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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Recommending this LLMD in Southeast PA

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Author Topic: Recommending this LLMD in Southeast PA
xoxoxox
LymeNet Contributor
Member # 18778

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Hi -
Just wanted to put this out there as an option for people in the SE PA area:

I recently started with a new LLMD in PA to treat Bartonella and I already have more confidence in him than my last LLMD. He seems very knowledgeable, understanding, and compassionate. The office staff are friendly, professional, and helpful.

Something surprising was that while he offered to order tests, he acknowledged their inaccuracies and said it might just waste money - that it was clear Bartonella was the culprit based on my symptoms/issues. This was a relief as I was dreading having to spend $1,000+ on Galaxy Lab tests.

Office visits are $180 - so not too expensive, relatively speaking. He often treats the Amish & Mennonite since his office is out in the area of Lancaster/Lebanon counties. I believe this is why his rate is so reasonable as it's hard to get significant dollars from people who live on a pittance.

It's an hour and a half drive for me but will be worth it. My visits will occur every two months, along with monthly blood test checks. Plus, I intend try to recoup some of the "out-of-network" cost from my insurance, if able.

PM me if you would like his name/number.

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Danni

Posts: 306 | From Glen Mills, PA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Good morning xoxoxox

Yes, I would like the name of this wonderful LLMD to add to my lists.

So happy you found a more adorable option, most LLMD's are so expensive it causes many Lyme patients to go without treatment. I still can't believe we do not have insurance coverage for LLMD's. MAKES NO SENSE!

Also a favor to ask. .
There is a new poster who is looking for LLMD near Philadelphia for her 15 year old son who is struggling. [group hug] Mainstream medical doctors are offering no help for this family. Could you please pm the name of the LLMD too?

Thank you so much. [group hug]
We are all in this together.

Posts: 2061 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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XO ... Someone also PM'd me for the name of a good doctor in Central PA.

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--Lymetutu--
Opinions, not medical advice!

Posts: 94393 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
xoxoxox
LymeNet Contributor
Member # 18778

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PMs sent to you both [Smile]

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Danni

Posts: 306 | From Glen Mills, PA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
xoxoxox
LymeNet Contributor
Member # 18778

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Also, to note - this office does accept some insurances, just not mine (Aetna) so do ask about that!

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Danni

Posts: 306 | From Glen Mills, PA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Thank you Danni
So very nice of you!

Posts: 2061 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
InUsITrust
Junior Member
Member # 52163

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Any referrals for a Lyme literate MD in SW PA?
Pittsburgh or surrounding area?

New to this, but reading A LOT and already seems like I need to find a LLDR to cut to the chase.
Any help appreciated, sorry to use this post but it already focuses close to where I'm looking.
Thank you, Brian

Posts: 1 | From Pittsburgh PA | Registered: Jul 2020  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Welcome to Lymenet InUsITrust

You can request a LLMD through ILADS (International Lyme and Associated Diseases) here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://globallymealliance.org/education-awareness/find-medical-professional/

I will send you a private message.
Be sure to research each LLMD. Search for patient reviews. Connect with your local Lyme support groups. Lyme sufferers in your area will provide their first-hand experiences and offer valuable information to help you navigate the best way foward.

Here is your area's Lyme support group;
https://pghlyme.org/

Also ulitize lymenet's 'search' function located in the middle of the page for all things Lyme. It is another tool in your arsenal box . Feel free to post any questions you may have and a Lymenet member will respond with their experiences.

Healing wishes.

Posts: 2061 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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InUsITrust - Welcome to Lymenet!

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

I don't have any names of LLMDs for you in SW PA. Contact the Pennsylvania state Lyme Support groups. They would know better about PA and might be able to help you.

www.lymepa.org

http://whatislyme.com/lyme-in-pennsylvania/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Read the books written by the top LLMD, Dr.H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy them used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

[ 07-27-2020, 11:27 AM: Message edited by: hopingandpraying ]

Posts: 8671 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
LisaK
Frequent Contributor (1K+ posts)
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Bonnie, that list (I find) on ILADS is not really up to date, unfortunately. and although there are many drs listed , some are NOT lyme friendly, meaning they seem to be into it for money or are not very qualified as others might be, etc.

I thought ILADS would have the best of the best on there. so I was disapointed - more than once.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3354 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Sorry LisaK

Did you fill out the e-mail to ILADS at the link above?
I haven't heard it was out-of-date, I will look into it.

Did you try Global Lyme Alliance link?
https://globallymealliance.org/education-awareness/find-medical-professional/

How about Lymedisease.org fior physician referral;
https://www.lymedisease.org/find-lyme-literate-doctors/

Anyone who is reading. . . .
You must research all LLMD's referrals sent to you.
To do this, Google for patient reviews or connect with your local Lyme support groups. A good LLMD is one who devotes a majority of his/her medical practice to Tick Borne Infections and has treated for atleast 10 years. This iwill give you the best chance for sucess.

Posts: 2061 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
marie
LymeNet Contributor
Member # 3980

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TF had a lot of information on the llmds with patients experiences. Wish she would return to site.
Posts: 359 | From southern new jersey | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
   

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