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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Live in Michigan, can travel, need EXPERIENCED LLMD

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Author Topic: Live in Michigan, can travel, need EXPERIENCED LLMD
Katbiz
Junior Member
Member # 52348

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I am being treated by out of state practitioner, integrative but had 4 cycles of 3 abx, plus some other stuff, don't want to give too much detail here, but I am in a lot of pain and on a two-week break from treatment because of the burning pain per their suggestion and very confused. Looking for an extremely knowledgeable doctor with lime and co-infections, would like in Michigan but I don't think there are any and willing to travel some. Thank you!
Posts: 1 | From Michigan | Registered: May 2021  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet Katbiz

Is the Integrative Doc you are seeing an ILADS trained LLMD?

LLMD’s that are ILADS trained (International Lyme and Associated Diseases Society) generally follow the treatment guidelines by world renowned Dr Joseph Burrascano;
http://lymenet.org/BurrGuide200810.pdf*

You can request a LLMD through ILADS here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

These are simple e-mail formats that you fill out and they contact you with LLMD’s in your area.LLMD’s


It’s important that you research all LLMD’s referers as to how they treat Lyme and co-infections. To do this google for patient reviews. Also join your area’s Lyme support group(s) for first-hand patient experiences with your area’s LLMD’s.

Minnesota Lyme Association
https://mnlyme.org/

Please utilize Lymenet’s ‘search’ function located in middle of home page. It contain invaluable info on all things Lyme related. Or if you have any questions, feel free to post in open forum and a Lymenet member will answer with their experience and hard taught knowledge. We are all in this together.

I will send you a private message.
Healing wishes

Posts: 2182 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Michigan Lyme Support Liaison
https://thelymeclinicofmichigan.wordpress.com/support/

Posts: 2182 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for OH & IN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between - you need to go where they are. At least half of all Lyme patients go out-of-state for proper treatment.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Contact the MI Lyme Support Groups - they would know better about MI.

http://whatislyme.com/lyme-in-michigan/

www.mlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy them used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

Posts: 8770 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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