I posted here once before I lived in another state some nice poster sent me a Docs name...but I have moved & now need a LLMD in San Diego CA.
I have been dxed with some autoimmune stuff in the past, I have had symptoms of lupus or a mixed connective tissue disorder all my life.
But have just seen my first natropath, willing to re run my lyme labs. The western blot came back positive. They may or may not be able to treat me, so I would like to know of other Drs in the area in case this one cannot help me. Thank You!
Posts: 14 | From CA | Registered: Sep 2008
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posted
msalilea, Good to see you back. We will be happy to help you find a LLMD near the San Diego area. Please check your PM for names.
iseekids
-------------------- Please remember that I'm not a Medical Doctor. Research, then make up your own mind. Reputation is what men and women think of us; character is what God and angels know of us. Thomas Paine Posts: 185 | From SW Missouri | Registered: Dec 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check your private messages for the LLMD list for CA and do join in the discussion
in our ``medical section'' for additional help, education and support. It's a great place to learn more about this illness.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, msalilea, and welcome to our site. As you already know from your past experience we have the names and info you need. Glad you turned to us.
I think natropaths are great and seeing one is never a bad idea, however, I do think that having a llmd is vital. The llmds are the "true" lyme drs. they have all the knowledge and experience when it comes to lyme. It is only my opinion, because I am not a dr, or even close to it, but I think you are doing the right thing by going to an MD but still can see a good natropath. Maybe this diagnosis of lyme disease will be the answer to many things you and drs suspected in years prior, this could be the culprit in being misdiagnosed in the past, it certainly would not be the first time! Good luck to you and I wish you great health!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ----------------------------------------------------
I found Turn the Corner Foundation through the website for the Under Our Skin movie. Here is the link for their website. At the bottom of their webpage there is a link to click if you are interested in getting help finding and LLMD.
I emailed them for help and got a response with the names of over 10 LLMDS in two states in less than a days time. What an incredible blessing! Thought I'd pass it on. By member Aimee, 7.11.09 ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
UNDER OUR SKIN dvd LYME DISEASE documentary, www.lymediseasefilm.com go to this site to view trailer of UNDER OUR SKIN 5 min. Clip! Premiering 2008!! on big screen 09 in 10 LARGE CITIES ONLY!
* Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it's meant to be informed PRIOR to going into having various tests done and then be told what the costs will be! * Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.
* Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes
* The below tests were done for ME; you MAY NOT NEED them all ok! :
* western blot IGM & IGG, this is MANDATORY for you which costs $200 total for 2 tests done; 6.09 same prices still. * * ******************************************************* * OPTIONAL ONES ARE:
* co-infection panel for YOUR AREA OF COUNTRY; * PCR WHOLE BLOOD...this is what my LLMD ordered!
It's PREPAY! unless you are on medicare; IGX will file the paperwork & it's FREE to you.
go to www.igenex.com and read over their info. Prices go up twice a year: MAY and NOVEMBER!!
* * have blood drawn MON. or TUES. only; you don't want your blood sitting in post office over the weekend; will ruin the results!
* Also, call 1-800.832.3200 for CURRENT PRICES! * They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive!
* You need to DOWNLOAD IGENEX's required form.****************************************************** * * MD, DO ,ND, AC, DC are all fine** must sign, date, and show DIAGNOSIS CODE on there why he's ordering the test.
Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg * * When you get your results, please post them in MEDICAL; * Post ONLY the POSITIVE & IND ones .... not the negative ones!
GET COPIES OF ALL YOUR SPECIAL BLOOD TESTS: western blot igm/igg and/or co-infection tests always!!
OVERSEAS INSTRUCTIONS FOR SENDING TO IGENEX/FRY LABORATORY! 2-23-08
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Hello,
I am also in San Diego and need and LLMD. I am familiar with the one Lyme doctor in SD but am unable to get in. I am willing to go to another city in California or another state. I would prefer a doctor that takes insurance. I can't figure out how to past a new thread under need Dr. so I'm replying to this.
Any advice would be helpful. Thanks!
Posts: 2232 | From USA | Registered: Aug 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Haley PM sent.
Everyone, please start a separate post if you are seeking a doctor, as your request will be missed.
Most times we do not come back and check once a request has been answered.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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msalilea,![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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