WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation.
===============
THIS NOT A SPECIFIC REFERRAL THREAD. This is a formula / reference thread and will not be monitored for new questions.
If you are requesting a reply regarding finding someone in your area, please post a whole new topic thread - all to yourself - to receive replies. Post for: LL ND (city, state).
This thread is not intended to imply that a LL ND is better or worse than a LLMD. In many cases, the two can work together to complement treatment. That is optimal.
In some states, there are no LLMDs but there may be a LL ND. And, in some states, NDs are licensed to prescribe Rx. Many LL NDs do so, just as many LLMDs suggest supplement support.
Those who keep the LLMD lists do not have lists of LL ND, although there may be a few names here and there. But, hopefully, someone from your area who knows of one may see your post.
It's best to be proactive with the methods suggested below if you don't get some immediate replies.
I, myself, have no master list but where I see a request for a place where I know of a good LL ND, I will reply. I have no training in any area of medicine. All the links posted are just what I've used to try to save my life, in a state where LLMDs are not allowed by our state medical board.
From my own experiences with mostly non-LL NDs before a good ILADS LL ND finally came to town, I strongly suggest only those who are ILADS-educated if one is to rely on them for any aspect of care related to lyme. The regular NDs just don't have the frame of reference or the background with lyme. It's very complex.
Most regular NDs think just getting the body stronger will solve all problems. With lyme, it is nearly impossible to get the body stronger without aggressively treating lyme - and coinfections - and heavy metal issues that go hand-in-hand with lyme.
Lyme changes a body in some astounding ways. So, even if one sees an ND for seemingly unrelated reasons, it's really best if that ND is at least somewhat lyme literate for basic adjunct care.
For instance, acupuncture needles are usually not well tolerated beyond a minute at first for those with lyme. Most other patients tolerate 20 minutes sessions. A non-LL L.Ac. would not know this.
====================================
In addition to treatment with an ILADS-educated LLMD, some find that a LL ND's expertise can help. In some states that have no LLMDs, there are some LL NDs. Here are some resource links to consider.
Other good links or hints are welcome, of course.
I'm not posting this so much as a discussion thread, however, questions about adjunct care can be posted in the medical forum for discussion.
=====================================
HOW TO FIND A LYME LITERATE NATUROPATHIC DOCTOR (N.D.)
Includes how to find an ILADS-educated LL ND, an Acupuncturist, a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, massage therapists, etc.
Includes many articles and books on complementary / integrative methods - & RIFE links.
Of course, beyond the training and licensing credentials, any ND who works with a person with tick-borne infections should also be ILADS-educated (so to speak) and actively still keeping up with ILADS research.
You also need to know that many LL NDs also often incorporate antibiotics just as many LLMDs incorporate support measures.
In some states, NDs are licensed to prescribe from a pharmaceutical formulary that includes some antibiotics.
Some NDs are also trained, certified and licensed to prescribe, order insertion of PICC, central line / port / catheters -- and/or treat with IV pharmaceuticals as well as with IV nutritional supplements.
Not all NDs are LL and it's vital to be able to sort out this matter right up front.
=========================
lightparfait posted elsewhere that www.klinghardtacademy.com has referrels for natural LLMD's / LL NDs
=========================
Check the lyme support groups in the area to compare notes from those who have worked with some LL NDs or other complementary practitioners who are LL.
STATE LYME GROUP ? - If there is a STATE group, find them, too. Cross search through Google for: state, lyme . . . etc. You may need to search a couple of different ways. The terms, network, association, etc. may need to be used for a successful search.
Association of Accredited Naturopathic Medical Colleges
These colleges and universities often have patient clinics that usually offering sliding scale payment options. While the residents and interns may not be LL, they also may be.
--------------------
Individual states have their own licensing boards, different from MD boards.
Currently, 15 states, the District of Columbia, and the United States territories of Puerto Rico and the United States Virgin Islands have licensing laws for naturopathic doctors. In these states, naturopathic doctors are required to graduate from an accredited four-year residential naturopathic medical school and pass an extensive postdoctoral board examination (NPLEX) in order to receive a license.
Licensed naturopathic physicians must fulfill state-mandated continuing education requirements annually, and will have a specific scope of practice defined by their state's law. The states that currently have licensing laws for naturopathic physicians are:
UPDATED from time to time. A few more states may be added in addition to those below. Be sure to check the official association sites.
* Alaska * Arizona
* California * Connecticut
* District of Columbia * Hawaii
* Idaho * Kansas
* Maine * Minnesota * Montana
* New Hampshire * Oregon
* Utah * Vermont
* Washington * US Territories: Puerto Rico and Virgin Islands
=====================
Many N.D.s are also licensed acupuncturists (L.Ac.) and there may be a few L.Ac.s who are also LL. Both N.D.s and L.Ac.s have several years of post-graduate education in herbal medicine. You can search the sites to explore the differences in their training - and ask the practitioner in person about their training and experience. They are usually glad to share that all that.
