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» LymeNet Flash » Questions and Discussion » Medical Questions » Sudden jerks while sleeping and awake

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Author Topic: Sudden jerks while sleeping and awake
needhelp38
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I know everyone has felt like they were falling while going to sleep and jerk.

But these are getting really bad. The ones I am talking about wake me up from sleeping and I also have them while I am awake.

I never had these sudden jerks during the day.

I am getting more and more of them and actually flipped my cat off of me and jerked so hard that I almost fell out of bed. [Eek!]

My question is does anyone else have this or have heard of this? [confused]

I looked it up under search on here and couldn't find anything. I have also researched it and it talks about "when falling to sleep".

That is not what I am talking about. I do have a herniated disc in my lower back,

so I though maybe when it first started it was because of this.

There has been so many things that have been going on with me that I have found answers on here.

I just wanted to find out if anyone knows about this - Thanks

--------------------
"Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi
IGeneX results - POSITIVE
Bartonella and Babesia
(Babesia worst of all)
18+
23-25 IND
30+
39 IND
41+
58+
83-93++

Posts: 54 | From columbus indiana | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
JJGable
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I never had them when I was upright or active, just when I was laying down or sleeping. Some felt like lightening.

--------------------
JJG

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springshowers
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I have had them on and off..

To be honest I have them more as I have better days Kinda weird.

When i was much sicker I never had them at all.

It almost feels like the nerves are starting to come back alive for me.

For me change right now is coming with positive energy and a clear head and less pain.

I also when I get these sometimes Just knod off like at the computer I will jerk and also find myself with my eyes closed while sitting up typing something and just for a moment and then I am ok again.

When it does happen it seems to happen throughout the day and all night and ..

Like I had a good day but I was jerking.. and I just jerked again..

Not sure if it is what your talking about or the same but that is how it happens for me.

Also during that moment i can actually feel like I am in a dream as if I a sleeping at that level. I then look around and think my goodness.

Though again it does feel like something is coming alive that has not been alive for a long long time. Iam going to talk it as a positive thing on my end. Its odd and weird and kinda feels out of control too but.. when i consider everything I am feeling like I am having things come alive and forward..

Ha I just looked down and did it again and saw some weird set of letters typed...

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tickwhisperer
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Research Myokymia and Myoclonus. I have the symptoms as well.
Posts: 11 | From Orange County, CA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Keebler
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-
Yes, myoclonus is very common with lyme. It could also be a degree of myclonic seizure, also common with lyme. Magnesium is likely deficient. Start there. That usually helps. Fish oil, too.

Talk to your LLMD.
-

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jkmom
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My daughter has had this, but not as bad as you are describing.

It is much better when she is on abx.

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unsure445
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After a pretty bad relapse and during herxing I have had this.

At its worst my arm jerked wildly while holding onto the steering wheel! I would constantly get woken up my this spontaneous jerking too.

It has completely gone away with treatment so just keep plugging away.

I am not sure which infection causes this though...

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unsure445

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burnsjw
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I have had them a lot off and on over the years. I get them when I am relapsing. About 6 years ago, I had them so bad, I was throwing my self on the floor when I would start to fall asleep. I slept on a sofa, with a heavy coffee table in front of the sofa with cushions from chairs on top of the coffee table to block, and cushion, my body. some nights I would do the jerks, when starting to fall asleep , for 2 hours or more before I could get to sleep. I also developed a version of this in my arm. It would jerk and pull up quickly and fall down again.
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Pinelady
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Yes it is a horrible feature in my first year treatment. It felt like I was going to seize and afraid to go to sleep many times...

I used B12IM/liquid Mag and epsom soaks to relax the nerves.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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kelmo
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Yep, I get them, too.
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0ldman
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Like Springshowers said, mine seem to be worse when I am improving, but I think that in my case it is caused by movement. The more I do, the more irritated everything gets, the worse the twitching gets.

--------------------
Ticks suck.

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needhelp38
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Thanks everyone I see that it can be from Multiple Sclerosis too.

I have been diagnosed with MS and have not been tested for Lyme yet.

But I have so many things that don't match ms that is why I am planning on seeing an LLMD in January.

I just am having so many episodes of this jerking it is so annoying and waked me up all the time.

Now that I know it is yet another sign of Lyme it makes me know I am on the right track. Thanks again

--------------------
"Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi
IGeneX results - POSITIVE
Bartonella and Babesia
(Babesia worst of all)
18+
23-25 IND
30+
39 IND
41+
58+
83-93++

Posts: 54 | From columbus indiana | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Misfit
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My DH does this, and he doens't have Lyme. I believe it was Keebler who put the magnesium suggestion up for me, and I started pumping the magnesium in him.

