LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » need chronic lyme liter. dr.--have had Lyme 25 yrs

 - UBBFriend: Email this page to someone!    
Author Topic: need chronic lyme liter. dr.--have had Lyme 25 yrs
sbeck
Member
Member # 20451

Icon 1 posted      Profile for sbeck   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was diagnosed with Lyme in 1983--to my knowledge I was the first diagnosed case in VA. I was treated for a year and recovered "completely".

I have had many chronic immune diseases now the past 10 years and am looking at Lyme again. My gen. practitioners, allergists, ENT's, and thyroid dr.s don't know a thing about Lyme. Can someone point me to the BEST Dr. within a 2 hour's drive who can understand I may have been living with Lyme for 25 years and need proper testing and tx?

I live in harrisonburg, VA and could drive as far as N. VA, D.C. Charlottesville, and Baltimore. Thank you, Susan

[ 10-12-2009, 07:59 PM: Message edited by: sbeck ]

Posts: 11 | From Harrisonburg, VA | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
welcome susan [Smile]

check your profile for virginia llmds [Smile]

please edit your post by clicking on pencil, 3rd box to right of your name and edit:

subject: VIRGINIA llmd needed

text, please break up the entire thing into SHORTER paragraphs and double space between each one. please use my guidelines below.

did you go to lower left hand corner and mark box to receive all replies? click edit send when done.


Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!

The following is some links that may be helpful to you:

Lyme Disease and Co-Infection Symptoms
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386


Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" http://www.ilads.org/lyme_disease/treatment_guidelines.html


Pages 17-19 discuss Adult and Kids Treatments
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/80440?#000006


Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf


``Making the most of your LLMD visit''
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


New Member Learning links:
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917


Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD. http://turnthecorner.org/lyme-disease-quick-facts.htm


People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/


You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. www.igenex.com http://www.frylabs.com/; http://www.clongen.com/; http://focusdx.com


Dr C's Western Blot explanation is discussed here:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077


ILADS
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org

Under Our Skin Lyme Disease documentary www.lymediseasefilm.com

Herxing Reactions: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=041517

For the Igenex Western blot IgM and IgG blood test drawn on M, T, or W. Check current $$! Oct. 2008 Price List ... info only. Prices have increased on some! Call 1-800.832.3200 for current prices.
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/78648?#000003

They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.


Optional tests include: co-infection panel for your area of country and PCR whole blood

Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.

Get copies of all of your special bloodwork.

Overseas instructions for sending to Igenex/Fry Labs (2-23-08)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=063751


Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.

For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.

You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.

Go to left hand corner and mark box to receive `all replies', and click edit send.

Thank you for posting in a manner that makes it easier for all to read and help others.

IP: Logged | Report this post to a Moderator
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

Icon 1 posted      Profile for Abxnomore     Send New Private Message       Edit/Delete Post   Reply With Quote 
PM sent.
Posts: 5187 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
I sent you some names and some info.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
susan,

please do NOT ask for anymore and post on OTHER PEOPLE'S posts; we have sent you what we have, and you are quadruplating our efforts.

we are volunteers ok; thanks [Smile]

IP: Logged | Report this post to a Moderator
sbeck
Member
Member # 20451

Icon 1 posted      Profile for sbeck   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you all for sending me advice. what a wonderful group of people! Now I have to learn how to add a smiley face [Smile] [Smile]
Posts: 11 | From Harrisonburg, VA | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
JoesMom
Member
Member # 15699

Icon 1 posted      Profile for JoesMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
What about going to Fort Mill SC? Is that too far?
Posts: 89 | From NC | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
sbeck
Member
Member # 20451

Icon 1 posted      Profile for sbeck   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
SC is pretty far. My in-laws live in Raleigh, NC and that's a 5 hour drive from us. Why, is there a good dr. in Fort Mill?
Posts: 11 | From Harrisonburg, VA | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
lou4656
Frequent Contributor (1K+ posts)
Member # 10300

Icon 1 posted      Profile for lou4656     Send New Private Message       Edit/Delete Post   Reply With Quote 
sent a private message

--------------------
LouLou

Posts: 1276 | From maryland | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
JoesMom
Member
Member # 15699

Icon 1 posted      Profile for JoesMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, sbeck he is moving to DC now, so I here. Very unfortunate for the area. Sorry
Posts: 89 | From NC | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
five4me
Junior Member
Member # 22843

Icon 1 posted      Profile for five4me     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you are talking about Dr. J in SC, I just got a letter from his office saying he is moving the practice to DC. I, personally wouldn't recommend him, but it is a DC option now.
Posts: 9 | From OH | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.