WHAT IF YOUR STATE DOES NOT LICENSE N.D.s?
Some states that allow N.D.s to practice in other ways - such as with a M.D.
Normally, you'd want a licensed N.D., however, in states where there is no licensing, if you find a state professional organization, USUALLY those who belong meet certain professional standards and have the appropriate medical degree from an accredited college of naturopathy.
Search at Google (Yahoo, or Bing):
State name, licensing ``naturopathic physician''
If no results, search: [state name], naturopathic (or acupuncture or Ayervedic, etc.)
you want to find some sort of professional organization.
The Accreditation Commission for Acupuncture and Oriental Medicine (ACAOM)
- the national accrediting agency recognized by the U.S. Department of Education to accredit Master's-level programs in the acupuncture and Oriental medicine profession.
Licensed Massage Therapists (LMT) also are very helpful. You can search for their licensing organization in your state and contact your local lyme support groups for those LMTs who are good with lyme patients.
==================
The same search methods and discovery techniques used above can help locate other professionals not listed here.
Remember, your LLMD is the first place to ask about support measures. Many LLMDs have good working relationships with a wide range of LL practitioners. -
[ 03-26-2017, 06:14 PM: Message edited by: Keebler ]
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- The place to begin with lyme education is ILADS. Even if alternative methods are used, there is no getting around the need to study the ILADS and Dr. B's sets of guidelines.
Some at the top of the list treat with Rx and incorporate complementary methods. Even some LL NDs rely on Rx sometimes. A few links are those just for supplements but, of all listed here, most if not all, blend. -------------------------------------
Alternative Treatments for Lyme Disease and Co-Infections
============================
To compare and contrast the work of authors regarding some of the most common complementary or integrative paths. Note that many still incorporate antibiotics.
This is not at all a complete list . . . just a start. It's far easier to have a LL doctor with lots of experience so that you don't have to do all the homework. Suggestions here are, in no way, intended to take the place of a good LL doctor. This is for patient education and also to serve as a basis for discussion with your LL doctor.
HEALING LYME DISEASE: An Integrated Approach to Curing Chronic Infection by DKr, M.D. (2004)
============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
A synergistic formula of 6 rainforest botanicals which are traditionally used in South America for syphilis (a type of spirochete bacteria) and other bacterial conditions.* This product was featured in an article by the Health Sciences Institute (see page 4).
A fabulous library backed with solid 3rd party citations for every article.
9-12-10 note: They just redesigned their web site and their library seems to have gone missing. I'll leave this link, though, in case it comes back. They HAD a very good library.
==============================
More specific to herbs and how they work in the body. GREAT BASIC BOOK just not about lyme (other than the page on Sarsaparilla):
The One Earth Herbal Sourcebook (Tillotson, et.al.)
While ITM is top notch in the field of Chinese medicine, sadly, their article on lyme is not quite up to date. The author is brilliant in his own disciple but not ILADS-educated, nor a lyme expert. Still, much value, just not the whole picture. -
[ 03-01-2012, 11:36 AM: Message edited by: Keebler ]
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- As many sleep and pain meds (and even some over-the-counter products) have varying levels of toxicity and can be hard on the liver and kidneys, here are some suggestions for sleep support that can safely nourish & calm the body: ---------------
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
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Keebler
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Herbs come in many different forms. The most common are crude herbs, powders, dried decoctions, tinctures, capsules, gelcaps, salves, oils and teas. ------------
* CRUDE HERBS are simply collected and dried, then cut and sifted. This is the original way herbs have been prepared since the dawn of time.
This form is commonly found in traditional herb shops around the world, and in ethnic neighborhoods in major cities in the United States.
The advantage of this form is that you can actually see, taste and smell the herbs. Crude herbs are usually taken home and cooked into teas.
--------
* POWDERS are simply ground crude herbs. You can use powders to make herbal tea, or simply ingest them in their natural form. I like powders because they allow you to experience the taste and smell of the herbs you are using.
Another benefit of this form is that you can often take larger doses of the herbs. However, powdered herbs do not last as long in storage as the other forms.
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* TEAS are aqueous extractions of crude herbs or herbal powders. Most herbs today come in pills or tinctures, so to make sure we do not forget our herbal roots, I always make sure to keep some loose herb teas in the house.
There are several methods of preparation for herbal tea. Infusion, better for delicate leaves and flowers, entails bringing water to a light boil, turning off the heat, and letting the herbs steep in the water.
Leaving the crude herbs out in the sun for a couple of hours in a tightly sealed container makes Sun tea. Simmering the herbs for anywhere from ten minutes up to an hour (longer is better for the much heavier barks and roots) makes a decoction.
