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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD San Diego

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Author Topic: LLMD San Diego
ElDuderino
Junior Member
Member # 52244

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Hello, I am in need of a LLMD in San Diego area. Would love if I could get some recommendations. I do have a list form LymeDisease.org.

about me:
Beginning with what I thought were just 'bug bites' and the flu at the end of December 2020- I subsequently developed many new symptoms over 2020: Salivary, tonsil, and neck pain; shoulder pain, shin pain, heel pain, and muscle pain in abs, hips, legs, and between ribs. Predominately unilateral.

Urgent care gave me amoxicillin, flu shot, and test for Lyme. Negative test by ELISA, but from reading up on Lyme and similar diseases like bartonella; I am not ready to disregard the possibility of infection. Any help, guidance, and support is appreciated.

Posts: 3 | From San Diego Ca | Registered: Nov 2020  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet ElDuderino

Here is a questionare developed by a top LLMD for Lyme;
http://www.lymeactionnetwork.org/wp-content/uploads/2015/06/MSIDS.pdf

Here are some Lyme Stats;
http://lymestats.org/

Please download and save so you can refer back to it as it contains a detailed treatment plan that most LLMD's follow. It's called "Advanced Topics in Lyme Disease";
https://lymediseaseassociation.org/wp-content/uploads/2009/08/BurrGuide200810.pdf

You can request a LLMD through ILADS here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://globallymealliance.org/education-awareness/find-medical-professional/

These are simple E-mail formats that you fill out and they send you LLMD's referrals. It is important that you research each LLMD. To do this, Google for patient's reviews. Another way is to join your area's Lyme support groups. Support group members have first-hand experiences and will gladly share info. Here is a support group near you;
https://rawlsmd.com/lyme-support/united-states/california/san-diego-lyme-alliance

Be sure to utilize Lymenet's 'search' function located in the middle of home page. It contains the MOST vast knowledge of Lyme patient's experiences all in one place. And of coarse, if you have any questions, feel free to post and a Lymenet member will respond. We will help in any way.

I will send you a private message.

Please watch "Under Our Skin", a documentary about the struggles Lyme patients face while trying to get diagnosised and treated for Tick Borne Infections.

https://vimeo.com/221710454

Posts: 2137 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Robin123
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Hi - I'm sending you a private message -
Posts: 13002 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Hi! Welcome to Lymenet!

I don't have any LLMDs to recommend to you in San Diego, CA. I'm sure poster Robin123 has provided some names for you.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Contact the CA Lyme Support Groups - maybe they can help. They would know better about CA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/lyme-in-california/

http://www.lymenet.org/SupportGroups/UnitedStates/California/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy them used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

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ElDuderino
Junior Member
Member # 52244

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Thanks for all of the replies and messages [Smile] this is really encouraging.
Posts: 3 | From San Diego Ca | Registered: Nov 2020  |  IP: Logged | Report this post to a Moderator
   

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