It has made a tremendous difference! I don't have to remind him to take them anymore. Even he realizes the difference.

Hope the magnesium helps you as well.

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psano2
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You should try taking a magnesium supplement. When that happened to me, magnesium made them go away.
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0ldman
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Magnesium helped tremendously, but it didn't get rid of it for me. It did make it so that I only twitch when I feel bad. Before the magnesium my right arm twitched every time I relaxed it.

--------------------
Ticks suck.

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july
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I had these when I first got sick 4 years ago. I remember telling my sister to just lay on me to stop it and hold me still. I was eventually treated with IV antibiotics and it seemed to go away.

This past April, I had gone to my primary care doctor for pain control and was given nubaine and benedryl IM. Within a couple of hours the jerking came back. My jaw would slam shut, my spine would jerk, my legs and arms flailing all over without warning.


Went back to doctor and was diagnosed with seratonin syndrome and taken off all seratonin drugs. No improvement.

In June ended up in ER for pain control again, was given nubaine and benedryl IV this time. I went into total body seizures instantly. It was like a scene out of the exorcist. I was throwing myself all over that bed. The doctor could not explain what was going on.

These episodes mostly happen when I lay down to rest and while I'm still awake.

I don't think it is seratonin syndrome. I think it has something to do with the lyme reacting to either the nubaine or the benedryl for me but I am just to sick and so extremely tired to research it.

Very scarey and extremely annoying to not know exactly why it happens.

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Keebler
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-
July,

I hope you now have a good LLMD.

The kind of seizure you describe is common for those with lyme seizures. I was kicked out of an E.R. for such seizures, triggered by a very loud intercom. They said I was trying to throw myself off the table.

Another doctor dropped me - a certified letter arrived two days after such seizures hit in his office. He had never seen anything like that so he assumed I was pulling a prank.

Years later, when attending a workshop by a LLMD, such a seizure hit and he said it was the kind he frequently saw with his lyme patients before they get onto treatment or in the earlier parts of treatment.

Treating infections - liver support, magnesium, fish oil, Beta Carotene are all helpful.

Some are helped by seizure meds but they always made it worse for me, partly as I deal with liver dysfunction called porphyria. Many drugs are off the table due to porphyria.

The serotonin drugs are often on that list. Any drug that uses the Cytochrome P-450 liver detox pathway can make things worse for those with porphyria.

You might take a look at the "Secondary Porphyria" post:
-----------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91842?

PORPHYRIA Thread
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
B-12 shots have helped me tremendously. A special kind is mentioned here:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

=============================

http://www.vrp.com/brain-health/seizures-a-nutritional-approach

Seizures: A Nutritional Approach - By Ward Dean, MD

Seizures can be attributed to a number of causes including metabolic abnormalities, infections, nutritional deficiencies, or trauma. . . .

==========================

http://www.vrp.com/articles.aspx?ProdID=art1734&zTYPE=2

Vinpocetine: Cognitive Enhancer's Role Expands to Incontinence and Epilepsy

==========================

http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

Hypomagnesemia, seizures - 90 abstracts

Magnesium, seizures - 723 abstracts

Calcium, seizures - 1782 abstracts

Fish oil, seizures - 14 abstracts

==============================

Aspartame and MSG can cause seizures. So can too much glutamine or glutamic acid.

Aspartame toxicity is not so much due to the liver, exactly, as it has such immediate reaction that the liver barely has a chance to deal with it. It is very excitatory and neurotoxic - to the BRAIN. Even a trace - even in gum. Nearly instantly and then the cascade reaction goes on.

Even a trace can kill brain cells. Anxiety can reach new heights. Depression new lows. With even a trace. It should be avoided at all costs. Totally.

Same with MSG. Google for all the names that hides under as well as all the cutesy products - and even medicines - that contain aspartame.

==============

http://video.google.com/videoplay?docid=-2384105525501310962#

EXCITOTOXINS: The Taste That Kills

VIDEO - lecture just over one hour by the author of the book, Russell Blaylock, MD (neurologist)

--------------

BOOK - http://tinyurl.com/avq449

Excitotoxins - The Taste That Kills - by M.D. Russell L. Blaylock

This is the 1997 edition

No customer reviews at this link but you can look inside the book and read (59 customer reviews) at the link for the 1996 edition of that book - http://tinyurl.com/as6je7

The customer reviews, in themselves, are an education.

============================

http://tinyurl.com/bs7ck6

Excitotoxins in foods.

Neurotoxicology. 1994 Fall;15(3):535-44. Review.

=============================

http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

aspartame - 938 abstracts

aspartame, neurotoxin 3 abstracts
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