LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter

The Lyme Disease Network receives a commission from for each purchase originating from this site.

When purchasing from, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » I'm Sick of being Sick

 - UBBFriend: Email this page to someone!    
Author Topic: I'm Sick of being Sick
Junior Member
Member # 15398

Icon 1 posted      Profile for marsva   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hello, I'm Marsha I live in SW Virginia.

While traveling on an extended camping trip in 2006 I was bitten by a tick in Mass.

I got very ill very quickly and was hospitalized in the Boston Area by July 4th.

I don't have a spleen, thanks to an earlier vacation fiasco so the Lyme disease progressed very quickly and I was VERY ill.

I had the bulls eye and about every other symptom. Fortunately because I was in the Boston area I was quickly diagnosed and treated aggressively with intravenous antibiotics for one month.

I have never really been well since then.

I sometimes wonder if the antibiotics are partially responsible for what appears to be auto-immune problems.

I have joint pain, worse when the barometric pressure is low, headaches, tiredness.

At times I am quite sick but when the pressure is high I feel quite well and am able to go out in the garden and work and feel pretty good.

I try to fit my life into my "good days". I have been going to my nurse practitioner that I have been seeing for 20 years.

She is sympathetic but all she can really do is refer me to rheumatologists or neurologists.

At one time she tried to get me referred to an infectious disease specialist, but apparently I did not meet the criteria. (How can that be...I had just previously been diagnosed with Lyme Disease)

Yesterday I had an appointment with the rheumatologists and all they can do for me is give me a prescription for Naprosyn and wants to redo the blood tests.

There are no Lyme Disease Doctors in this area. I am going to be making a trip to the Boston area in about a month.

Do any of you know of a LLMD in the New England Area that you love??? I don't mind making the trips to that area as long as I am talking to someone that understands Post Lyme Syndrome.

Thank you all for your time.
Wishes of wellness to you all!

[ 07. May 2008, 07:11 PM: Message edited by: marsva ]

Posts: 3 | From SW Virginia | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
There are a number of good LLMD's in Virginia.

your problem is not from the antibiotics, it's from gross UNDERTREATMENT.

Most Infectious Disease doctors will NOT help a Lyme patient. Welcome to our world of insanity!!

Your best bet is to be treated in VA, not Mass.

And as you found out, rheumatologists are also clueless!

I will send you a PM!

Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 10300

Icon 1 posted      Profile for lou4656     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sent a private message.


Posts: 1276 | From maryland | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator

Quick Reply

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins

Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:

Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA

| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.