoms within 3 months. Some dont but MOST do.

Doesn't it depend on the kind of Babesia? My son has Babesia Duncani (also called WA1) and I keep hearing that it is the worst kind.

Has anybody gotten well from it? He's on Lariam.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

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Consuelachacha
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Hang in there Daniel!! [group hug]

--------------------
Sick and Tired of Being Sick and Tired!!

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TF
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Daniel, regarding your diarrhea, my lyme doctor gives a hand-out to all his patients regarding the various lyme meds.

Here is part of what it says about Mepron:

"It is ALWAYS taken with a fatty meal (e.g. nuts, cheese, butter, etc.) because it will not be properly absorbed unless taken with a fatty meal. (Diarrhea after Mepron is an indication that not enough fat was ingested.)"

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Maradona
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I think the dose of Azith.is high unless you are more than 150kg.
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zil
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I would just like to ask the group with this kind of a herx would you back off that dose of meds for a while or even stop the mepron? That would be what I would want to do but don't know if it would be a big step backward.
Posts: 383 | From Ar | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Annelet
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Daniel said at the beginning of this thread that his muscles and bones hurt.

Is bone pain a common part of Babesia herx?

I am on Mepron and Azithromycin. I have new pain in my lower legs and top of my feet....sort of above and below my ankles. Plus all day headache, feeling as if I am overheated all the time.

I was beginning to wonder if the bone pain was Bart, but it could be the babesia herx, could it?

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daniel
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it could be babesia i think, like when u have a flu.

im pulsing the azi thats why im taking 750-1000mg...

@zil 6 weeks ago i took clinda and quinine.. i had a major herx in week 3... made a 2 day break.. after that breat.. the clinda and qunine wasnt that effective like it was on the beginning before the break.. so i wouldnt back off anymore when u herx.. do some bloodwork .. if all things are fine.. keep going on.

@tf yeah i know the thing with the fat.. i always take the mepron with 20-30 grams of fat.. usually good oil (cold pressed)

Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
nefferdun
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Annelet, that is the type of pain I have with bart.

Hope this works for you daniel.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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mmcmann
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I had excruciating nerve pain with Babs herx. I seriosuly never felt anything like it.

I ended up having to take vicodin..it was the only thing that dulled some of the pain [Frown]
It lasted four days.

My LLMD had me stop Mepron. I haven't been back on yet, but because I switched docs.

Hang in there and good luck.

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jalama
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I just started Mepron a week ago (I was on Malarone 2x per day for two months prior with not improvement). I think I may be experiencing the first thing that I recognize as a herx which means that I actually may have Babesia after all:

--I have cried every day since starting Mepron
--I feel achey like I have the flu
--I feel extra exhausted
--I feel extra depressed
--I feel like I want to crawl out of my skin
--My arms feel kind of hot and

I notice that I smell my sweat but I've never noticed excessive night sweats. I've questioned whether I have Babesia because I haven't had pain or chills (until today, I feel a little cold). I haven't had the usual symptoms. No shooting pains. I have had nightmares and vivid dreams.

Does this sound like a Babesia herx?

Thank you!

Aloha,

M

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jalama
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Question: has anyone treated with Malarone and with little results either in improvements or Herxes and then switched to Mepron and noticed a Herx (for me fatigue, depression, crying.) I'm still not sure if I have Babesia but I'm thinking that maybe this response to Mepron is a good thing? Is Mepron more powerful than Malarone? Only on 1 tsp twice per day.

I also never had headaches which I understand is common with Babesia.

Thank you!!!

Aloha,

M

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daniel
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hey jamala,

i had/have the same feeling which u prescribed.. crying.. out of power.. flu.. etc.. i think thats a part of a herx... i am too an 2x 750mg mepron daily.. i think its enough because the halflife of this med is 70 hours!! so if u take 1500mg of mepron today.. u will still have 750mg in your system in 3 days.

greetz

Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Fordace
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quote:
Originally posted by Lymetoo:
Fordace... are you OK?

wow, I have no recollection of that post, none whatsoever....thanks for asking....
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beths
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Annelet-My bones and muscles hurt with babesia herx.
Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
   

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