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* TINCTURES are extracts made by soaking herbs in solutions designed to draw out their virtues. Alcohol is the most common soaking solution for tinctures. Tincture manufacturers must have recipe books to guide them, as the exact method will differ for each herb.
Tinctures are valuable because they are easy to digest and absorb. Some herbs can only be used in this form. The strength of a tincture should be listed on the bottle in the form of a ratio, such as 1:5 or 1:2.
The first number tells you how much of the herb is present, and the second number tells you how much menstruum (the liquid used to dissolve the herb) is in the preparation. Therefore, a 1:5 tincture is weaker than a 1:2 tincture, because a larger volume of liquid is used.
--------------
* DRIED DECOCTIONS, also called CONCENTRATED GRANULES, are used primarily by Chinese (TCM) herbalists. This method of preparing herbs was devised several decades ago in Taiwan by a group of chemists and traditional doctors.
Basically, the herbs are cooked as teas in large vats and the solid residues are removed, after which the remaining liquids are dried out until only powders remain. Sometimes certain important components (such as volatile oils) are collected separately by specialized equipment and then added back to the final product.
These powders are usually about four times more potent than the crude herbs. The label may list a ratio of 4:1, but concentration can be as low as 2:1 or even as high as 10:1.
Dried decoctions still retain the herbs' basic tastes and smells, and the concentrations of chemicals discourage bacterial growth so they tend to store well. I use these granules frequently in my practice.
-----------
* CONCENTRATED HERBAL EXTRACTS are now made using various methods. These extracts, in liquid or solid form, can be anywhere from two to 100 times more concentrated in certain components than crude herbs.
-----------
* CAPSULES are simply powdered herbs, dried decoctions or concentrated herbal extracts that have been put into gelatin capsules.
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* TABLETS are simply powdered herbs, dried decoctions or concentrated herbal extracts with a binding substance added. They are then are pressed into tablets by a machine
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* GELCAPS are sealed gelatin capsules that hold either tinctures or concentrated liquid herbal extracts. -
[ 12-27-2010, 11:55 AM: Message edited by: Keebler ]
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- SAFETY and INTERACTIONS =============================
Be sure your LLMD knows everything you are taking. If you have a LL ND (or other) also be sure they know everything you are taking, including over the counter products, even aspirin (as it can be toxic to the ears. Ibuprofen can hard on the kidneys and acetaminophen can be hard on the liver.
Everything has to be considered as it all interacts.
PORPHYRIA Thread - regarding liver stress and how certain drugs may be harder than others (those that require the Cytochrome P-450 liver detox pathway).
Also detailed are supplements that can help reduce the harsh effects of some drugs.
=============================
One book that may help with understanding how the body systems work is:
THE ONE EARTH HERBAL SOURCEBOOK (Tillotson, et.al.)
Through the generosity of the authors, much of it is viewable on-line. Still, I find having the actual book on my desk a valuable asset for additional detail.
MENU on left of page will take you to the BASICS OF HERBS - and beyond.
Amazon also carries it. This book does not discuss lyme or TBI protocol, still it is an excellent resource for so much, especially understand our liver, etc. Diets for certain kinds of illness are suggested.
Repeat: this book does NOT discuss any treatment for lyme (other than a passing reference to sarsaparilla at http://tinyurl.com/2eeqct ).
Still, it is an excellent place to start for understanding so much about human and plant life and how they work together. -
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CHINESE MEDICINE BODY CLOCK: Acupuncture and Chinese Medicine
There are twelve energy pathways, or meridians, in the human body that connect to specific organs in the body. Chinese medicine believes that each organ has a two hour time period when the Qi is at its peak in that meridian.
The Qi flows cyclically in a clockwise rotation like a wave through the meridians.
We always pay attention to symptoms that occur repeatedly at specific times because this may be an indication of the organ that is out of balance. For example, waking every night between 1 and 3 a.m. almost always is indicative of a Liver imbalance.
This chart shows the order of the flow. . . . (cont'd at site)
. . . Visceral Manipulation (VM) is a gentle hands-on therapy that works through the body's visceral system (the heart, liver, intestines and other internal organs) to locate and alleviate these abnormal points of tension throughout the body.
JOHN F. BARNES, P.T. is one of the top experts on myofascial release. After a surgery, this can help reduce - or soften - adhesions that typically occur.
Many other good links through Google, Bing and some video introductions on YouTube.
=================================
Low impact, non-aerobic exercises that are very powerful in a deep and gentle way:
Tai Chi can be excellent. So can Qi Gong (Chi Gong), which requires less turning of the head and less sideways movement. One of the most healing styles of Qi Gong is Soaring Crane. With either Tai Chi or Qi Gong, be sure it's a healing style. Some are more aggressive in nature.
