thanks mike

Some of the members who have been here longer than I have can let you know where to find a very useful post which lists dozens of excellent sources of information. (Sorry, I don't know where to find that post!)

In the meantime, you will find a lot of answers to your questions on the rest of this site, and on sites like www.lymeinfo.net, www.lyme.org, and www.ilads.org.

Lyme is a clinical diagnosis and negative blood tests (which commonly occur in confirmed Lyme for a whole variety of reasons, including the insensitivity of the testing protocols which are most often used)do NOT rule out Lyme.

Are you in Canada? if so, there is a website www.canlyme.org which is very helpful. The Canadian campaigners will be able to put you in touch with what we call a Lyme-literate doctor (LLMD).

Tragically the facts about Lyme - how widespread it is, how to diagnose it, how serious it is, and how to treat it - have been spun and distorted massively for political reasons.

That's why ordinary doctors end up believing that the set of symptoms you have described, plus a negative result on routine bloodwork and scans, means there is nothing wrong, and the patient must be a hypochondriac or delusional. You know what you are feeling, and you know it is real. Photograph any symptoms that can be photographed and try to get to a Lyme-literate doctor as soon as possible - even if you don't remember a tick bite or bullseye rash, which occur in less than half the cases, no matter what the spin docs say.

Lisa

quote:

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Originally posted by rizzman:
for the last few years i have suffered dizzy spells lightheadiness memory loss(shortterm) extreme light sensitivity and strange flashing pressure in my head, ....

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WELCOME To LYMENET


Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and
foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Lyme Disease symptoms 2005
Lyme Symptoms 2005
Post for a LLMD in
Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Support Links LLMD's

Lyme State Info Cheryl's
LYME DISEASE TREATMENT & DIAGNOSIS
Cheryl's LDT&D
Lyme Disease Misdiagnosed As ...
Art Doherty Misdiagnosed
Art Doherty Lots a Links

Conflicts in Lyme

How to Search Courtesy of Danq
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TC 50 Questions

TC Warning To Posters

Lida Mattman

DISEASE INFO - COINFECTIONS

Newbie's Lingo

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Dr B's Treatment Guidelines

Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

MP Controversy
MP 2
MP 3
MP 4

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

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MDL
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FDA It is important that clinicians understand the limitations of these tests

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Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.
- = Not Present
+ = Low
++ = Medium
+++ = High
+/- = Equivocal = Indeterminate its there but not as intense as low) )

See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Western Blot
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ABX `s Cross Blood Brain Barrier
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Quote Lida

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Transmission Etc

Transmission Art Doherty

Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections

Good Site Canadian Lyme Disease Association
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MatthewGoss Site
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Killing Lymphocytes By Spirochetes

Wealth of Info

Support
USA Support

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Marnies...... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7

Updated in a Nutshell
For My Friends

Canlyme MAG
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A copy of this is stored in computer Help section.

Updated 04/22/2005

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | 

they can assist and guide you to a physician who will be willing to acess your situation per qua lyme and decide if medical intervention and treatment will be necessary.

lyme tests are often negative, unfortunatley.

you should also read about tick borne co-infections, which are becoming more prevalent and need to be addressed in order to make a full recovery.