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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » New Jersey LLMD Doctor needed

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Author Topic: New Jersey LLMD Doctor needed
Viraj13
Junior Member
Member # 46859

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Hello
My 2 initial tests for Lyme have come as +ve for lyme 41igm antibody so i was thinking of consulting LLMD doctor .
can you please suggest Lyme doctors in New Jersey or NYC areas
Thanks a lot for the help

Posts: 4 | From New Jersey | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
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Do you have a positive just on band 41? Are all of the other bands negative? On both tests?

Do you also have symptoms of lyme?

I ask because lyme doctors are very expensive. And, the symptoms are all important--moreso than the test results.

Doctors diagnose lyme mostly based on symptoms. See the symptom list on pages 9-11 of the Burrascano Lyme Treatment Guidelines found here:

http://www.lymenet.org/BurrGuide200810.pdf

With test results like yours, you want to have some clear lyme symptoms before spending the big bucks to get the opinion of a lyme doctor.

My husband was tested for lyme by an outstanding lab (Igenex in California--they specialize in tick-borne diseases). He had a positive just on band 41. He had no lyme symptoms.

That test was done 11 1/2 years ago and my husband is still as healthy as ever. He has never gotten sick with lyme.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Viraj13
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Hello
i have had only Igm 41 band as +ve and my PCP has prescribed me 14 days doxy
my sumptoms : I have had fainting episodes 2 times and heavy headedness and sinking feeling. so just for my peace of mind want to take second opinion from LLMD
Thanks for the help

Posts: 4 | From New Jersey | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
Bitten in Bergen
LymeNet Contributor
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Viraj13 - there's a possibility that you might have the co-infection babesia - what with your fainting and sinking feeling.

My initial symptoms after being bitten were actually from babesia - anxiety, shortness of breath, lightheadedness, heat intolerance, and night sweats.

I am sending you a pm!

Posts: 348 | From NJ | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
Viraj13
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Thanks a lot for the quick reply but that might be a little far for me.Can you please suggest some one from NJ and New York City area

Thanks

Posts: 4 | From New Jersey | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
TF
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I sent you the name of a NJ doctor. But, since my info on her is old, contact some lyme support groups and see what they are currently saying about her.

See Support Groups on the left side of this page.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Viraj13
Junior Member
Member # 46859

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Thanks a lot for the quick reply but that might be a little far for me.Can you please suggest some one from NJ and New York City area

Thanks

Posts: 4 | From New Jersey | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
www.lyme-aware.org/new-jersey.html

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8928 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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