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» LymeNet Flash » Questions and Discussion » Medical Questions » newbie to this forum

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Author Topic: newbie to this forum
sprite8
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Member # 28259

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Thanks to all who pm'd me about llmd,s.

It took me 2 days to figure out how to post!I

have had chronic lyme for at least 10 years or more. neuropsych symptoms getting worse.

Been out of treatment for a while do to cost and confusion re; fibromyalgia & cfs vs chronic lyme.

Doing alot of research just torn do to cost as to which llmd to see.

also looking for facebook friends (new to that too} Won't bore you with how long it took to get on ! Now to learn to navigate, patience, patience, patience.

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sprite8

Posts: 38 | From MA | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

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Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates

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Post in: SEEKING A DOCTOR

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2

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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Regarding FaceBook, be sure to set your privacy setting very high.

I caution even then about using your full, real name as with job searches in the future, prospective employers scout out social network sites and a history of health issues could jeopardize your chances.

So, share and get support but keep it so that you cannot be identified from any kind of search with your name.

Any information you put on any site may be circulation on the web for many years to come. Guard your privacy and think way ahead.

Be sure to check out your local lyme support groups, too. Get out as much as you can to make friends face to face. Consider groups for Tai Chi, Qi Gong, Restorative Yoga, music (that is not loud as ears are more easily damaged by lyme) . . . maybe a writing group or book club.

If you like acoustic music, check out your area Folk Music groups for song circles (you can just sit and listen) and for house concerts. You can just search the web for: your city, house concerts. Usually, in someone's house. Break times can forge lasting friendships.

Very low key, usually about $10 but often they don't turn anyone away if you call in advance and explain how much it means to you but with medical bills, might they have a donation space for you? Or, do they have a sliding fee and what is that range?
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
merrygirl
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welcome!!!


I have fibro and cfs from lyme.

Posts: 3905 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Welcome! I'm glad you figured out how to post!! It's not easy to find the "post new topic!"

Here are some links which may help you on your journey!

support groups
http://health.groups.yahoo.com/group/ .. then add the state/lyme

A support group can help you choose an LLMD suitable for you.

Quick Links to Popular topics:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555

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--Lymetutu--
Opinions, not medical advice!

Posts: 95437 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
sprite8
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Thanks Lymetutu.

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sprite8

Posts: 38 | From MA | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
sprite8
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Thanks for all the info everyone!

Keebler, re; face book do you or anyone know how to change your real name to something else if already signed up?

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sprite8

Posts: 38 | From MA | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
   

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