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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » NY LLMD Needed

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Author Topic: NY LLMD Needed
lifeinpieces
Junior Member
Member # 47327

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Hi all! I am new to posting, please forgive any transgressions!

I need to find an LLMD, preferably on Long Island, but a great integrative LLMD anywhere in the tri-state area would be greatly appreciated!

I would also love any referrals to LLND's in the same area!

I have late stage neurologic Lyme, Babesia and Bartonella.

Despite fairly aggressive and lengthy treatment by an LLMD closer (not close!) to where I currently live, I am worse than ever, and that now equals bedridden and suffering severe cognitive impairments.

It appears that my best option is a temporary move back to Long Island. I have a needed support system there, along with much better Lyme-informed health practitioners in general.

Thank you, and I apologize for the lengthy post!

Posts: 1 | From Madisonville, LA | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for LLMDs/LLNDs in CT.

So sorry you are going through this. Your post was written well - no "transgressions"! I think moving where you have a good support system is key to getting better.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 02:23 PM: Message edited by: hopingandpraying ]

Posts: 8928 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Bitten in Bergen
LymeNet Contributor
Member # 34067

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pm sent.
Posts: 348 | From NJ | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
   

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