I have had 3 lyme tests in 2 yrs and all came back neg. I have every symptom now of chronic lyme and would like to see a doctor that specializes in Lyme.
Posts: 1 | From Suffolk, Long Island | Registered: Jun 2020
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Could you please get a copy of your previous Lyme test results? Very important. Could save you money for future specialized testing. Many LLMD's will diagnosis you on certain reactive bands from your past test results,
You need to get your finances in order as your 1st visit with LLMD will be the most costliest, appointments can last up to 3 hours. Be sure to bring results of all testing done, all procedures, all providers, all medications, all symptoms, diet. Write down everything during your appointment in a journal so you can refer back to it.
Connect with your local Lyme support group. Members have first-hand experience and feed-back on your area's LLMD's. Any referrals for LLMD's should be throughly researched. You can google for patient reviews. Here is your local Lyme support group;; https://m.facebook.com/Lilalongislandlymeassociation/about/
There is so much to learn but LYMENET members will help you. Any questions you may have, please post in open forum and a lymenet member will answer. Be sure to utilize Lymenet's 'search' function located in the middle of the home page. There is no other website that covers all things Lyme posted by actual Lyme patient's experiences and suggestions.
I will send you a private message. Good luck on your healing journey.
Posts: 2041 | From Florida | Registered: Nov 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.