Restorative Yoga is a good style.
===============================
Some find LED light therapy to help with joints. This is just one link for one of the more popular units. There are more links on the web - and several threads that can be searched here at LymeNet through the search feature/archives.
. . . Sarah is a woman in mid-life with two grown children. After a disabling bout with Lyme disease, she felt that her feet ``refused to follow orders.''
Her gait was disturbed and simple tasks became hazardous. One evening she broke her ankle as she walked across her bedroom! Now her determination to stay mobile was burdened by more pain and weakness.
At this point, Sarah's massage therapist sent her to me for Functional Integration lessons. She made immediate and rapid progress; her feet found their way; and her gait became stable and fluid.
``In the aftermath of Lyme disease, Feldenkrais� lessons contributed to my entire sense of well-being. The movements improved my fine motor skills. Also, because I was walking all wrong, it tired me out.
I knew I was walking incorrectly, but I didn't know how to correct the problem--now that I'm walking better, I have more stamina,'' she explains. . . .
=========================
BIOFEEDBACK
Biofeedback training is often covered by insurance for a diagnosis of migraine. Biofeedback cannot replace the wonderful benefit of hands-on work but it can certainly augment the success.
NEUROFEEDBACK (also called QEEG Training) is also helpful in certain cases
==============================
YouTube can be a good place to see a few instructional videos to get an idea about certain techniques. It's best to find ones that are from certified instructors. But, YouTube is just for a hint - it's always best to consult a professional in person for individualized instruction, when at all possible. -
[ 11-05-2010, 03:55 PM: Message edited by: Keebler ]
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The AHMA was founded in 1978 to unite licensed physicians who practice holistic medicine. . . .
* American Holistic Medical Association (AHMA) * American College for Advancement in Medicine (ACAM) * American Academy of Environmental Medicine (AAEM) * International College of Integrative Medicine (ICIM)
The following is a list of practitioners who are treating patients with Lyme Disease and/or Autism spectrum disorder.
Many suggest holistic approaches but most are also well trained and knowledgeable about all Rx and when to use Rx (or combine with support measures). -
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Keebler
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- In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD or LL ND should know about: ----------
-------------- An Olive Leaf formula (that contains Terminalia chebula):
My ND (naturopathic doctor) recommended MYROLEA B. Most naturopathic doctors and acupuncturists know about the Seven Forest formulas. As this is a combination formula, there are ingredients included to help the body with "clearing heat" and metabolizing toxins.
Myrolea-B (White Tiger) is a simple formulation of highly concentrated extracts from four Chinese herbs and one Western herb.
The Chinese herbs include forsythia and lonicera, two of the key ingredients of Ilex 15 (and the main antiviral ingredients of Yin Qiao Jie Du Pian), thus boosting the dosage of these essential ingredients.
Myrolea-B also contains the antiviral agents scute (huangqin) and terminalia (hezi). The Western herb in this formulation is olive leaf, which is one of the primary anti-viral herbs derived from the European tradition.
SHUANGHUANGLIAN: Potent Anti-Infection Combination of Lonicera, Forsythia, and Scute - by Subhuti Dharmananda, Ph.D., Director, Institute for Traditional Medicine - 2003
Shuanghuanglian (SHL for short) is a modern formula that was devised in the 1960s to treat a variety of infections. It is comprised of the alcohol-water extracts of three herbs: lonicera (shuanghua, often called jinyinhua), scute (huangqin), and forsythia (lianqiao). . . .
. . . One of the early preparations of the SHL was a tablet made of equal proportions of the extracts of each herb. This was used to treat leptospirosis, a disorder caused by a spirochete bacteria, related to the organism that causes Lyme disease.
Leptospirosis causes initial symptoms of fever and chills, headache, and muscle ache (especially in the shoulders); these are consistent with "flu-like" symptoms described for the onset of many acute infections.
In a 1971 report, the formula was described as being made in 500 mg tablets derived from 3.7 grams of the crude herbs, and being administered in doses of 10-15 tablets (thus, equivalent to the extract of 37-55 grams of herbs) every 6 hours (1), a very high dosage.
. . . Recently, Shuanghuanglian has been applied successfully to treatment of Coxsackie B3,
. . . The general indications for SHL . . . are "relieving the exterior syndrome, clearing away heat and toxic material," and its indications are "treatment of fever, cough, and sore throat that arise from wind-heat syndrome."
It is said to have "a good action in treating upper respiratory tract infection, tonsillitis, laryngopharyngitis, pneumonia, acute enteritis, viral dysentery, etc., when caused by virus or bacterial infection."
- full article at link above.
===================
Detail from one of the most reputable sources of OLE:
SEAGATE Olive Leaf Extract - also see their menu for all their OLE products, including nasal spray, personal spray, etc.
