posted
I'm in Northern Wisconsin, fairly close to Minneapolis and St. Paul.
Neg for Lyme on standard tests, but symptoms of nausea, fatigue, brain fog, cold hands/chills, balance and joint pain resolve with antibiotics. First course was doxy, until I had a possible brain inflammation reaction, switched to Moxie, and have done 3 courses of it, from 10 days to 45 days, and problems resolve each time...and return soon after stopping. Within 2 weeks I'm too sick to work. Doc is an ok guy, and will give me anything I ask for, pretty much...but I told him the symptoms are back, and I didn't want more Amoxicillin...and didn't know what else to suggest trying. He referred me to Rheumatology, so I'm guessing he is looking at an auto-immune condition. After years of dealing with this, I'm about ready to give up.
Posts: 2 | From United States | Registered: Dec 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8728 | From Illinois | Registered: May 2006
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posted
There is an Illinois lyme facebook (closed) group. You may want to join that group - they are very helpful and will Pm you info regarding docs. Some see WI docs...
Posts: 27 | From midwest | Registered: May 2011
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