LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Lyme-literate GI doctor?

 - UBBFriend: Email this page to someone!    
Author Topic: Lyme-literate GI doctor?
Peggy in Maryland
LymeNet Contributor
Member # 10480

Icon 1 posted      Profile for Peggy in Maryland     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's been almost a year since I was diagnosed with babesia. I've been unable to handle babesia meds because of increasingly severe GI problems.

In late 2011 I had bicillin injections for 3 months for Lyme & any other TBD that bicillin will hit (was dx'd with Lyme in 2000 & 2006, so it's there). The bicillin produced no results. So everything may be a babesia problem and I've had no treatment for it.

My symptoms support a diagnosis of Bell's Palsy of the Gut, and a new CT scan does too. But the local GI docs never heard of such a thing, and they're suggesting a motility study. My stomach and intestines started slowing down months ago and now I can't eat at all. So why prove it with another test?

Besides, they say if the test proves reduced motility, they'll prescribe Reglan. Terrible side effects and it does nothing but treat symptoms, if you're lucky enough to avoid tardive dyskinesia.

If there's a doc who understands how TBDs can affect the gut, that could be a lifesaver. Literally. If I continue to be unable to eat, what next?

I'm in Maryland. I'll see my LLMD tomorrow, but he's been saying for months that he doesn't like to think about Bell's Palsy of the Gut because it's so hard to treat. So he's had me remove root canals, do mercury chelation, IgG shots, and herbal tinctures. None of these has helped.

Two weeks ago I suddenly declined drastically, became limited to juice and crackers. But at least I could eat; today it's juice only. Not protein shakes like Ensure--I can't handle anything that heavy. Just juice diluted with water. So I'm in trouble.

Any help would be greatly appreciated. I'll also post this on the "Medical Questions" board just in case.

Posts: 143 | From Maryland | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Terrilth
Junior Member
Member # 37233

Icon 1 posted      Profile for Terrilth     Send New Private Message       Edit/Delete Post   Reply With Quote 
Peggy I sent you a private message.

--------------------
*****

Posts: 1 | From FL | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
Click on "Support Groups" in the upper left-hand corner of the Lymenet page, then the state you are looking for. Contact information will come up. Maybe they can help you.
Posts: 8853 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
GLUTEN?

You mentioned crackers. Just to be sure, I hope your current doctor has suggested DNA / genetic tests for CELIAC.

Even if negative, hope you're on a gluten-free diet as that has saved me from sheer torture of the gut.

Even if not celiac, most LLMDs strongly suggest that those with lyme avoid gluten until a good remission has been achieved.

DAIRY, CORN, SOY ?

I assume you've done avoidance diets with all of these.

PARASITES?

A few LLMDs are now seeing the co-existence of parasites with lyme and addressing this issue. It might be best if you found one who is up to speed on this part of the treatment.


ALLERGIE IMMUN website:

http://www.allergie-immun.de/Englisch/

Good luck.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.