Excerpt:
Side Effects:
Olive leaves have been used safely for thousands of years. The only known side-effect is the possibility of a HERXHEIMER reaction, an allergic response caused by the rapid die-off of fungi that release toxins which may temporarily cause a brief allergic reaction, lasting for several days.
. . . Are there any contraindications with Olive Leaf Extract?
No contraindications with other drugs have been observed.
** However, Olive Leaf Extract should not be taken with antibiotics produced from yeast / fungus or along with additional amino acids other than those received in your everyday foods. They might cross out each other's effectiveness. . . .
- Full article at link above.
===================================
PROBIOTICS still need to be taken. Take several hours away from OLE (and from all supplements and also from Rx). OLE will negate probiotics if taken too closely together. -
[ 05-22-2011, 12:51 PM: Message edited by: Keebler ]
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lightparfait
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- A post in another thread by Terry K reminded me that I overlooked this - and now don't have energy to make all the fancy links but it can be searched until I (or someone else) comes along with links:
Dr. S of Mold Warriors biotoxin protocol
Search the web for:
"Chronic neurotoxins"
"Mold Warriors" -
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Alix (in the video above) mentioned LOW HEAT INFRARED SAUNA
She did not mention a brand but, for starts, Heavenly Heat is one of the best brands. It has more glass than wood which is best for those with chemical sensitivities.
Some with chemical sensitivities need to avoid certain kinds of woods, even if they are not treated.
Other good wood brands are Sunlight Sauna.
Some High Tech Health models are good but they had a string of bad ones on the market a few years ago with some fake wood products in the back/top that contained formaldehyde. So, if you buy used, inspect every inch of the unit and know what to look for.
INFRARED SAUNA does not directly kill the lyme (it is impossible to get hot enough to kill spirochetes and, actually, too much heat can make them go into the cyst form to protect themselves and you don't want that).
Lower heat - just warmth - is important to lyme patients (as most react terribly to heat). Even low heat with INFRARED can penetrate more deeply, increase circulation which increased oxygen and that helps against infection.
Mostly, though, the INFRARED SAUNA helps with SWEATING, to release toxins, especially from heavy metals (which usually go along with lyme). And that helps the body in so many ways.
For those who cannot afford an infrared sauna, still a warm bath in epson salts is helpful. It will help warmth penetrate, increase oxygen, and promote sweating.
A hot bath is often far too hot for most with lyme. Warmth is good. Twenty minutes is the top time for most at first. See how you feel the rest of the day AND The day after before increasing time or heat. Remember: WARM IS STILL GOOD.
FOUNDATIONAL PROTOCOL for AUTISTIC SPECTRUM DISORDERS
Dr. K and the Dana Gorman www.Thriiive.com Summit and Think Tank
147 pages - September 2009 -
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- Notes from Dr. K's May 2011 Lecture - from Connie Strasheim's BLOG. Strasheim is the author of ``"Insights Into Lyme Disease Treatment" which highlights the work of 13 LL doctors.
This past weekend, [Strasheim] attended a seminar entitled, "A Deep Look Beyond Lyme," which was hosted by the Klinghardt Academy for the Healing Arts.
Dr. K was the main presenter. He was joined by a variety of other medical professsionals . . . .
Following are some brief highlights of this event. The statements are shared in no particular order. For more comprehensive information on the seminar, visit: www.klinghardtacademy.com where DVDs of the presentations can be ordered. . . .
-- lots of detail at the link above and more at the lecturer's site. -
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gwb
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Keebler, welcome back!!! You have been missed!! So glad to see you back with us.
Details may be compiled elsewhere, too. PHA (Public Health Alert) usually has notes from lectures, etc. so that site might be checked over the next week or two - and regularly for all matters of lyme.
posted
I found my LL ND through ILADS. She had trained under a LLMD in the US, so ILADS new about her
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jackie51
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*Night sweats caused by hormonal changes (not Babesia) can be effectively treated with Vitamin D-3
From someone's notes. This is good info for the ladies.
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Keebler
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More educational detail about the presenters can also be found through a Google Search of their names. Some have their own websites. -
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Keebler
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- Someone just asked about: FIR SAUNA
FAR INFRARED (LOW HEAT) SAUNA - an excellent help in many ways, especially to help the body move out heavy metals and other toxins.
Lightens the load on the liver and kidneys, helps with circulation. The low heat FIR saunas are easier on lyme patients as they are easier on the heart and on the various nervous systems - and don't "crash" the adrenal system as can typical high heat saunas.
A FIR Sauna will not kill lyme spirochetes (no humanly tolerable heat can - and we should not get too hot, anyway) but the low heat infrared penetrates deeper into our bodies. This helps in many ways.
Heavenly Heat Sauna is one of the best manufacturers, especially for those who are chemically sensitive (as are many lyme patients).
