LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » CT or RI LLMD - Please?!

 - UBBFriend: Email this page to someone!    
Author Topic: CT or RI LLMD - Please?!
Pat W.
Junior Member
Member # 49925

Icon 1 posted      Profile for Pat W.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hello! I have been sick most of my life (since age 9 y.o. - I'll be 59 tomorrow). Treated once long-term for Lyme (2.5 years), and was dramatically better - but all of the symptoms have returned and the original treating doctor will not do so again. I am dying...that is not an exaggeration...and I need help...please!?

My PCP is very nice, but sends me to specialists - I'm up to 5 now. They all find "something" wrong within their expertise, but I know that Lyme is the umbrella under which everything else exists. Thank you!

Posts: 2 | From CT | Registered: Feb 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8984 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Pat W.
Junior Member
Member # 49925

Icon 1 posted      Profile for Pat W.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you Hoping & Praying!! I'm sitting here sobbing at just the thought that there might be help! Thank you!
Posts: 2 | From CT | Registered: Feb 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
You're very welcome - glad to help.
Posts: 8984 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow, Pat, 50 years, you're a trooper!

Happy Valentine's Day to you - we'll help you here. You can post in Medical Questions and General Support and people will discuss with you.

You can also use the Search function at the top of the page and type in any word or phrase and archived threads will come up. Just know we're all different when it comes to how we respond to remedies and the trick is to find what works for us.

Lyme gets treated in 3 areas - kill/deter the organisms, detox, and fortify the body. All areas get discussed a lot here!

Plus many have co-infections - you can google for symptoms of babesia, bartonella and ehrlichia and see whether you think you have any. If so, they get treated too.

Posts: 13117 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Nancy2
Frequent Contributor (1K+ posts)
Member # 95

Icon 1 posted      Profile for Nancy2     Send New Private Message       Edit/Delete Post   Reply With Quote 
P.M. Sent!
Posts: 1487 | From New England | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.