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» LymeNet Flash » Questions and Discussion » Medical Questions » CHILDS RESULTS/SYMPTOMS SO CONFUSED

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Author Topic: CHILDS RESULTS/SYMPTOMS SO CONFUSED
mysteryillness1970
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Member # 24588

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Hi,
In April my daughter tested negative to Bartonella but positive to Babesia Duncani IgM (not IgG). However, the Babesia Fish was negative.

She was given Mino & Azith (psoriasis rash and joint stuff went away) but in July she doubled the Mino (b/c the neuro/cognitive symptoms remain the same).

Last week, she came to me in tears with a Bartonella type rash on the sides of her buttock (below hip/horizontal)and asked where it came from and if it was going to last forever (bikini teen [Frown] )

I am SO confused! Why is this happening AFTER treatment (if she never even had the rash before)? More importantly, if she tested negative to Bart (Specialty Labs) why is she even getting the rash?

Also doc says Babs IgM is inconclusive since IgG was neg so he isn't treating for it.

Please, please help me understand! [confused]

Posts: 166 | From USA | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
LymeXtu
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Mystery - This happened to my son, rash showed up on buttock area on both sides it would look really dark sometimes and then fade a little and then look dark again, our LLMD did not know what it was but I was worried about Bart.

I took him to another doctor ( that was highly rec. from a friend )and he said "I am 99% sure that is NOT bart but caused by an over production of cortisol called pregnenolone steal"
he put him on D-ribose and within 3days the rash started to fade he has been on it a couple of months now and the rash is pretty much gone.

This was AMAZING the rash had been there for months and I was sure he had Bart too

Our LLMD was also very impressed.

Not sure if this is what could be going on with your daughter but,

Just something to look into, if you have any questions let me know.

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LymeXtu
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The rash showed up AFTER being on treatment for a while.
Posts: 448 | From minnesota | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
lou
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Boy, how complicated is this. Like working in a black box.

Some rashes are bart and some are not. And bart testing is not foolproof. Sheesh.

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sixgoofykids
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I really don't know why babs igm would be inconclusive? Doesn't make sense to me.

I tested negative for babs and bart but clearly had both and was diagnosed by symptoms. Both diagnoses, like Lyme, are clinical, tests are used only to support diagnosis.

--------------------
sixgoofykids.blogspot.com

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Pinelady
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I would treat regardless of what the tests say if she is symptomatic.

Lyme can hide everything.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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17hens
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I had a tick, a bull's eye, symptoms starting 3 days later...
treating lyme (200mg doxy) made bart symptoms appear...
treating bart made babs symptoms appear...

I've tested 3 times negative on western blot and coinfections. Go figure. All I know is you can never diagnose based on tests alone.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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little_olive
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Treat by symptoms, not test results. Is she having Babs symptoms? Test results are only to back up what you think is there, but it's not a guarantee. I've tested negative for bart 3 times and yet I have it.

It's VERY VERY COMMON for other infections to pop up once you start treatment, that's sort of what happened to me. there was a thread not too long ago about this, how treating one infection makes the others show themeselves, something to do with hierarchy in the immune system. attack the worst thing, then the others come out of the woodwork

[Smile]

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