Heavenly heat is very careful in the materials used and one model has more glass and less wood that can be reactive to some.
You also want to be sure to avoid toxic stains, glues - and manufactured wood or plywood (inside or out).
There have been many threads in the past here on this topic you you might search the archives here: --------
Their Glass model (free of plastic components, too) is the best for anyone with chemical sensitivities. It is recommended by the top doctors for those with MCS (multiple chemical sensitivities).
Note, those with MCS can be very sensitive to certain kinds of wood (cedar, pine, etc.). Be sure the wood frame would be from a kind known to be okay for MCS.
Styrofoam is also not recommended due to out-gassing. Glues, plastics, all that has to be considered.
So, I'm not sure these plans for a DIY light sauna would work for someone with MCS, the IDEA should, just needs to be with materials that are safe for MCS. -
[ 12-31-2011, 01:15 PM: Message edited by: Keebler ]
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GiGi started this thread on 11-01-11 -
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- If you've read posts above, by now, it's clear that lyme patients also often face toxicity not just from lyme or coinfections, but from environmental "stuff" such as heavy metals, certain chemicals, etc.
And, for many, their organs of detoxification are stressed or they may have certain dysfunctions that hamper the body's ability to metabolize and move out toxins.
What You Need to Know About Environmental Medicine
--------------------------
Excellent reputation for years. While they do not treat lyme, they have treated patients who have lyme and helped them work through environmental toxicity issues (along with patients' regular LLMDs' advice, of course): ---------
American Academy of Environmental Medicine - upper left menu to find a AAEM doctor. -
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Keebler
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- A note about LINKS
From time to time, links expire. As a collector of links, this drives me nuts when I'm wanting to go back to look for some detail.
I can't keep up with going back to links I've posted and updating them.
So, when you find research links that have evaporated into thin air, these actions can help connect you:
* Go back to the basics. Try the "guts" of that URL for a home page (usually the beginning part of the URL);
* search Google for key names; or key terms;
* copy and paste the article title, enclosed in quotation marks, or connected with the + symbol between each word.
-- Often, the new link will be an updated version. So, even if an old link goes through, it might be good to search to see if there is an update.
If you find new links for previous ones posted here, it would be so nice to post that detail for others. -
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Keebler
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- Just another reason to find really good doctors who know all about supplements. They can lead you to the very best brands.
I know some brands of vitamins are made in a laboratory but it never occurred to me that some are made from PETROLEUM until I read this article yesterday: --------------
By Tara Parker-Pope - The New York Times - January 20, 2012
Interview with food writer Steve Ettlinger, author of the book ``Twinkie, Deconstructed":
Excerpt:
. . .
Q. What ingredients used in Twinkies most surprised you?
A. Vitamins. I didn't have a clue where they came from, but I suspect that, like me, many people think that they are squeezed from seeds or extracted from bark or something like that.
I found they were, by and large, made from petroleum and fermented in enormous industrial plants mostly in China.
To find out that a lot of my vitamins, and in particular the B vitamins in enriched flour that are in a Twinkie, were made from Chinese petroleum just blew my mind.
Q. How do you get a vitamin from petroleum?
A. Like so many basic chemical processes, it's about breaking down a source material into its essential molecular structure.
If you want a lot of carbon or hydrogen or oxygen from an organic compound, petroleum is not a bad place to start. They manipulate it in various ways to get what they want.
For a chemical engineer, the source of the carbon or hydrogen or oxygen is not that important. It's about the availability and the ease of working with it.
For instance, with something like sorbic acid, which is a common preservative, at one point in the process they need a carbon source, so they hit it with carbon monoxide. I found that dismaying, for what is eventually a food product.
But the chemists kept telling me: ``It's just a chemical reaction. On your table you have two very dangerous chemicals, sodium and chlorine, but they've combined into table salt, which is benign.''
I had to work to shed my chemical-phobia. (end quotes by Steve Ettlinger) . . .
- Full article at link above -
--------- To my shock & deep dismay - this was pretty much the end of discussion about the petroleum derived vitamins. Big Sigh.
And, for all foods that are "fortified" my guess is that this is the source of the vitamins used.
Another Big Sigh. -
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Keebler
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Hyperbaric Oxygen Therapy (HBO) treatment for Borrelia b. infection.
---------------
This is just one of many articles that could be found with a search. -
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Keebler
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- Two problems with lyme: elevated cytokines and mitochondria dysfunction/damage.
(See Wahls links a few posts above - and the Cardiac Thread further up - for more about mitochondria.)
While not about lyme, this article still explains how massage can help those with lyme. Of course, the specific technique would depend upon the individual but do ask up front about the range of styles any LMT can do.
-- program is available now as a CD for PCs and MACS.
