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» LymeNet Flash » Questions and Discussion » Medical Questions » Recovery w/o Cystbusters; Dr. P in CT

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Author Topic: Recovery w/o Cystbusters; Dr. P in CT
stork
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Have you all gotten well w/o Flagyl/Tindamax?

I see DR. P in CT and so far have been pretty happy. My only objection might be that he is pretty opposed to cyst-busters. Seems to think that they are carcinogenic, but don't quote me on it.

Although he does do pulse therapy, I am concerned that the lack of cyst busting will just lead me to inevitable relapse. Thanks in advance.

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

Posts: 174 | From CT | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Haley
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My doctor is the same way but he agrees to use Flagyl 2 weeks at a time. He doesn't really like to use it.

I have always felt that Flagyl or Tindi is an important part of treatment and wondered if it might be the key to turning a corner for me.

There are people that are well that have told me they felt it was a very important part of getting well.

I start IV Flagyl in about a week. Scared but excited.

Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
stork
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Haley,

What does your Dr. say about why he doesn't like to use flagyl? Thanks.

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

Posts: 174 | From CT | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
LAXlover
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My doctor had me start Tindamax and in the beginning I would start herxing after just 2 doses. I feel that it's helping me. Right now I only do the Tindamax on weekends.

Best,

--------------------
LAXlover

Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Haley
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He has seen many people get permanent nueropathy after taking it for prolonged periods of time. I believe that is his main reason but there may be other reasons.
Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
stork
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Well then what should we do? I guess the pulse therapy approach's goal is to avoid cysts in the long run?

Are there any herbs that target cysts particularly well? Maybe cat's claw? I thought I heard some research to that effect.

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

Posts: 174 | From CT | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Lymeorsomething
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stork, im doing the pulse therapy with your doc too, but i add my own flagyl in for 4-5 days after a cycle for good measure [Smile]

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
dmc
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he's had me & family on cyst busters...plaquenil & tini, so don't know what you mean.
Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
stork
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interesting. maybe his philosophy on it has changed, or it has something to do with my age or some other factor. i'll have to ask him abt it next appt.

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

Posts: 174 | From CT | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
lymemila
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He has me on MEPRON & biaxin...According to Dr P -MEPRON is one of the best cystbusters there is..

So you must be missing something...because I see your current treatment includes mepron..
Ask Dr P to explain this to you -he is a very knowledgeable LLMD and I have alot of faith in him..

Posts: 27 | From delaware | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
stork
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Believe me mila, it's not for a lack of faith. Just trying to hit this thing from every angle, you know? And every Dr. does things differently. Definitely been very happy with him as a Dr. and owe him and his staff quite a lot even at this point.

I'll have to ask about mepron and cyst busting. I wasn't aware of that. Thanks.

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

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Lymetoo
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MEPRON as a cyst buster??

That's a new one to me.

I think whatever you use, cyst busting is essential to recovery.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymeorsomething
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He's definitely receptive and open to different approaches. He just exercises care with the more dangerous meds. He's a good doc though...

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
lymemila
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He got me symptom free in 5 months time back in 2002 using 1 month tetracycline followed by zithromax mepron...then a couple months doxy..

That lasted until 11/09 when I flared again due to too much stress & not taking care of myself..

When I walked back into his office after a long hiatus- he talked to me on a first name basis and remembered everything about my case..

IMHO - he is one of the best llmd's in the USA...
and I've been to many over the past 21 yrs of dealing with lyme..

Posts: 27 | From delaware | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
nefferdun
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Grapefruit seed extract is supposed to be a cyst buster.

Just read on another thread that someone is taking amantadine with biaxin to help with cysts (did I get that right?)

I take tindamax two days a week.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
   

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