LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » To those struggling with Babesia

 - UBBFriend: Email this page to someone!    
Author Topic: To those struggling with Babesia
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

Icon 1 posted      Profile for Pocono Lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://www.ajtmh.org/cgi/reprint/59/4/509.pdf


http://www.ajtmh.org/cgi/content/abstract/74/3/401

I came across these and am planning on trying it as nothing else has given long lasting relief thus far.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
zil
LymeNet Contributor
Member # 12048

Icon 1 posted      Profile for zil     Send New Private Message       Edit/Delete Post   Reply With Quote 
Please post your results. Good luck.
Posts: 383 | From Ar | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
17hens
Frequent Contributor (1K+ posts)
Member # 23747

Icon 1 posted      Profile for 17hens     Send New Private Message       Edit/Delete Post   Reply With Quote 
What have you tried so far, pocono lyme, so i know what didn't work for you.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Interesting.

Hubby just finished up his Coartem and got started on IV Zithromax this week. Woke up last night with a fever of 100.3 -- first time in a long time. Not sure what to make of that yet. He has been on oral zith off and on for the last couple of years but never IV before.

He is on IV Rocephin, IV Zithromax, factive and pulsing tindamax. Not really sure where we are headed with anything at this point.

But I am pretty sure we have some left over quinine in our stash. May have to give that a try. Will let you know if we do try that combo.

His LLMD appointment has been moved to 10/21 so most likely we will try something on our own between now and then.

His cough is getting worse -- pulmonologist no real help there. Years ago we thought the cough was babesia related. Had been gone for a couple of years and came back when he crashed and was in the hospital early July.

Thanks again for posting.

One precaution -- one of the tables listed a pretty high rate of long QT heart rate. Hubby developed palpitations after his first dose of oral zith a couple of years ago -- strangely that symptom went away with either rifampin or factive -- I forget now which but will ask Steve.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

Icon 1 posted      Profile for Pocono Lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks zil.

17hens, The first regimen more than 5 years ago was Mepron/Zith for months. That did get rid of the severe teeth chattering chills but that was all I noticed.

That was followed by more months of Malarone which didn't seem to do anything.

I had used artemisinin with these also.

The next med I used was Lariam followed by Primaquine which did help and helped me realize Babesia was an issue but relapsed.

Then went on to Alinia for many months. This seemed to keep me from getting worse, but no improvements.

Then I did Riamet/Coartem. That REALLY made me realize Babesia was a major issue. I had a couple of pretty good weeks following that. The best I've been in 6 years. But it didn't last.

Then I did rounds of Chloroquine/Primaquine. The Chloroquine didn't work for me as well as the Riamet so my next plan consisted of riamet followed with Primaquine.

Definite slooooow improvement but relapse follows quickly. I will continue with this for the next 5-6 weeks until I get the above combination.

I initially planned on doing Clindamycin/Quinine combo until I saw this.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

Icon 1 posted      Profile for Pocono Lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Bea,

I did IV Zith with no noticeable difference at the time but wasn't targeting babs at the time.

The Primaquine seems to be holding the babs in check as it does for relapsing Malaria for the most part but like all of us, that's just not good enough. I want it GONE!

Another interesting thing that put me on the track of Babs being my maybe biggest issue was that for the first time in 5 years, my immune system bloodwork improved after the Coartem.

When I relapsed so did my immune system. Total IgG and the subclasses.

Curious that you mention the cough. When I make some headway with babs the cough nearly disappears. Have had one for years. Much much better now.

I read way back about a vet being diagnosed with pulmonary fibrosis with a poor prognosis and it resolved with babesia treatment. hmmm

Good Luck Bea
Know what you mean.
If I had a stash right now of Zith and quinine, I'd be starting it yesterday.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
17hens
Frequent Contributor (1K+ posts)
Member # 23747

Icon 1 posted      Profile for 17hens     Send New Private Message       Edit/Delete Post   Reply With Quote 
Is it possible you might have Bart w/ the Babs? Maybe you'd need to treat both at the same time to get rid of the Babs? Just a thought.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693

Icon 1 posted      Profile for Dawn in VA     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bea, I noticed the same palps with just initial dosing of Zith, but like your hubby w/factive, Biaxin does not cause any palp issues for me.

--------------------
(The ole disclaimer: I'm not a doctor.)

Posts: 1349 | From VA | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
been
LymeNet Contributor
Member # 23127

Icon 14 posted      Profile for been     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
In an attempt to eradicate the parasite,
the patient was re-treated with a drug combination of oral quinine (650 mg, three times a day) and azithromycin (500 mg, twice a day) for another 10-day course of therapy.

10-day course! I need to start making arrangements.
Posts: 133 | From Philly/NJ | Registered: Nov 2009  |  IP: Logged | Report this post to a Moderator
feelbetter
LymeNet Contributor
Member # 21957

Icon 1 posted      Profile for feelbetter     Send New Private Message       Edit/Delete Post   Reply With Quote 
For those of you,how do you know that you have bab? because the test is positive?

I also have this dizziness feeling but test back negative.

Posts: 158 | From pittsburgh | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was neg thru Igenex test early on.

Then the protocol for it gave me much improvement.

Even with a neg. test if the meds work you could have it.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

Icon 1 posted      Profile for Pocono Lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up for a member

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.