I have experience writing and I made the decision (vow) to move forward and write a book about LD . . . when I'm more able. How many of you would seriously consider contributing a portion of your story to a book, anonymously? IMO, the best avenue for lyme awareness is reading about what others have gone through and how they reached a final diagnosis. It would definitely an opportunity for your voice to be heard, loud and clear. My LLMD already said he would write the forward to my book. This is a serious inquiry.
I'll keep you all posted and let you know when I get deeper into the planning stages. Currently thinking through the format, but please let me know your thoughts.
I'm trying to brainstorm a title. The title has to peak interest in the so-called CFIDS, fibromyalgia, MS and lupus patients. Just trying to figure out how to get EVERYONE to pick the book up and read it. Hmmmm. What books did I read along the way?
Betty and All:
Will include youngest to oldest; seemingly uncomplicated cases to the very seriously ill.
Ufda, is Norweigan? How 'bout oy, vay? My little Granny used to say that pretty often. Might be a Jewish phrase?
Yes, funds will definitely go to lyme research.
MADDOG, you're a fruit loop! Of course we'll include the hydrants!
Definitely! I already wrote my 6 page story for my LLMD! The whole experience gave me an unbelievable urge to express myself! I would love to contribute,, and I was fortunate to have a "happy ending" - I went from walking with difficulty to doing my best time ever in a marathon 10 months after my first abx. I shudder to think what might have happened if I hadn't found this site-which helped me find my doctor! Thanks everyone!
Sounds like a great plan. Count me in. People need to know of this horrific disease and what not only the lyme sufferer but the family goes through.
Posts: 30 | From MA | Registered: Jan 2005
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