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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in Buffalo Niagara Falls, NY area

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Author Topic: Seeking LLMD in Buffalo Niagara Falls, NY area
RedRosie
Junior Member
Member # 52689

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Hi,

Searching for an LLMD in or near Buffalo Niagara Falls NY area. Willing to drive a few hours, if need be. I have a name of a Buffalo doc but they have bad reviews.

I was diagnosed in 1996 in NYC, but had to move home immediately to Niagara Falls and was never treated. Doc here said it was depression at the time.

I suspect my current illnesses stem from that, but can't get anyone I have seen in all these years to truly help me...

Thank you

Posts: 1 | From Niagara Falls NY | Registered: Mar 2023  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so you need to go where they are.

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

This is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.

Contact the NY Lyme Support Groups - they would know better about NY.

https://whatislyme.com/lyme-in-new-york/

http://empirestatelymediseaseassociation.org/

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy them used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

Posts: 8937 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Hi RedRosie

You can request a LLMD through LivLyme Foundation here;
https://livlymefoundation.org/resources/doctors/

You can request a LLMD through Global Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

These are simple e-mail formats that you fill and send.
The organizations will respond with LLMD’s closest to you.

I will send you a private message.

Posts: 2789 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Lyme Western New York Facebook Group
https://www.facebook.com/LymeWNY/

There is an upcoming Lyme Support meeting this Wednesday in West Seneca. They can definitely help you in finding the right LLMD practitioner in your area. Hope you are able to check it out. 💚

Posts: 2789 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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