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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD desperately needed in NC

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Author Topic: LLMD desperately needed in NC
abitconcerned
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Located near Raleigh, but willing to travel, if needed. Enjoyed several wonderful years in a remission, but have gotten over my denial and realize I am in a raging relapse.

I don't have it in me to go from doctor to doctor anymore...just need the best. Thanks in advance for any direction provided.

Posts: 13 | From New Hill, NC | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome back to Lymenet! PM sent for NC & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NorthCarolina/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

[ 05-06-2016, 02:12 PM: Message edited by: hopingandpraying ]

Posts: 8727 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
TF
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I sent you a name and lots of information.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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You may need to travel outside of NC to find the best.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94694 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
abitconcerned
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Thank you TF and hoping&praying!
Posts: 13 | From New Hill, NC | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
   

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