The CD includes 14 slide presentations from the Plenary Sessions in pdf format as well as nearly 200 pages of evidence based medicine written submissions to the July 30, 2009 IDSA hearings in Washington in pdf format.
See content at link above.
The CD is fully searchable and is a valuable tool when searching for the evidence underlying treatment recommendations.
Order the CD for $40.00 and $4.00 shipping and handling domestically or $5.00 internationally . . .
Among many presentations, you will find:
Non-Antibiotic Approaches to the Management of Lyme Disease & Coinfections
And
Use of Naturopathic Medicine in Treatment of Tick-borne Diseases -
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CRYPTOLEPIS sanguinolenta -
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- PARASITES?
Parasites also need to be considered but I've not developed a tight set of links.
Parasite worms have been seen in ticks' stomachs that were infected with borrelia.
Some LLMDs are now coming to terms with the need to also address the likelihood of parasites in the overall infection mix. Some do so first, some at various times during treatment.
Typical testing for parasites may not work in this case, though, the "usual suspects" of "normal" parasites should also be considered.
I just don't have links to the articles that I've seen and don't have energy to scout those out.
A search for past post in the LymeNet Archives is good. And:
Gael (posting as glm111 here) has many posts regarding her positive effects in this area. Her posts can be found through the archives. -
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Keebler
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- BUHNER's NEW BOOK IS READY NOW !
Thanks to RiverSpirit for alerting us to the arrival of this brand new edition:
(Going through the Amazon link to the left so that some of the proceeds go to LymeNet):
13-minute video - by ColdUnderstanding Jan 14, 2012
- after other treatment failures, one young woman's successful experience with homeopathy & herbal support treatment.
Just stay with her as she takes us through how she succeeded. She said it "worked miracles" - very authentic. Very hopeful.
(Parental caution for those with young children near your computer as you watch: there are few "adult" words near the end. Totally in context and within reason, yet perhaps not best for young ears.) -
[ 05-18-2013, 11:37 PM: Message edited by: Keebler ]
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Protocol for Borrelia and Lyme Co-Infections & Most Chronic Conditions
Scroll down: COWDEN SUPPORT PROGRAM
Protocol for Borrelia and Lyme Co-Infections & Most Chronic Conditions
The Cowden Support Program (CSP) is a 6-month protocol developed by Wm. Lee Cowden, MD initially for the treatment of Borrelia and Lyme Co-Infections.
Since the protocol helps to resolve the majority of the root causes of most patient's symptoms it can also be used to treat most chronic health conditions.
The Cowden Support Program utilizes 14 different Nutramedix products including 6 Microbial Defense herbals (3 pairs of herbals) that are taken rotationally over at least 6 months. . . .
------------
Good idea to cross search for ILADS authors' thoughts on these and also go to the lyme website: "The Better Health Guy" and search there. -
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- dbpei just posted this at another thread. I had intended to include this book in the sets above but now realize it slipped past me.
Read "Out of the Woods" by Katina Makris.
She is a naturopath from NH who was stricken with lyme and it practically shut down her whole body.
It went to her nervous system and had her bed ridden for quite a while. She was sick for 5 years before finding out she had LD.
She used 'antibiotic herbs' to get well along with lots of alternative treatment such as rife machine and lots of rest.
She is inspirational and I would recommend you read this book. She just spoke in our area. Here is the news segment in Providence area with a short interview.
Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma [Paperback]
Stephen Harrod Buhner
Order now. This title will be released on April 29, 2013.
Quite a long & generous excerpt from Chapter 5 is included in this book page. Just scroll down at the link above. -
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BoxerMom recently started this collection -
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- HBOT - MILD HYPERBARIC OXYGEN THERAPY
Some have seen this be good success for them. Can't build a thread about this, myself, although I did explore it many years ago but could not manage the costs.
I spoke to several, and read journeys of others and was very impressed with this as a key part of the plan. It can also really help antibiotics work better.
It's one of those "had I known sooner" kind of things. Still, it deserves a place here so that it is considered.
There have been several discussion threads about HBOT in the past and can be searched through th archives. Just a couple to get started:
Book: Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease
- by an ILADS LLMD - released Nov. 2013
-----------------------------------------------
A note about articles and books posted here. In my enthusiasm, I want to post as much as I can so that everyone has access to the whole array.
However, that does not mean that everything said or suggested in every article or book is in concert with other experts -- or that everything is fine for every patient.
Other elements of any doctor's education / presentation also have to be considered, of course, when looking for a good LLMD.
I've finally just gotten around to reading larger portions of the book above. I feel it important to note that while the book above has some excellent information . . . the section about exercise can be confusing -- perhaps even dangerous for some. And that segment of the lyme population is not mentioned. So I feel I must.
So be sure to know your body and understand that aerobic exercise can be damaging for those with infection, even if that is being treated. Some can do various levels of activity and move closer to being more active.
