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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Wisconsin or Minnesota LLMD needed

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Author Topic: Wisconsin or Minnesota LLMD needed
RoadLessGraveled
Junior Member
Member # 47111

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I'm in Northern Wisconsin, fairly close to Minneapolis and St. Paul.

Neg for Lyme on standard tests, but symptoms of nausea, fatigue, brain fog, cold hands/chills, balance and joint pain resolve with antibiotics. First course was doxy, until I had a possible brain inflammation reaction, switched to Moxie, and have done 3 courses of it, from 10 days to 45 days, and problems resolve each time...and return soon after stopping. Within 2 weeks I'm too sick to work. Doc is an ok guy, and will give me anything I ask for, pretty much...but I told him the symptoms are back, and I didn't want more Amoxicillin...and didn't know what else to suggest trying. He referred me to Rheumatology, so I'm guessing he is looking at an auto-immune condition.
After years of dealing with this, I'm about ready to give up.

Posts: 2 | From United States | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for WI & MN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/WisconsinLyme/info

https://groups.yahoo.com/neo/groups/MinnesotaLyme/info

Maybe they can help.

Some more resources for you:
www.lyme-aware.org/wisconsin.html
www.wisconsinlyme.net

www.lyme-aware.org/minnesota.html
http://mnlyme.com

http://www.lymenet.org/SupportGroups/UnitedStates/Wisconsin/

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/

Dr. H, the top LLMD, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

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behealthyagain
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There is an Illinois lyme facebook (closed) group. You may want to join that group - they are very helpful and will Pm you info regarding docs. Some see WI docs...
Posts: 27 | From midwest | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
RoadLessGraveled
Junior Member
Member # 47111

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I've made an appointment for next week with a LLMD in *** Wi. Looking forward to it.
Thanks for the help, good people!

***edited name of LLMD's city per LN rules. Feel free to share thru PM's***

[ 12-03-2015, 10:30 PM: Message edited by: Lymetoo ]

Posts: 2 | From United States | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
   

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