LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Deadline 30June for completing survey of Lyme parents falsely accused

 - UBBFriend: Email this page to someone!    
Author Topic: Deadline 30June for completing survey of Lyme parents falsely accused
Lymerayja
LymeNet Contributor
Member # 6839

Icon 4 posted      Profile for Lymerayja     Send New Private Message       Edit/Delete Post   Reply With Quote 

A survey is being conducted of parents who have been accused of "Munchausen's by proxy" or other accusations falsely blaming them for their child's illness. This is the first survey of its kind, and is open to parents regardless of whether the accusations led to action taken against the family, or were dropped.

If you have had an experience of this kind, please take time to complete the survey, as the more Lyme parents who participate, the more accurately it will reflect the problem facing Lyme parents when the results are published.

The survey, by distinguished MSBP expert Dr Helen Hayward-Brown, is anonymised and no identifying information will be used. You can access the survey online by clicking here:
http://surveys.uws.edu.au/msbp/fa.asp

It s a little complicated so please take time to read ths instructions carefully first. Also, although it is lengthy, you can complete one section and then return later (there are 2 mandatory and 1 optional section), but be sure to click the Submit button and receive the confirmatory "thank you" message before exiting or your entries may be lost.

Please act quickly as deadline is 30 June 2005.

Lisa


Posts: 284 | From UK | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
NP40
Frequent Contributor (1K+ posts)
Member # 6711

Icon 1 posted      Profile for NP40     Send New Private Message       Edit/Delete Post   Reply With Quote 
^^^^^^^^^^^^
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
brainless
LymeNet Contributor
Member # 6771

Icon 1 posted      Profile for brainless     Send New Private Message       Edit/Delete Post   Reply With Quote 
Before you provide such very personal information you should seriously investigate the people and the situation.

Even then, you have no idea how the information, held for all time, will be used.

b


Posts: 210 | From lalaland | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Lymerayja
LymeNet Contributor
Member # 6839

Icon 1 posted      Profile for Lymerayja     Send New Private Message       Edit/Delete Post   Reply With Quote 
Brainless, Dr Hayward-Brown is a recognised expert on MSBP and one of the few professionals who have been brave enough to speak out victimisation of mothers with these false accusations (ILADS Dr Virginia Sherr is another one). Anyone can find out who she is and read the material she has published by googling for her name on the internet. She is also very open to people contacting her directly, as you will see from the piece below.

I take your point about people needing to be careful where they send personal info to, and where it may eventually end up. But I feel we have to strike a balance - if Lymies never confide in anyone, not even in those who are fighting a very public fight for their cause, then how will these issues ever get out in the public eye?

Remember that the names and any identifying information (email addresses etc) will be held totally confidential by Dr Hayward-Brown, a code number is used to identify each parent.
Lisa

FALSE ACCUSATIONS OF MUNCHAUSEN SYNDROME by PROXY

--------------------------------------------------------------------------------
presented by Dr Helen Hayward-Brown.

Based in Australia I completed my doctoral research in the social sciences (interdisciplinary: sociology, anthropology, psychology) on the subject of false accusations of Munchausen Syndrome by Proxy (MSBP). Accusations of MSBP have increased in the last ten years and many mothers are being falsely accused. Many of these accusations may occur after mothers make complaints about treatment, when children suffer side-effects from drugs, or when ex-husbands are accused of sexually abusing their children. Common patterns in these cases are fabrication of evidence against mothers, the tampering of files, inaccurate files or mixing of files with other children, and bad faith allegations following parental complaints.
If you would like further information or contact, please contact me on my email address: * [email protected]


quote:
Originally posted by brainless:
Before you provide such very personal information you should seriously investigate the people and the situation.

Even then, you have no idea how the information, held for all time, will be used.

b



Posts: 284 | From UK | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.