Some quick info: I was diagnosed with Lymes 10 years ago. I personally feel based on the severity and length of my symptoms I was in a later stage yet was only given the normal 21 day script. I never really got better after that and I was diagnosed with Lupus and RA later that year. I have never received relief for any of my symptoms. I have never received treatment for any of my symptoms. I recently was REdiagnosed with Lymes and put back on the same 21 day script. I do not feel this will suffice because I genuinely feel I have been misdiagnosed and had Lymes all along. I would love to see a specialist who knows what he/she is doing when it comes to treatment of Lymes. My GP obviously does not. Any help would be greatly appreciated!!
Posts: 40 | From NJ | Registered: Jun 2009
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check your profile above for my pm to you on NJ llmds
sorry, i can't read continuous text as you posted; we severe neuro lyme folks need short paragraghs and double spacing between each one; see my guidelines below to edit your post.
then more of us will be able to help and answer any questions you may have posted above ok.
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
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