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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » How about Mayo Clinics?

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Author Topic: How about Mayo Clinics?
Giapetto
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Member # 34458

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I have heard that Mayo will treat lyme effectively, yet in reading their site it seems that they are more concerned with OVERTREATMENT than undertreatment or lack of treatment. I could get to Mayo easier than some places as i could room nearby with family. But, if they are not the best place then it is a mistake to go there. Or..if you all know them to be FIRST CLASS i'll get started. THANKS IN ADVANCE!!
Posts: 37 | From Louisiana | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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NOOOOO... Hold the MAYO!! They admit that they don't "do Lyme." (it's obviously over their heads! [lol] )

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--Lymetutu--
Opinions, not medical advice!
Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

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Do not waste your money! I sent you an private message for a St. Paul doctor.
I was misdiagnosed with lupus from a big midwestern university hospital. My son at age 12 was diagnosed with fibromyalgia from a huge famous clinic. They were wrong. We both screamed of Lyme disease.

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Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.
Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Renae610
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Mayo in MN --doesn't know lyme.
Posts: 2 | From MN | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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-
Echoing: absolutely NOT !

Now, Mayo may be good for some things but absolutely not for lyme or any tick-borne or chronic stealth infection.

They have been beyond negligent with many lyme patients.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Hold the Mayo - absolutely!! Please stay away from there!! Mayo does not have Lyme-literate doctors on staff.

My aunt's neighbor's granddaughter went there and was told to drink strong Starbucks coffee for her diagnosed "acute fibromyalgia"! FYI - Fibromyalgia is not a disease, but a condition resulting from a bacterial or viral infection.

Turns out she had Lyme all along and was successfully treated by a Lyme-literate doctor elsewhere.

So glad we cancelled our son's appointment before making a huge, costly mistake!!
Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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hoping... That is horrible! Glad you escaped the misdiagnosis that was sure to come.

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--Lymetutu--
Opinions, not medical advice!
Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
jimmy1
LymeNet Contributor
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"NOOOOO... Hold the MAYO!!"

Tutu, you just crack me up!
Posts: 251 | From Florida | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Glad to do it, jimmy!! [Big Grin]

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--Lymetutu--
Opinions, not medical advice!
Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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