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» LymeNet Flash » Questions and Discussion » Medical Questions » Who has Babesia?

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Author Topic: Who has Babesia?
feelbetter
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I just read Dr.Burrascano's guildine yesterday and he mentioned that it has been published that as many as 66% of lyme patients has it.

Patients often recall a high fever and chills,cough,persistent headache,dizziness,fatigue.

Babesia infections,even mild ones,may recur even after treatment and cause severe illness.

I think I have it ..

What's the treatment for Babesia?Anyone know?

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sixgoofykids
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I had babesia.

Mepron, Malarone, Lariam, artemisia are treatments for babs.

--------------------
sixgoofykids.blogspot.com

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TF
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The standard treatment is Mepron and Zithromax. Then, after a number of months, you add in artemesinin.

You should see this in Burrascano.

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Dania84
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I have it and Mepron has helped so much. Its just hard on the liver. my enzymes have been raised.

--------------------
[IM]

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kitty9309
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quote:
Originally posted by TF:
The standard treatment is Mepron and Zithromax. Then, after a number of months, you add in artemesinin.

You should see this in Burrascano.

Seriously? I was put on Malarone and Art simultaneously! I was a complete mess on the Artemisisin- 5 days/week, weekends off. I had to stop it with no suggestion of adding it back.

[ 10-07-2010, 10:00 PM: Message edited by: kitty9309 ]

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nefferdun
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I believe I have it too. Having a lot of air hunger the last few days. This symptoms comes and goes. I have no stamina. Walking up a flight of stairs leaves me breathless. I also have a lot of hot flashes. Sometimes feel cold sweat afterward. And dizziness comes and goes. I had depression last year but it is better.

I am taking bactrim DS, zithro, artemisinin and pulsed tindamax. Added amantadine in today.

Will see LLMD next month.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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t9im
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Our daughter has it.

Blood work (3 or 4 times now) has been negative but Dr. B indicates commercial testing for 2 of 13 known strains.

She is on Mepron & Zithromax. Mepron is supposed to break the coating and zithromax kills the parasite.

Zithro you have to monitor the liver. Mepron impacts mood / emotions.

I've been lead to understand its a minimun of 8 months for those with Lyme.

--------------------
Tim

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INEBG
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I have babesia and have been taking zithromax, mepron, and artemisinin for 11 months. I just added Byron White's A-Bab. No end in sight. Apparently babesia duncanai is difficult to eradicate.
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TF
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From page 24 of Burrascano:

"the current regimen of choice for Babesiosis is the combination of atovaquone (Mepron, Malarone), 750 mg bid, plus an erythromycin-type drug, such as azithromycin (Zithromax), clarithromycin (Biaxin), or telithromycin (Ketek) in standard doses...... Artemesia (a nonprescription herb) should be added in all cases."

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

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kitty9309
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TF-

Where did you hear that Artemisinin should be added some months later?

I want to try to add it back, as I have been on Malarone/Zith combo for 3 1/2 months. But, doctor was not so crazy about me adding it back.

Thanks!

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seekhelp
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My name is Seekhelp and I have Babesia
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sixgoofykids
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My LLMD had me on art from the beginning.

--------------------
sixgoofykids.blogspot.com

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Pinelady
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I did not test pos. but the treatment for it got me

good results.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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lymeshmyme
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Do you only get this from a tick bite, or can this come from other sources?
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TF
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Kitty, both lyme docs that I recommend start the person out on Mepron and zith and then add the art down the road.

I was started out on Bactrim DS (since I couldn't take Mepron/zith) and after one month of that, when I reported a distinct weekly flare was occurring, my doc added the artemesinin in a pulsed fashion to encompass the flare days.

So, that's where I heard of it.

I was never told the rationale for adding it later. But, my belief is that it is done this way just to not overload the patient.

Once the patient is able to handle the Mepron/zith and all is well, then they hit you with the art.

Too bad it wasn't done that way for you. But, maybe once you are doing well on mepron/zith, you can give the art another try. Hope so.

Wish you the best.

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Lymetoo
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Seek... [lol]

My name is Lymetoo and I HAD babesia. (I think more than 66% of Lyme patients have it.)

I took clindamycin/quinine .. tons of it. Finished it off with Zith and Artemisinin.

--------------------
--Lymetutu--
Opinions, not medical advice!

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marypart
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For people who have beat Babs, which type of babs did you have?

I'm really hoping that the upcoming ILADS meeting will include some news about treating babs duncani... it really seems like the old Burrascano treatments for babs aren't really working on duncani.

I've heard there is a new malaria drug in the pipeline... I'm hoping it helps.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

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seekhelp
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The world famous Dr J (pediatric LLMD) uses Art I believe for Duncani. Other stuff too.
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TF
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I had babesiosis microti.
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sixgoofykids
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I was clinically diagnosed and responded to treatment. I would backslide whenever I stopped Mepron. I tested negative for babesia.

--------------------
sixgoofykids.blogspot.com

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INEBG
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six - are you still taking Mepron?
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sixgoofykids
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quote:
Originally posted by INEBG:
six - are you still taking Mepron?

No, I've been off meds for over two years.

--------------------
sixgoofykids.blogspot.com

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kitty9309
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I have B. duncani.

quote:
Originally posted by marypart:
For people who have beat Babs, which type of babs did you have?

I'm really hoping that the upcoming ILADS meeting will include some news about treating babs duncani... it really seems like the old Burrascano treatments for babs aren't really working on duncani.

I've heard there is a new malaria drug in the pipeline... I'm hoping it helps.


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Beachinit
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I have read about a quaternary amine compound being investigated for anti-malarial/anti-
babesial properties. No further information available though.

--------------------
Ideas not advice.

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Beachinit
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I have Babesia of unknown subtype but most likely B. microti. I saw it under the microcope on a peripheral blood smear that I did. I began treatment with bactrim ds and artemisinin and gradually increased the Artemisinin to 900 mg/day
and 3 weeks on and 1 wk off. I now notice that: The weekly cycles are now down to every 3 wks or only every month, and also more energy, no more air hunger and rarer night sweats.
I also discovered that in my case adding doxycycline to the other 2 meds was synergistic e.g. greater therapeutic effect than just bactrim and artemisinin alone. I am hoping to be symptom free by December or so . . . that would be a total of 8 months of treating babesia,
along with other meds for Bartonella and Lyme/Borrelia.

--------------------
Ideas not advice.

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