posted
Hi everyone...i've been dealing with Lyme's for over 2 years and have had no success with the 8 doctors I've seen during that time. Are there are any lyme's specialists in Central or North New Jersey or New York City areas? Any recommendations would appreciated.
Thanks John
Posts: 3 | From nj | Registered: Jul 2008
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Were the 8 docs LLMD's?
-------------------- Mathias Posts: 1246 | From New Jersey | Registered: Feb 2004
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bettyg
Unregistered
posted
welcome john; so glad you found us.
ny and nj both have MANY llmds, so lets try to narrow this down quite a bit shall we!
please send me a private message, 2 people standing together, and give me the below info on all 8 drs. you HAVE SEEN AND DOCTORED WITH:
first/last names
city/state
then i'll check my lists to see IF they are ILADS/LLMDS ... lyme literate mds or NOT! *******************************************
also read the above posts about posting, and i ask specific questions, please copy them and EDIT your top post .... paste the questions, and please answer the 3-4 questions ok! that will help us give you better info based on your info!
edit instructions are below.....
and please list the 4-6 LARGEST CITIES WITH CLOSEST ones to you being LISTED first ok!
and then change your subject line to the LARGEST CITY IN NJ, show that name, NJ, and we will send info. **********************************
i will not be sending you 2 states full of info since they have so many each! you are blessed to have that many.
15-18 states, like IOWA, do NOT have any llmds; so count your blessings
*********************************
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! ******************************
we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics.
*******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
please go to dr. burrascano's 05 lyme treatment guidelines and print out pages 17-18 ,,, where it talks about dosages for KIDS and adults!!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. ***************
I want to make sure we have whoever on our NATIONWIDE LLMD list, which I have also with 12 other folks.
If you call any of the names where we do NOT have complete info, please ask the following and furnish me when you are done so we can add it to our nationwide llmd lists!! THANK YOU!
if you end up calling any above WITHOUT COMPLETE INFO, would you get the following IF possible from them??
we need full name SPECIALTY street addy city, state
phone no. fax no. web site or email if possible
cost per hour for 1st visit cost for followups
do they take insurance? what kind? treat by IV or ORAL?
thanks for helping us add to our drs. of around 300 nationwide who are LLMD! *****************************************
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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