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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Need LLMD, willing to travel!

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Author Topic: Need LLMD, willing to travel!
missyd
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Member # 48722

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I am needing to find a LLMD doctor for my husband as soon as possible. We live in Tennessee but are willing to travel wherever necessary to get the best treatment. He has been being treated to some degree, but the treatment he has been receiving hasn't helped.

We've decided it is time to move on to a doctor more familiar with Lyme. He is becoming sicker everyday so we need to get him with a good doctor as soon as possible! I appreciate any suggestions you have for us. As with most people with Lyme, we've reached a point of desperation!

(breaking up the post for easier reading for many here)

[ 09-11-2016, 03:26 PM: Message edited by: Robin123 ]

Posts: 6 | From Tennessee | Registered: Sep 2016  |  IP: Logged | Report this post to a Moderator
me
Frequent Contributor (1K+ posts)
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Sent you a private message with a recommendation.

--------------------
Just sharing my experiences, opinions, and what I've read and learned. Not medical advice.

Posts: 1431 | From USA | Registered: Mar 2015  |  IP: Logged | Report this post to a Moderator
TF
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I sent you a name. And, you will see the doctor, not Physicians Assistants. I think you will be very happy with this doctor.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for MD.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TennesseeLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Tennessee/

The top LLMD, Dr. H, has written a book titled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.

Posts: 8888 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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