quote:Originally posted by TF: The standard treatment is Mepron and Zithromax. Then, after a number of months, you add in artemesinin.
You should see this in Burrascano.
Seriously? I was put on Malarone and Art simultaneously! I was a complete mess on the Artemisisin- 5 days/week, weekends off. I had to stop it with no suggestion of adding it back.
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I believe I have it too. Having a lot of air hunger the last few days. This symptoms comes and goes. I have no stamina. Walking up a flight of stairs leaves me breathless. I also have a lot of hot flashes. Sometimes feel cold sweat afterward. And dizziness comes and goes. I had depression last year but it is better.
I am taking bactrim DS, zithro, artemisinin and pulsed tindamax. Added amantadine in today.
Will see LLMD next month.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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t9im
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posted
Our daughter has it.
Blood work (3 or 4 times now) has been negative but Dr. B indicates commercial testing for 2 of 13 known strains.
She is on Mepron & Zithromax. Mepron is supposed to break the coating and zithromax kills the parasite.
Zithro you have to monitor the liver. Mepron impacts mood / emotions.
I've been lead to understand its a minimun of 8 months for those with Lyme.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
I have babesia and have been taking zithromax, mepron, and artemisinin for 11 months. I just added Byron White's A-Bab. No end in sight. Apparently babesia duncanai is difficult to eradicate.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
From page 24 of Burrascano:
"the current regimen of choice for Babesiosis is the combination of atovaquone (Mepron, Malarone), 750 mg bid, plus an erythromycin-type drug, such as azithromycin (Zithromax), clarithromycin (Biaxin), or telithromycin (Ketek) in standard doses...... Artemesia (a nonprescription herb) should be added in all cases."
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I did not test pos. but the treatment for it got me
good results.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Do you only get this from a tick bite, or can this come from other sources?
Posts: 256 | From Texas | Registered: Jun 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Kitty, both lyme docs that I recommend start the person out on Mepron and zith and then add the art down the road.
I was started out on Bactrim DS (since I couldn't take Mepron/zith) and after one month of that, when I reported a distinct weekly flare was occurring, my doc added the artemesinin in a pulsed fashion to encompass the flare days.
So, that's where I heard of it.
I was never told the rationale for adding it later. But, my belief is that it is done this way just to not overload the patient.
Once the patient is able to handle the Mepron/zith and all is well, then they hit you with the art.
Too bad it wasn't done that way for you. But, maybe once you are doing well on mepron/zith, you can give the art another try. Hope so.
Wish you the best.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
For people who have beat Babs, which type of babs did you have?
I'm really hoping that the upcoming ILADS meeting will include some news about treating babs duncani... it really seems like the old Burrascano treatments for babs aren't really working on duncani.
I've heard there is a new malaria drug in the pipeline... I'm hoping it helps.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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seekhelp
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posted
The world famous Dr J (pediatric LLMD) uses Art I believe for Duncani. Other stuff too.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had babesiosis microti.
Posts: 9931 | From Maryland | Registered: Dec 2007
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quote:Originally posted by marypart: For people who have beat Babs, which type of babs did you have?
I'm really hoping that the upcoming ILADS meeting will include some news about treating babs duncani... it really seems like the old Burrascano treatments for babs aren't really working on duncani.
I've heard there is a new malaria drug in the pipeline... I'm hoping it helps.
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
I have read about a quaternary amine compound being investigated for anti-malarial/anti- babesial properties. No further information available though.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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posted
I have Babesia of unknown subtype but most likely B. microti. I saw it under the microcope on a peripheral blood smear that I did. I began treatment with bactrim ds and artemisinin and gradually increased the Artemisinin to 900 mg/day and 3 weeks on and 1 wk off. I now notice that: The weekly cycles are now down to every 3 wks or only every month, and also more energy, no more air hunger and rarer night sweats. I also discovered that in my case adding doxycycline to the other 2 meds was synergistic e.g. greater therapeutic effect than just bactrim and artemisinin alone. I am hoping to be symptom free by December or so . . . that would be a total of 8 months of treating babesia, along with other meds for Bartonella and Lyme/Borrelia.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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