But some many not be able to do much and it may not be wise to push if they fall into the "exercise intolerance" category. More detail further into this set:
EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that)
ADRENAL, CARDIAC, MITOCHONDRIA & MYELIN SUPPORT - that all helps movement better work for us
Styles discussed: Pilates; Qi Gong; Tai Chi; Yoga; water; strolling; etc. -
[ 02-20-2014, 04:12 PM: Message edited by: Keebler ]
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-
Dr. Alan MacDonald: Pathologist, Lyme Disease Expert (a top researcher. Although NOT a treating doctor, ALL good LLMDs and LL NDs should know his work)
The Biology of Lyme Disease: An Expert's Perspective - July 2013
Part III - 26 minutes -
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- LisaK just posted elsewhere about this group. I've used them in the past and remember that I did feel far better when on a protocol that included several of their formulas. Excellent blends, good thinking behind them, etc.
Some holistic LLMDs and LL NDs are familiar with them.
Thanks to Tincup who just posted this in another thread. Some excellent presentations for our continuing education. Most are ILADS "minded" as is to the benefit of those seeking truth.
Re: the link for "Infectious Disease and CME Conferences" -- an important list but not limited to ILADS educated professionals -- and not limited to lyme or TBD, still relevant topics.
A top notch LLMD or LL ND would know who is truly lyme educated and who is not. They would know what pieces of wisdom might be able to be extracted from anyone in any connected topic, though, and also what pieces are to be challenged or may not apply to those with lyme / TBD.
For those new to all this start with: www.ilads.org -
[ 02-19-2014, 05:50 PM: Message edited by: Keebler ]
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- Update: thanks to kimmie for posting the article here -- and to those who added their experiences.
Article in the Patriot-News, 2013 - explains some of the politics of treatment and his path . . . .
Excerpt: . . . Recently, Huck traveled to Germany to receive a month of photon light therapy, which is not approved in the U.S. “It uses a quantum mechanics principle to put light photons into the body to boost immunity,” he said.
The therapy, which is standard treatment for Lyme disease in Germany, is said to detoxify the body of bacteria and viruses and promote repair of damaged cells. . . . -
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- PHOTONS - Bringing back up that basic info link:
HEALING LYME WITHOUT ANTIBIOTICS - Conference with top LL doctors
very in depth -
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- Buhner has a brand new book out in a day or two. Amazon, just search. I think it's on co-infections. I'll try to post proper detail later. -
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- Judie sometimes posts this and I just never got around to adding it hear. So, here is it now:
Sept/Oct 2016 -- A poster is inquiring about anyone using these tinctures / capsules. I'm not familiar with them yet thought their website should be included in this thread. Of course, one's LLMD / LL ND is best to guide.
herbal formulas developed by Susan McCamish, used by practitioners with their patients. Susan is a Certified Traditional Naturopath, Nutritional Consultant, and Herbalist . . . . -
[ 10-01-2016, 03:47 PM: Message edited by: Keebler ]
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[taking to the guy] "When you pee, you get this fountain of . . . spraying about . . . " far from the toilet. -
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MASSACHUSETTS Governor Baker Signs Bill to License Naturopathic Doctors in Massachusetts
Boston, Massachusetts, January 12, 2017.
Governor Charlie Baker signed into law a bill that offers licensure to naturopathic doctors (NDs) in Massachusetts. This licensure ensures the safe practice of naturopathic medicine in the Baystate. . . .
The Massachusetts Society of Naturopathic Doctors (MSND)
is the professional organization of Naturopathic Doctors in the Commonwealth. We were founded in 1980 . . . . -
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Licensed States & Licensing Authorities - Naturopathic physicians
Currently, 19 states, the District of Columbia, and the United States territories of Puerto Rico and the United States Virgin Islands have licensing or regulation laws for naturopathic doctors.
In these states, naturopathic doctors are required to graduate from an accredited four-year residential naturopathic medical school and pass an extensive postdoctoral board examination (NPLEX) in order to receive a license.
For information about the Naturopathic Physicians Licensing Examination Board (NPLEX) and the North American Board of Naturopathic Examiners (NABNE), please see our Education page.
Licensed naturopathic physicians must fulfill state-mandated continuing education requirements annually, and will have a specific scope of practice defined by their state's law. The states that currently have licensing laws for naturopathic physicians are:
Ive got a few other one's I've saved which aren't up there anymore. But they list some of her preferred herbs to treat Lyme & co Naturally (she rarely uses antibiotics.)
- Golden Thread Supreme, Smilax Supreme (Supreme Nutrition)
- Artemisinin (liposomal preparations best) (Please note: treatment of Protomyxzoa sp. always requires multiple agents: herbals and prescription antiparasitics even in children. None of these herbals can be used in pregnancy)
[end post by bcb1200] -
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