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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Need a Lyme neurologist in eastern U.S. fast

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Author Topic: Need a Lyme neurologist in eastern U.S. fast
Neville
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Member # 5890

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Hello,

Looking for a good Lyme neurologist in the eastern U.S. quickly. I'm in Kentucky, but will travel any reasonable distance to get good care quickly.

I have a preliminary diagnosis of CIDP through an EMG test. I have had Lyme 9 years, was treated, was doing well off abx for a few years and now this year have this crazy demyelinating neuropathy. I am back on antibiotics and low-dose naltrexone through my SC LLMD. I have a call in for a request for referral to a neurologist, but it's taking them a long time to get back with me. Too long.

I lost sensation in my face and head today and am very worried about irreversible damage.

Any leads appreciated!

Posts: 37 | From Kentucky USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Abxnomore
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Member # 18936

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Sent PM for Dr. K

If anyone knows of others, please help out.

Posts: 5188 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Neville
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Thanks Abxnomore! Your mailbox is full.

Now have an appt with Dr. K in September. If anyone knows of others, please speak up. If I can get in sooner with someone else I will cancel.

Thanks!

Posts: 37 | From Kentucky USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Abxnomore
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Thanks.....now empty.
Posts: 5188 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
   

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