posted
I would love to keep my doctor. She has alot of insight into lyme. She does treat alot of other things as well.Might like to at least talk to someone who focuses more specifically on Lyme and related co infections. I did take a Western Blot at Igenex thru my current doctor. I got a total between the two parts of the test of 3 positive and 2 indefinite bands. I am undiagnosed with anything as of yet. Blood test after blood test show little or nothing. Neurologic tests show nothing alarming. Allergy testing has yielded little in the way of results so far. Gastrointestinal doctor shows a few minor things internally. Organix urine test showed low aminos and vitamin D as well as overgrowth of internal bacterium including clostridium. I feel like my nerves are on fire when this flares up and my muscles go rigid and my chest and ribs hurt. Feels like a heart attack , there is a small nodule under my left arm where most of the shivering,nerve issues seemed to start and emanate from whenever there is a flare up. CT showed no abnormalities there and nothing showed on a full body MRI. Seem to have poor circulation and insomnia alot of times. Am on a restricted diet for the last month or so. Seems to help but doesnt stop flares. Taking herbal mixtures from a Lyme knowledgeable holistic doctor. Just started taking doxycyclene and Azithromycin a couple days ago. I have a few other rather large nodules beneath the skin in my arms that are as yet unidentified. No color to them and I know at least one of them is not recent. I have experienced little to no fevers. Some night sweating, alot of flares create rigid feeling muscles and almost a cramping sensation. Pressure in my head and abdominal area as well when sitting in certain positions. Could be Lyme and at least one co-infection. God blesses me with more strength every day. I pray he does the same for all those that read this.Any help is truly appreciated.God bless.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
| IP: Logged |
Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, Adam and WELCOME to our lyme site. We're glad you came to us for help.
I have sent you a private message (pm), click on the flashing envelope.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
| IP: Logged |
posted
Thankx. Still searching for an official diagnosis. Ran so many tests with different specialists before finding a direction that was promising. Doing Bartonella test Monday as my CD57 is 188.
Posts: 21 | From Phoenix, Arizona | Registered: Feb 2010
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Will private message you.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/