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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » I need help right now - dying 13 yr. old!!!

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Author Topic: I need help right now - dying 13 yr. old!!!
17hens
Frequent Contributor (1K+ posts)
Member # 23747

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Please, I need contact info for Dr. J in CT!!!
(phone, location.)

I posted about a friend of mine who has a very sick 13 year old. At 11, she had a tick and a bull's eye. Was treated w/ abx. for 2 weeks. A week later had swollen knee, was treated for 2 years as ped. arthritis patient w/ steriods.

I suggested Dr. C in PA, pediatric LLMD and the mom made an appt. - 9 mo. wait list.

Three weeks ago the girl weighed 57lbs, today 50lbs. Her mom says her daughter is disappearing. She doesn't want to eat. She doesn't ask questions any more. She must be carried everywhere, she must be fed, wiped, everything.

Please help! There is little time!!!

Also, the mom is a single mom, was let go from her job 3 weeks ago (downsizing) and insurance runs out next Wednesday. Any ideas?

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
gatorade girl
LymeNet Contributor
Member # 24896

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I pmed you.

--------------------
gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".

Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220

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I tried to send some names of Pediatric LLMD's but YOUR MAILBOX IS FULL! If you would send me a private message, I'll respond with the information.

Thanks!

Posts: 2097 | From PA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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OMG!! I will pray! This is horrible and the medical world just sits by and watches this happen!

[cussing]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95805 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
17hens
Frequent Contributor (1K+ posts)
Member # 23747

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Thank you, Lymetoo. Please pray for the girl and her mom too. We all need to pray without ceasing for this little one!

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
bill+1
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I to will pray for all of you . I sure hope things inprove soon. BILL

--------------------
Wishing us all well !

Posts: 99 | From Southern Illinois | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Siciliano
Frequent Contributor (1K+ posts)
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I sent you a long pm!

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I'm sorry but I am no longer accepting any private messages due to my own battle with lyme.

Posts: 3897 | From New Hampshire | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Robin123
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More than prayer - we need some action - can folks figure out how to get this kid some immediate medical help?
Posts: 13070 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
eyedoc
Junior Member
Member # 26647

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I've been doing research. Unfortunately many doctors are treating Lymes as other diseases and STEROIDS are CONTRAINDICATED in Lymes because it reduces the immune response and the body heals slower while causing more problems with Lymes. They need to get her off the steroids!!! Here is a great article to read http://autoimmunityresearch.org/lyme-disease/
All the best for this little girl.

Posts: 3 | From Monore Township, NJ | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
jwick25
LymeNet Contributor
Member # 15190

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This is horrible. I hope that this young girl gets the medical attention she requires.

Warmest thoughts to this girl, her family and friends.

Hopefully, action has been taken.

All the best.

Posts: 711 | From Bucks County, PA | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
   

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